Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Results


shiffy k

Recommended Posts

shiffy k Newbie

I have been battling with my symptoms for nearly 4 years. Gastric pain, cramps,rashes,nausea, and vomiting. You all know my pain. I had my gallbladder removed in 2013 and was diagnosed with fatty liver. I am only now 23 years old and I had my primary care completely shocked. I continued to live with symptoms that often sent me to seek emergency care. They continued to poke and prod me suggesting it was stress from college and being a mother.I simply decided that it wasn't worth the struggle I was going through as not a single doctor could solve my puzzles. Nearly 6 months ago my 4 year old son started displaying the symptoms that I had been trying to overcome for the past several years. It was then that I knew I needed some kind of diagnosis. I received a referral from an urgent care clinic, because my primary care physician wanted to continue treating me. I felt I needed to see a gastroenterologist, and he quickly scheduled me for an endoscopy. I got the result today, and luckily they DID NOT find cancer; however, they say it is difficult to exclude celiac. I just left from getting a celiac blood panels that they ordered. I don't know what is happening. Are they saying that it is likely that I have celiac disease?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Probably.  You probably have some intestinal damage to your villi which is usually caused by celiac disease.  The biopsy damage is rated on a Marsh scale where 3 is definitely celiac disease and 2 may be celiac disease.  A 1 shows some abnormalities but they won't call that celiac disease (yet) .  If they ordered blood tests after seeing your biopsy results, my guess is that you scored a 2 or 3.

 

This report has more info on the tests: Open Original Shared Link

 

If you do have celiac disease, get your son tested.  It's a genetic disease so he has a much greater risk of developing it than most people do.

 

Let us know what the doctors say.  And welcome to the board.  :)

shiffy k Newbie

Thanks. I am driving myself crazy waiting for the results to the blood tests. EVERY time I eat I feel like I am poisoning myself. I am even more so freaking out about my son. I am worried about such a dramatic lifestyle change for us both. Then I think maybe I don't have celiac. It is a vicious cycle so I am just ready to get some answers and begin healing. I Will be sure to update on how my test results come back though. Thank you for your support.

nvsmom Community Regular

Worrying about the change is harder than doing it - I think.  Going gluten-free isn't a huge lifestyle change unless you eat out a lot.  That's where it changes for most people.  It is difficult to get used to cooking most nights, or making extra so you can have leftovers, than it is to get used to eating a bit less bread or baked goods... There are gluten-free substitutes out there for bread and such, although they are not fortified with vitamins like most breads are, and their fibre content is usually lower.

 

You'll get it.  The first couple of months are definitely work, but I predict you'll be pretty comfortable with the diet by time the fall rolls around.  :)

shiffy k Newbie

I am officially diagnosed. I have celiac disease.

cyclinglady Grand Master

Soon, you will be feeling better!  That's the good news!  

 

Read up on the Newbie 101 section under "Coping".  There are valuable tips regarding cross contamination, etc. 

 

Then get your son tested and if negative, keep testing him every couple of years.   That's what I do with my kid.  

 

Hugs! 

shiffy k Newbie

Thanks for all of the support. =D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I hope you have a fast and smooth recovery!  Feel free to post as you get started gluten-free.  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...