Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And Hoping To Learn From You All.

kerrygirl15

Recommended Posts

kerrygirl15 Newbie
kerrygirl15
Posted

Hello,

I am 22 and newly diagnosed with celiac d.I went into hospital two months ago due to severe vomiting and diarrhoea which they initially thought was some sort of tummy bug.It turned out to be pnemonococcal septicemia which turned into septic shock.I was in icu on a ventilator for weeks,had to be resuscitated,it was awful.Anyway I'm alive now and home!While in hospital they tested me for c.d.bloods were positive,biopsy positive also was severely anemic,hyposplenism and leaky gut.I have been on gluten free diet for a few weeks now and getting on well.I'm really hoping that the gluten-free diet will make me feel well again.I've been sick all the time for the last few years.Anyway,I'm hoping I will learn a few things from everyone here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jays911 Contributor
Jays911
Posted

Welcome. You will learn a lot following thIs forum. Glad you are feeling better.

mamaw Community Regular
mamaw
Posted

hello & welcome, lots  of  good advice  here.. Glad  to hear  you  are doing  better  it  sounds like  you  had a really rough  go of life for a period of  time....

nvsmom Community Regular
nvsmom
Posted

Welcome to the board!  :)  

 

It sounds like you are on the right track now.  I hope you have a speedy recovery and are well on your way to healing by time the summer winds down.  Best wishes.

kerrygirl15 Newbie
kerrygirl15
Posted
  • Author

Thanks everyone.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      54

      Supplements for those Diagnosed with Celiac Disease

      Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin...
    2. Florence Lillian
      - Florence Lillian posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting...
    3. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      54

      Supplements for those Diagnosed with Celiac Disease

      @Margaret Wheatley Thank you and welcome to the forum.
    4. Margaret Wheatley
      - Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      54

      Supplements for those Diagnosed with Celiac Disease

      I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the...
    5. Jmartes71
      - Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Nateral remedies

      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,542
    • Most Online (within 30 mins)
      7,748
    Payday
    Newest Member
    Payday
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Supplements for those Diagnosed with Celiac Disease

      By xxnonamexx · Posted

      Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin for Men and woman 50+ Natures made multivitamin for her as it gives the right amount needed for both men and women as the mens has too much. For Probiotics ALign came out on top the 5x and the one for bloating. Knitty Kitty provided me good supplement brands as well.
    • Florence Lillian
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Florence Lillian · Posted

      Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these  affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition.  Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting, and inflammation causing a feeling of being very warm to hot. The following are considered  Gluten-Mimicking Proteins: Corn (Zein protein) (this causes inflammation with me). Millet Panicin protein) Sorghum (Kafirin protein).  Potato (Patatin protein, is NOT considered a Gluten-Mimic, nor is Oats (Avenin) but they do cause reactions in some Celiac people... I eat potato and I vomit, and get diarrhea. gluten-free Oats causes me to have Nausea, and Corn causes me  Inflammation.  I hope this helps someone.  Wishing the very best to all.   Florence.  
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      @Margaret Wheatley Thank you and welcome to the forum.
    • Margaret Wheatley
      Supplements for those Diagnosed with Celiac Disease

      By Margaret Wheatley · Posted

      I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful.  Regards Margaret. 
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi  dr dropped me but took me back.Im frustrated too but its the autoimmune part .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.