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Nutritionist Wwyd

nme23

By nme23
in Coping with Celiac Disease

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nme23 Apprentice
nme23
Posted

I have been doing pretty well since my diagnosis back in September but still fighting fatigue and being hungry all the time. Think some of my other levels maybe off. So my question is. Is going to a nutritionist worth it to make sure I am getting everything I need?

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nvsmom Community Regular
nvsmom
Posted

If you know what you can and can't eat, my guess is that you won't get much from a nutritionist.

 

It might be better to see a doctor and get your nutrient levels tested, then treat those deficiencies.  The main ones to check are: K, Mg, Fe, D, B12, ferritin, A, Zn, Cu, and.... I'm forgetting something else. Hmm.  Anyway, If you know your low nutrients you can work on improving just those.

 

Best wishes.

sunny2012 Rookie
sunny2012
Posted

I have never found a nutritionist of much value. We Celiac's tend to know more about our diets than they do.

I'd see a doctor and get tested for the values noted above. Vit D and Iron are two that take a long time to recover. They can give you iron by IV if your numbers are not coming up.

 

Good luck

chocominties Rookie
chocominties
Posted

I had to see a nutritionist after a blood test revealed low ferritin.  She gave me a list of what I should strive for as far as carbs, protein, calories, etc., suggested a particular multivitamin, and told me to avoid aluminum (found in baking soda, I guess).  

 

I don't know that it was terribly useful.  I was using MyFitnessPal to track my food, and found that it was super hard to make my diet line up with what she wanted me to be eating.  If I was eating enough carbs and protein I had too many calories, too much protein and not enough carbs, just enough fat but too much sugar, and so on.  I was in school and working, as well as living in a shared house with 10 other people, so getting good nutrition began to feel like another job.  Maybe someone else with different circumstances would get more from it.  

cristiana Veteran
cristiana
Posted

I agree with nvsmom, getting your levels checked would be valuable - here in the UK I was offered ferritin, B12 and D.  Ferritin was very low.  B12 borderline, D OK.   Long and the short of it is I have had so much more energy since taking iron supplements and B12.  

I saw two nutritonalists and the private one was brilliant.  She told me to make sure I have lots of quality protein - chicken, eggs and tinned oily fish.  That really has helped with hunger pangs.

cap6 Enthusiast
cap6
Posted

You probably need all of your levels checked, especially iron and B12's. I hasve seen two different nutritonalist, one was no good. She gave me pages she had printed off the internet. The other one was excellent but she was part of the Warren Celiac Foundation in San Diego so she knew celiac. I think it depends on who and where you can find one. You can prob get as much info on the internet.

sunny2012 Rookie
sunny2012
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

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nvsmom Community Regular
nvsmom
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

  :angry:  :wacko:  :blink:  No!  Grrrrr. How irresponsible of that nutritionist.  Disgusting advice - Make yourself sick the lose a few?  Sheesh!!  <_<

LauraTX Rising Star
LauraTX
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

 

What..... the......  whatt.......  wow. Wow.  Definitely a horror story.

C-Girl Contributor
C-Girl
Posted

I had good luck with the nutritionist when I was first getting started, but I'd been having a ton of problems which I found out later were due to microscopic colitis in addition to the celiac disease. A lot of the nutritionist's advice was geared toward eliminating symptoms, not fighting fatigue. I'd see your GP to get your blood tested for your vitamin levels before assuming that it's deficiency at the root of your fatigue and not something else.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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