Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping Emotionally With Not So Recent Diagnose?


darlingnea13

Recommended Posts

darlingnea13 Rookie

i was diagnosed February 2014. But yet I'm still have trouble emotionally going to the grocery store and being around people eating gluten (like pizza). Is there anything I can do??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

there is a very "real" emotional side in the beginning. We all have been there . I know it doesn't truly help but honestly it does get better...Many go through a grieving process, denial, anger, fear, sadness, just the same as loosing a loved one...but then comes the emotional healing. There is no time frame, I'm gluten-free for over twelve years , very strict & at times I still get a little weepy....

Just keep yourself focused on being very strict , learning all you can about gluten-free, try to avoid CC....& try not to think of what you are giving up but what you are gaining--- a happy healthy life awaits you...For me, I was so ill that I just wanted to be better so I didn't think about the food... And I will say there is a gluten-free food to match almost any wheat one.. The gluten-free food is almost a clone ...if you are craving something just ask & we can direct you to find it gluten-free....

Eating a "naked" plain gluten-free diet will also help you in your new lifestyle...ie: chicken, meats, veggies, fruits in their natural state...Digestive enzymes are also good to help the gut....

blessings

nvsmom Community Regular

I find it helpful to be proactive.  I don't let myself get into situations where I'll be sitting hungry while others eat.  I always bring food with me when I go out.  I will bring some dishes to a dinner and people's houses and turn it into a bit of a potluck; it costs more, and I'm the one who always brings the most, but I can eat and enjoy myself.   I will even take food with me into restaurants or skip restaurants altogether.  When I meet friends we will usually go out for coffee or drinks.

 

Always be prepared so you don't get into a situation where you will be deprived.  No one else, unless it is an educated celiac, will be prepared with the knowledge or supplies to feed you safely, so try not to expect them to and you won't be disappointed.  KWIM?

Jays911 Contributor

The only time i miss anything is on road trips, where almost all food choices are fast food--i.e., nothing for us gluten-free folks.  So we bought one of the iceless coolers and take along our own food.  It has been seven months for me, and I find it gets easier every day.

kerrygirl15 Newbie

I hope it gets easier for you....I'm sure it will in time...You should make a homemade gluten free pizza...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.