Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Also Intolerant To Casein (Dairy), Soy And/or Corn?


swampy land

Recommended Posts

swampy land Newbie

Hi all,

 

Just interested if any celiacs and gluten intolerants are also intolerant to non organic casein (dairy), soy and/or corn. Or is it just wheat (Gliadin) products that are causing your intolerance?

 

Also, if you have certified organic wheat (gliadin) products, do you have the same intolerance issues?

Partly it's in reference to this -

"There are 4 known “foods” that can induce villous atrophy of the small intestine*: gluten, casein, soy, and corn.

 

The gluten comes from the gluten grains- wheat, barley, and rye. Casein comes from cow’s milk products and is mostly absent in goat’s milk, which contains a different form of casein. The relative absence of casein in goat’s milk is what makes it the “universal foster milk”.

(*particularly the duodenum and jejunum– the first segments of small intestine after the stomach. The villi are the tiny, finger-like projections that absorb nutrients. Atrophy is the wasting away/destruction of these villi.)"

 

 

 

I've become gluten intolerant over time, and looking at why that is? I'm looking at the classic intolerance to gliadin. Villi atrophy from gluten, casein, soy, and corn, and, destruction of essential gut bacteria theories.

 

Cheers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It doesn't matter if the gluten grains are organic or not. I will get just as ill. I do also have an intolerance to soy but my symptoms from soy are very different from my symptoms to gluten and the effects only last a day or two and not the 3 or so weeks that a glutening will cause. 

Many of us are intolerant to dairy also but in many cases after we heal we are able to add it back in. I was very happy to be able to enjoy ice cream and other dairy products after I had healed. 

If you think you may have celiac you should make sure you don't go gluten free until all celiac related testing is done. Staying on organic or older versions of wheat until testing is finished is fine as the organic aspect will not have any adverse impact on testing. 

swampy land Newbie

It doesn't matter if the gluten grains are organic or not. I will get just as ill. I do also have an intolerance to soy but my symptoms from soy are very different from my symptoms to gluten and the effects only last a day or two and not the 3 or so weeks that a glutening will cause. 

Many of us are intolerant to dairy also but in many cases after we heal we are able to add it back in. I was very happy to be able to enjoy ice cream and other dairy products after I had healed. 

If you think you may have celiac you should make sure you don't go gluten free until all celiac related testing is done. Staying on organic or older versions of wheat until testing is finished is fine as the organic aspect will not have any adverse impact on testing. 

ravenwoodglass, have you tried to use probiotic daily for any length of time to aid the healing? You say some heal and can enjoy dairy again. Also, apparently all probiotics are not the same, there are histamine, neutral and histamine degrading types identified. I'm currently at the begining of trying histamine degrading that seem to reduce gluten intolerance somewhat. I'm only eating certified organic rye wheat bread though.

cyclinglady Grand Master

Why don't you consider getting tested for celiac disease (blood test)? That would put you on the path to eliminating celiac disease. If you have celiac disease or Non-Celiac Gluten Intolerance (there is no damage to intestinal villi with NCGI), then you can NEVER consume gluten from wheat, barley or rye. No amount of probiotics will help if you have either of these two conditions AND you continue to consume gluten.

swampy land Newbie

Cyclinglady, are you saying there is no case of celiacs being cured, or symptoms reduced, by particular probiotics? Maybe that only relates to gluten intolerants then?

I don't think it's celiac that i have, and apparently there is no test for gluten intolerance? But i have symptoms return when I return to eating breads (a little organic rye is ok though), pasta, cakes, white flour products.

 

I had the following symptoms (also gluten intolerants can have) that diminished once i greatly reduced wheat products, along with high G.I. foods (glycemic index), coffee and flavour enhancers (msg and 600 numbers) and had histamine degrading probiotics -
1. Fatigue and weakness.

2. Depression, irritability, listlessness, and mood disorders.

3. “Fuzzy brain” or an inability to concentrate.
4. Clumsiness (ataxia).
5. Acne.

6. Low blood sugar (hypoglycemia).
7. Gas and flatulence

8. Weight loss

I'm interested in what other gluten intolerants avoid, and or, include to impove their symptoms. Also interested if pesticides seem to be the main issue and not wheat products per se, for some of us?


 

kareng Grand Master

Cyclinglady, are you saying there is no case of celiacs being cured, or symptoms reduced, by particular probiotics? Maybe that only relates to gluten intolerants then?

I don't think it's celiac that i have, and apparently there is no test for gluten intolerance? But i have symptoms return when I return to eating breads (a little organic rye is ok though), pasta, cakes, white flour products.

 

 

 

 

How would you know if you don't get tested?  You certainly have the symptoms of Celiac.

 

No - Celiac disease is an autoimmune disease.  So far, there are no complete cures.  Eating a gluten free diet can eliminate the symptoms and manifestations - so I guess you could think of it as a cure.

swampy land Newbie

I don't think i have celiacs? as i now include organic rye bread, in small amounts, 6 slices a week. And have no noticable problems. Wouldn't a celiac, as opposed to a gluten intolerant, have an immediate reaction to any type of wheat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't think i have celiacs? as i now include organic rye bread, in small amounts, 6 slices a week. And have no noticable problems. Wouldn't a celiac, as opposed to a gluten intolerant, have an immediate reaction to any type of wheat?

 

Not necessarily.  Many don't get an "immediate" reaction.  It can take hours or even a day to react.  Sometimes, people don't even get a reaction every time.  Probably has to do with amounts of gluten, stomach contents, a reaction that you don't realize is from gluten (like a headache, for example), probably other reasons.  

 

I can see you are really sure you don't want to be diagnosed with Celiac disease.  I think we all were. :unsure:   Good luck to you.

cyclinglady Grand Master

How can you "think" you do not have celiac disease? I had no intestinal symtoms when I was diagnosed and I was eating a lot of gluten from rye, barley and wheat daily. There is no cure for celiac disease as it is an autoimmune disorder, like Karen said. Unlike lupus or MS, gluten triggers an autoimmune "flare-up" , so by avoiding gluten, we can avoid flare-ups. In that sense, we are a little more fortunate in that our disease can be assisted by diet and we do not necessarily need drugs to improve symptoms.

I would suggest a consult with a real doctor -- not Dr. Google!

I wish you well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748

    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.