Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Keep Getting Sick And Don't Know Why!


mareahf

Recommended Posts

mareahf Apprentice

I have been gluten free for 6 years now and was doing really well until I got a bad glutening about 6 months ago. Since then I have gotten better only to get sick over and over again. I would get sick for about a week then feel better for about a week and get sick again! This has been happening for months now.

I went to my wellness dr and he suspected I have a soy allergy now so I have been avoiding soy for a week but I'm sick again! I have been eating some processed foods but I always make sure it is certified gluten free and I check for soy now too. I don't think it's cross contamination, I'm pretty good about that.

I also wonder if it is my anxiety. I get bad anxiety when glutened and since I have been sick so much I've been have lots of anxiety. Do you think my anxiety is causing my diarrhea?

I'm just so sick of being sick now and miss the days I felt healthy and happy.

Has anyone had a similar experience? Any suggestions on what I should do? How many of you developed a soy allergy years after tolerating soy ?

For now I'm going to eat clean, no processed food, and talk to my shrink about upping my anxiety meds.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are your anxiety meds generic? If they are binders can be changed at any time. Check with the company that makes them. Their name should be on the label but it may be in very small print. Also look into anything else that you might have changed when this happened. Pet food, supplements, do you have gluten eaters in your home, if so could they have become less careful? Do you have a significant other? If so are they gluten free or careful to brush their teeth before you kiss?

I hope you can figure this out soon. Do also make sure that your doctor has checked for any other problems you may have just in case it isn't gluten or soy causing the issue but an illness. 

Googles Community Regular

I started having intermittent problems with D and it ended up being dairy that was causing problems. I removed that and things got better. Good luck. 

fran641 Contributor

After a year of gluten-free I began having strong reactions to dairy out of the blue. Turns out my gallbladder is acting up and may have to come out soon. The doc said sudden onset of dairy reaction is common when the gallbladder goes bad. The D is awful when I have any dairy. Hope you can figure out what is triggering your responses this long after being gluten-free.

mareahf Apprentice

Thank you your suggestions.

I called the manufacturer for my medicine (sertraline by greenstone) and they said they could NOT verify that it is gluten free or soy free because they use some products that could be made from wheat or soy. So now I'll look for an alternative.

In the past I found out I have polyps in my gallbladder so I will get that checked again soon to see if their are any changes or concerns.

I will also cut out dairy to see if that helps.

LauraH Newbie

You could be developing microscopic colitis, which is inflammation in the large intestine that can be caused by celiac disease.   It's possible that the glutening you mention triggered more inflammation that now is being made worse by foods that had been safe for you before - like an already skinned knee will keep being re-injured if you crawl on carpet, but if it wasn't skinned already it wouldn't be a problem.   The problem with MC is that a lot of things can cause symptoms, not just the major culprits (grains, dairy, soy, sugar).  For me anything raw, fibrous, nuts,  and even many cooked veggies make my D worse.  I can get it under control for a week or so, but then something will irritate my intestines and it takes a good week of totally safe foods (chicken, well cooked apples, well cooked carrots, broth, bananas, some cheeses) to solidify things back up.   

 

Only a biopsy can diagnose it (ahem, sound familiar?), but maybe read up on it a bit and try cutting back on fibrous veggies and fruits and raw stuff and see if it settles down.  

 

It's funny, when I eat out, the celiac disease is the least of my problems - I can get gluten-free menu items most places, but it's nearly impossible to find stuff that is safe for microscopic colitis :-(  

knitty kitty Grand Master

Ask your doctor if you could be having an anticholinergic reaction to your antidepressant.

Celiac disease messes up the metabolism and the drug doesn't get cleared out of the body properly. The build up has horrible effects.

When it happened to me, it started with terrible diarrhea and increasing anxiety. The dose was increased and everything got worse. I can't even write how horrible it was.

Symptoms are hot as a hare, dry as a bone, red as a beet, bloated as a toad, blind as a bat, and mad as a hatter. Not fun at all.

Hope you can just cut out dairy and feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,425
    • Most Online (within 30 mins)
      7,748

    Cindyceliac
    Newest Member
    Cindyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.