Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac -- Grains? Or No?


celiwhat

Recommended Posts

celiwhat Rookie

I am a newly diagnosed celiac, as in two weeks. I know what gluten is and where it hides. However I am so confused when it comes to whether eating other grains is okay? (Such as the rice flour substitutes for flour ie. Udi's) I have read so much conflicting information. Some believe you should stay away from all grains altogether for 3-6 months, and some don't see it as a problem. I find it really hard to eliminate ALL grains, so I tend to go back and forth. But I do want to heal and do it right, so I am looking for others opinions and insights.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The Celiac experts do not say you must eliminate all grains. For example:

"A gluten-free diet means avoiding all foods that contain wheat (including spelt, triticale, and kamut), rye, and barley, and their derivatives. Despite these restrictions, you can still eat a well-balanced diet with a variety of foods, including gluten-free bread and pasta. For example, instead of wheat flour, use potato, rice, soy, corn, or bean flour. Fresh meat, fish, rice, fruits, and vegetables do not contain gluten, so you can eat as much of these foods as you want."

Open Original Shared Link

Good food list here::

Open Original Shared Link

cyclinglady Grand Master

Karen is right, but I would be cautious in introducing grains or additives that you have not eaten before. For example, I found that Xanthan Gum that is found in many gluten-free breads and flour blends (it is a binder) bothered me. Not my husband who has been gluten-free for 14 years, but me, when I was first diagnosed. I switched to guar gum and did well. I also found that I could not tolerate oats or quinoa. No gluten issues it was just hard to digest for me. Now, I can eat those things without issue, but I am two years into my gluten-free diet. So, keep a journal.

Finally, eating whole foods is best. Switching to gluten-free cookies and cakes is not good for healing. Save those treats for special occasions!

cap6 Enthusiast

Although some grains (rice, quinoa etc) are allowed on the celiac diet I, personally, would avoid them and all processed foods, as much as possible, for a few months.  Load up on good cooked veggies, meats (baked chicken, fish....) and fruits.  Even skip the nuts.  Newly diagnosed, your gut is still raw and needs time to heal.  Grains can be hard to digest and can slow down the healing process.  Processed foods (and gluten free breads etc are no exception) are loaded with ingredients that, while safe for celiacs, are not good for us.   Skip corn when you can as it can be really hard to digest.  A handful of popcorn sent me into glutened like symptoms for a week.  Very hard to digest.  Dairy products can cause gluten-type symptons as a lot of celiacs are also lactose intolerant, which in time may pass.   I know it seems over the top but it will help you heal faster.  Then, slowly, slowly reintroduce other foods if you want.   

Also.... not all gluten free processed foods are ok for your particular self. They might be fine for someone else, but not you.  Case in point.....  We have a piece of Udi's g.f. bread now and then with no gut issues.  We found a new brand in the store and tried it.  omg!  We were both in tummy pain.  I reread the ingredients and this certain brand had bamboo fiber in it.  I checked it out and although bamboo fiber is certainly gluten free it is processed and used as a thickener, not something that digests.  The goats ate that loaf of bread! 

celiwhat Rookie

Thank you. I started out not eating any grains, but I just became so bored and ran out of things to eat. I really hate eating the same thing everyday, and have a hard time getting full off it for some reason (prolly cause I'm addicted to bread). I do want to heal. I just need to find a way to dedicate myself to it. And I just bought a loaf of gluten-free bread :/

cyclinglady Grand Master

Just freeze it! It will last for many months.

nonnarae Rookie

I make my own gluten-free bread and it doesn't seem to bother me at all. I think the most important thing is to STAY gluten-free. If that means you need to eat a bit of gluten-free bread here and there, I think that is far better than falling off the wagon so to speak. Maybe just keep the harsher things to a minimum and see how they effect you. That is just my,  also new, humble opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

Do you have a sweet tooth at all?  If so try this yummy chocolate treat:

 

1 ripe avocado

1/4 cup of cocoa powder

1/4 cup (organic) maple syrup

1/4 cup almond milk (I use coconut milk)

1 teaspoon vanilla extract

 

put it all in a blender and puree till smooth.  pour into small bowl, chill and eat.  Sooooo good!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,122
    • Most Online (within 30 mins)
      7,748

    Sarer
    Newest Member
    Sarer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.