Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety/recovery


Check12344

Recommended Posts

Check12344 Newbie

I have been living in a state of panic for the last year. I am 23 and formerly extremely ambitious and social. I am now hermit like and my sole ambition is to get better.

My IgA (gliadin)test was high, as was my IgM (Lyme) test although all western blot (more accurate) Lyme tests were completely negative.

I have been Gluten free for 1.5 months. My dizziness, overly emotional reactions have subsided with this diet, yet I continue to have extreme anxiety. How long did it take your anxiety to subside?

I am 100% gluten free, on a variety of supplements and just can't kick it. Any advice is appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



across Contributor

I'm so sorry you're going through this! For me, the anxiety went away quickly  -- but not all of it. I found that like many celiacs, dairy also gives me problems. When I cut out gluten and ALL dairy, I went from being extremely anxious and self-condemning to having a calm and peaceful mind. For this, I thank God!

Mrlkandee Newbie

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

Check12344 Newbie

Hey all,

I have the same reaction as the original poster.

I'm 23, was diagnosed this past winter, have been gluten-free since March.

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them.

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

After 3-6 months it's time to look for answers. If you truly have gotten rid of all gluten maybe check other food sensitivities/vitamin deficiencies. Also, maybe you have an ongoing gut infection that needs to be repaired by antibiotics. Many people on here wait a year, but I'm more of an act first, and seeing a GI or naturopath may help you progress

cyclinglady Grand Master

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

I answered in another post, but I think you need to really make sure you are gluten free.  Check meds, stop eating out for now, look at your kitchen (do you live with gluten eaters?).  

Finallyglutenfree Newbie

Check if you might be sensitive to all grains. I am and have the same problem. Wheats the worst, obviously, but rice gives me anxiety!

MsMarginalized Rookie

Wow, y'all!  I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years.

 

I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. 

 

I realize how Celiac is a RANGE (maybe like Autism?) my Celiac can be bad when I get gluttened but not to the degree that some folks have. 

 

Maybe some of the things Jennifer does & has found can help? (if we are allowed to put in links, I would put in one over to amazon.com....that's where I got a kindle version of her book)  some forums I've been on don't allow that & I'm too new here to rock any boats.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,975
    • Most Online (within 30 mins)
      7,748

    Mel R
    Newest Member
    Mel R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.