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Newly Diagnosed And Hoping To Learn From You All.

kerrygirl15

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kerrygirl15 Newbie
kerrygirl15
Posted

Hello,

I am 22 and newly diagnosed with celiac d.I went into hospital two months ago due to severe vomiting and diarrhoea which they initially thought was some sort of tummy bug.It turned out to be pnemonococcal septicemia which turned into septic shock.I was in icu on a ventilator for weeks,had to be resuscitated,it was awful.Anyway I'm alive now and home!While in hospital they tested me for c.d.bloods were positive,biopsy positive also was severely anemic,hyposplenism and leaky gut.I have been on gluten free diet for a few weeks now and getting on well.I'm really hoping that the gluten-free diet will make me feel well again.I've been sick all the time for the last few years.Anyway,I'm hoping I will learn a few things from everyone here.

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Jays911 Contributor
Jays911
Posted

Welcome. You will learn a lot following thIs forum. Glad you are feeling better.

mamaw Community Regular
mamaw
Posted

hello & welcome, lots  of  good advice  here.. Glad  to hear  you  are doing  better  it  sounds like  you  had a really rough  go of life for a period of  time....

nvsmom Community Regular
nvsmom
Posted

Welcome to the board!  :)  

 

It sounds like you are on the right track now.  I hope you have a speedy recovery and are well on your way to healing by time the summer winds down.  Best wishes.

kerrygirl15 Newbie
kerrygirl15
Posted
  • Author

Thanks everyone.

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    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
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      By Silk tha Shocker · Posted

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
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      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
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      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
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