Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Foundation Survey For The Us Food & Drug Admin

kareng

By kareng
in Publications & Publicity

Recommended Posts

kareng Grand Master
kareng
Posted

"Celiac Disease Foundation Chief Executive Officer, Marilyn Geller, will present at the US Food and Drug Administration’s Patient-Focused Drug Development Conference (PFDD) on May 11, 2015 just outside of Washington, D.C. Marilyn accepted the invitation to speak on behalf of celiac patients and their caregivers. In anticipation of this meeting, we are asking that members of the celiac community complete the linked survey about living with celiac disease as soon as possible. We want to make sure that your voice is heard by the FDA as they make decisions on proposed therapeutic treatments for celiac disease. This is an urgent request, as our written comments are due to the FDA in a few days. Please complete the survey now."

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Done. :)

LauraTX Rising Star
LauraTX
Posted

Done too!

Gemini Experienced
Gemini
Posted

Done here!  :)

bartfull Rising Star
bartfull
Posted

Me too.

cyclinglady Grand Master
cyclinglady
Posted

Done!

ravenwoodglass Mentor
ravenwoodglass
Posted

Done but I found #7 to be a bit confusing because it didn't specify pre or post diagnosis. I could have checked almost every box and did end up checking 5 rather than 1-3. 

Thanks for posting.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Thanks for your input.
    2. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly...
    3. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      No I haven't had one since 2021. I rarely have more than 1 per week.
    4. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,055
    • Most Online (within 30 mins)
      7,748
    EllieBelly
    Newest Member
    EllieBelly
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.