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Newly Diagnosed And Hoping To Learn From You All.

kerrygirl15

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kerrygirl15 Newbie
kerrygirl15
Posted

Hello,

I am 22 and newly diagnosed with celiac d.I went into hospital two months ago due to severe vomiting and diarrhoea which they initially thought was some sort of tummy bug.It turned out to be pnemonococcal septicemia which turned into septic shock.I was in icu on a ventilator for weeks,had to be resuscitated,it was awful.Anyway I'm alive now and home!While in hospital they tested me for c.d.bloods were positive,biopsy positive also was severely anemic,hyposplenism and leaky gut.I have been on gluten free diet for a few weeks now and getting on well.I'm really hoping that the gluten-free diet will make me feel well again.I've been sick all the time for the last few years.Anyway,I'm hoping I will learn a few things from everyone here.

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Jays911 Contributor
Jays911
Posted

Welcome. You will learn a lot following thIs forum. Glad you are feeling better.

mamaw Community Regular
mamaw
Posted

hello & welcome, lots  of  good advice  here.. Glad  to hear  you  are doing  better  it  sounds like  you  had a really rough  go of life for a period of  time....

nvsmom Community Regular
nvsmom
Posted

Welcome to the board!  :)  

 

It sounds like you are on the right track now.  I hope you have a speedy recovery and are well on your way to healing by time the summer winds down.  Best wishes.

kerrygirl15 Newbie
kerrygirl15
Posted
  • Author

Thanks everyone.

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    • RMJ
      Celiac disease symptoms

      By RMJ · Posted

      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your assistance. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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