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Newly Diagnosed And Hoping To Learn From You All.


kerrygirl15

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kerrygirl15 Newbie

Hello,

I am 22 and newly diagnosed with celiac d.I went into hospital two months ago due to severe vomiting and diarrhoea which they initially thought was some sort of tummy bug.It turned out to be pnemonococcal septicemia which turned into septic shock.I was in icu on a ventilator for weeks,had to be resuscitated,it was awful.Anyway I'm alive now and home!While in hospital they tested me for c.d.bloods were positive,biopsy positive also was severely anemic,hyposplenism and leaky gut.I have been on gluten free diet for a few weeks now and getting on well.I'm really hoping that the gluten-free diet will make me feel well again.I've been sick all the time for the last few years.Anyway,I'm hoping I will learn a few things from everyone here.


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Jays911 Contributor

Welcome. You will learn a lot following thIs forum. Glad you are feeling better.

mamaw Community Regular

hello & welcome, lots  of  good advice  here.. Glad  to hear  you  are doing  better  it  sounds like  you  had a really rough  go of life for a period of  time....

nvsmom Community Regular

Welcome to the board!  :)  

 

It sounds like you are on the right track now.  I hope you have a speedy recovery and are well on your way to healing by time the summer winds down.  Best wishes.

kerrygirl15 Newbie

Thanks everyone.

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    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
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      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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