Thank you so much for this thorough and informative post. This information does help me to understand my body better. I will commit to a strict gluten free diet. I may not have a diagnosis but I know gluten is causing issues. The worst offender, white bread, causes a reaction within 20-30 minutes. Which I hate because I like sandwiches. Lol. Common sense dictates that it's time to stick to a strict gluten free diet. Thanks for the tips about alternatives. I do cook and bake so it's helpful to know what may work. I appreciate so much all the time and effort you all have put into helping me understand and being supportive. Thank you. 

I went back to consuming dairy after a year of healed villi.  What I didn't know is that along with developing celiac, my pancreas was no longer producing enough enzyme to consume lactose.  My GI said he often sees this with celiac patients.  Some people can go back to dairy with no problems at all and others will develop odd symptoms like ataxia--balance issues, etc.-- for no apparent reason.  It took me a year of suffering to get it all straightened out.  Hope this saves you some time!  

Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies.

She’s eating mostly gluten as far as I know. Think her GP is trying to get her seen fairly quickly

Be sure to have her continue eating gluten before the biopsy. Reducing gluten now could lead to healing and false negative results.