Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthyroid For Thyroid Contains Gluten

Karli bose

Recommended Posts

Karli bose Newbie
Karli bose
Posted

Hello all, I have been diagnosed with celiac last September and I should admit it is a hell road for me .. From severe acid reflux to difficulty in breathing, brain fog and fatigue... Beside that once I got diagnosed with celiac I did my best to go for gluten free but I lost 20+ pounds and look sick . I am trying my level best to eat more calories but seems it is not helping.. Last week I went for a check up and then the doc said " let me change your medicine synthyroid... The binding of the medicine contains gluten.. She prescribed me some gel form capsules... Also seems dairy brings my breathing issue and after all this it seems to start over from beginning and I am already tired ... With two kids and job everything seems to be so hard...I feel like it's like never ending.. Can anyone of you tell me what should I include in my diet that given me energy and extra calories and also gluten and dairy free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

bartfull Rising Star
bartfull
Posted

And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.

StephanieL Enthusiast
StephanieL
Posted

Synthroid isn't not gluten free- it's just "not guaranteed" to be gluten-free any more.  I don't think there was gluten in it from my memory and checking the list but I think they have just gone CYA and are now saying they won't guarantee it. 

 

FWIW- We use Mylan brand here.  There are also many adults on here who really prefer the more natural (Thyroid Shield I believe) for thyroid issues. 

etbtbfs Rookie
etbtbfs
Posted

Use.levoxyl. Guaranteed gluten-free. See glutenfreedrugs.com. Add T3 if necessary, to get your FT3 at least to mid-range. I use T3 as cytomel, cuz it is also gluten-free.

Karli bose Newbie
Karli bose
Posted
  • Author

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

Karli bose Newbie
Karli bose
Posted
  • Author

Thank you so much @cyclinglady... Yes they says most of the binding in medicine contains gluten so she changed it to Tirosint gel capsules... It does feel a little good now and but the blood work came with the result of low iron she ashes me to work with the pharmacist and get a glutenfree supplement for 300... Do you know any brands that is good iron supplement and glutenfree

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Country life is at least certified gluten-free. I am sure there are others, but with what you have been through, I think an iron tablet that is certified is best instead of relying on the statement "no gluten". Just my opinion.

kareng Grand Master
kareng
Posted

I am just going to remind people that saying something is gluten free doesn't mean it is " certified" or even tested. Some companies do their own testing. Some just label things with no gluten ingredients " gluten free".

Also, according to a recent study, and it made sense to me, almost no medications use gluten as a binder. I will see if I can find that.

https://www.celiac.com/forums/topic/110762-chance-of-gluten-in-meds-very-low/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.