Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Some.


Kaleab

Recommended Posts

Kaleab Newbie

Hello All,

I have been diagnosed with Celiac and yesterday I decided to see what a cookie would do that had wheat in it after going gluten-free for 3 months. Surprisingly, I did not really get sick. A little foggy, cramps for a couple of hours but nothing like before. Does this mean I can have gluten in small amounts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Welcome to the site!

 

No, a celiac cannot have any gluten.

 

When you have celiac, even if you don't have visible symptoms, the auto immune damage is happening in your intestine which in turn affects your ability to absorb nutrition and the health of your whole body. Over time, this can lead to anemia, osteoperosis, diabetes, and even cancer, even if outward symptoms are minimal. 

 

Have you explored the various recipes? There are many gluten free cookies that are delicious and won't make you sick or cause auto immune damage. I held a 100% gluten free baby shower recently and everybody thought that my menu was great, even the gluten eaters. 

 

A good place to start here is our Newbie 101 thread. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 It's chuck full of good information on how to maintain a safe gluten free diet, including avoiding cross contamination. It's difficult at times, but good health and avoiding all the complications of untreated celiac disease is so worth it!

mamaw Community Regular

NO NO NO...you have  probably healed  your  gut  a little in 3 months  if your  were strict....isn't  a  little foggy  & cramps  enough  to make  your  brain  understand  that  you can't  have  gluten? sounds  like "Russian Roulette" to me.....you  can continue to cheat  no  one will stop you  but  down the road  your  body  will  succumb  to  the  ill effects  of  gluten   & then  you can deal  with cancer, osteoporosis,  diabetes, anemia  &  more... good  luck

kareng Grand Master

No. Did the foggy and cramps not tell you something? That you are reacting.

Open Original Shared Link

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve."

Kaleab Newbie

Welcome to the site!

 

No, a celiac cannot have any gluten.

 

When you have celiac, even if you don't have visible symptoms, the auto immune damage is happening in your intestine which in turn affects your ability to absorb nutrition and the health of your whole body. Over time, this can lead to anemia, osteoperosis, diabetes, and even cancer, even if outward symptoms are minimal. 

 

Have you explored the various recipes? There are many gluten free cookies that are delicious and won't make you sick or cause auto immune damage. I held a 100% gluten free baby shower recently and everybody thought that my menu was great, even the gluten eaters. 

 

A good place to start here is our Newbie 101 thread. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 It's chuck full of good information on how to maintain a safe gluten free diet, including avoiding cross contamination. It's difficult at times, but good health and avoiding all the complications of untreated celiac disease is so worth it!

Oh thank you. I have tons and tons of recipes. I know what I can what I can't eat, I was just doing a little science experiment and wanted to know why nothing was happening. Thanks BlessedMommy, will def. look at that thread. 

Kaleab Newbie

NO NO NO...you have  probably healed  your  gut  a little in 3 months  if your  were strict....isn't  a  little foggy  & cramps  enough  to make  your  brain  understand  that  you can't  have  gluten? sounds  like "Russian Roulette" to me.....you  can continue to cheat  no  one will stop you  but  down the road  your  body  will  succumb  to  the  ill effects  of  gluten   & then  you can deal  with cancer, osteoporosis,  diabetes, anemia  &  more... good  luck

I hate cheating, I just wanted to see if anything was happening. I know how bad it is for my body and will not continue. I was strict, like REALLY strict. Hopefully I didn't jack everything up. Thanks mamaw!

Kaleab Newbie

No. Did the foggy and cramps not tell you something? That you are reacting.

Open Original Shared Link

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve."

Thanks Karen, I am 15 so the doctor said mine should heal a lot faster then someone older so hopefully I didn't mess anything up. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiacandme Apprentice

I appreciate that you are 15 but every case is different. I'm surprised your doctor said that because you are 15 you should heal a lot faster than someone older. Even in a 7-year-old. One might think that because they were diagnosed early they wouldn't have as much damage or would heal faster but that is simply not necessarily true. Some 7 yr olds are diagnosed after "easier" symptoms and some may feel their lives were saved by finally being diagnosed. The damage, and healing time, varies greatly from patient to patient.

 

To be honest, with what I've experienced, I would be terrified to purposely take a bite to see what what happen. Gluten was destroying me.

 

Reading your post made me think of a story I heard not that long ago at my hairdressers. She was asking me how I was feeling knowing I had been diagnosed with celiac disease. Someone else that was in the salon heard her and shared a story about her sister. Her sister was a diagnosed celiac patient. She was getting ready to go to college and wanted to see what would happen to her if she accidentally had or was given gluten. She ate gluten on purpose to see and ended up having a terrible seizure. She never had seizures in her life before. From that time on she continued to have them. :(

 

Sounds like you were lucky with how your body reacted. Be gentle with yourself and stay away from that gluten! :)  

ravenwoodglass Mentor

In addition to the excellent info you got from others it should be added that reactions can be delayed. That little bit of brain fog and tummy ache may turn into explosive D today or tomorrow. Hopefully it won't but no way to tell.  I know it is hard when you are young to have anything that makes you different from your peers but you must stay strict with the diet even if accidental or purposeful glutenings don't seem to cause too much pain.

Kaleab Newbie

I appreciate that you are 15 but every case is different. I'm surprised your doctor said that because you are 15 you should heal a lot faster than someone older. Even in a 7-year-old. One might think that because they were diagnosed early they wouldn't have as much damage or would heal faster but that is simply not necessarily true. Some 7 yr olds are diagnosed after "easier" symptoms and some may feel their lives were saved by finally being diagnosed. The damage, and healing time, varies greatly from patient to patient.

 

To be honest, with what I've experienced, I would be terrified to purposely take a bite to see what what happen. Gluten was destroying me.

 

Reading your post made me think of a story I heard not that long ago at my hairdressers. She was asking me how I was feeling knowing I had been diagnosed with celiac disease. Someone else that was in the salon heard her and shared a story about her sister. Her sister was a diagnosed celiac patient. She was getting ready to go to college and wanted to see what would happen to her if she accidentally had or was given gluten. She ate gluten on purpose to see and ended up having a terrible seizure. She never had seizures in her life before. From that time on she continued to have them. :(

 

Sounds like you were lucky with how your body reacted. Be gentle with yourself and stay away from that gluten! :)

Oh god, I hope she's better. Gluten was destroying my life and my grades and just everything, I was just being dumb. Thanks Celiacandme :-)

Kaleab Newbie

In addition to the excellent info you got from others it should be added that reactions can be delayed. That little bit of brain fog and tummy ache may turn into explosive D today or tomorrow. Hopefully it won't but no way to tell.  I know it is hard when you are young to have anything that makes you different from your peers but you must stay strict with the diet even if accidental or purposeful glutenings don't seem to cause too much pain.

I understand my condition and my friends do too I was being dumb. Thanks ravenwoodglass. :)

mamaw Community Regular

okay I think you got  double H ell  for  this  so now  make it into a  learning lesson  &  move  on  without  ever  touching gluten again!!!!!! Make  yourself a promise....your too young  to have  a  more serious  illness hit you because  you  were  playing  around....

kareng Grand Master

Good!  You got that out of the way now!  Onward.....   :D

nvsmom Community Regular

LOL  Onwards and upwards.  :)

 

You sound smarter about this (except for that cookie) than most adults.  Good for you.  Stay strict or it will catch up to you in a few years, and you don't want something knocking you back when you are in your prime.

 

Best wishes.  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.