Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test.


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I have Celiac disease so we've kept my daughter gluten free until testing would be reliable for her. Fortunately, we have an awesome support system and several gluten free friends. However, I've forgotten how old she needs to be for reliable test results. I'd rather err on the side of over cautious.

So, how old should kids be before testing is pretty consistently reliable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I have not found any set ages in my limited research. The older the better, though. I would consider testing before she starts school. No one wants to be deal with being sick and going to school.

I waited a year before I tested my kid (13 years old), but that was due to all the healthcare reform. We are self-employed and even though we could afford insurance, getting it was difficult! She never stopped eating gluten and had no symptoms. With two of us, we think she is doomed, but we are ever hopeful!

StephanieL Enthusiast

When DD started preschool we gave her gluten in home for a few days to be sure she didn't have a horrible reaction to it. Then when she started I knew she would get getting gluten containing snacks at school on a daily basis.  At the winter holiday break we had her tested.   She is now in K and since they don't have the same snack she is back to being gluten free except when we go out to eat.  We chose to have a gluten-free house for all the kids to keep DS safe (he's the oldest).  We have a younger kid who we are planning on the same approach with.

SGWhiskers Collaborator

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

nvsmom Community Regular

Toddlers are the hardest to test.  Usually they say 2 and under is tricky.

 

If she resumes eating gluten, remember that she'll need to be retested every two years for life.  It might be safer to just keep her gluten-free until she wants to test.

StephanieL Enthusiast

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

nvsmom Community Regular

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

 

True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to.

 

I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them.  For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma, and a gluten sensitivity which I suspect is celiac disease but his one and only test (two years ago) was negative, but I have just told them he has those helath issues and celiac disease - they did not ask to see any proof at all.

 

I have no idea how it works in colleges, but I probably won`t have my kids in rez - most kids don`t use that up here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,119
    • Most Online (within 30 mins)
      7,748

    anagramcat
    Newest Member
    anagramcat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.