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Horrible stabbing pains at night

Zachm

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Zachm Contributor
Zachm
Posted

I was diagnosed with celiac disease late July and started going gluten free then, so I thought, but I started realizing all the stuff gluten was hidden in. Now I am completely dairy and gluten free for about a month(literally going off of gluten free bread, chicken, corndogs, chips, tacos, and meatballs) and about three weeks ago I had problems waking up during the middle of the night about every other night by HORRIBLY painful diarrhea, like right above my belly button it literally feels like someone is stabbing and its almost like I'm constipated for a moment, then I am not and for the next hour I am on the toilet until I can get off and take immodium. I thought that was going away, but guess what came back last night? It literally has me anxious about going to sleep because of it ALWAYS has happened while I sleep and it never happened before going gluten free. Do you think I may have been misdiagnosed? I go to meet with a GI for the first time on the 5th, but I need this to stop I have 17 college credit hours going on and other responsibilities. Thanks

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cyclinglady Grand Master
cyclinglady
Posted

It sounds like you did not get confirmed for celiac disease with an endoscopy which is the normal protocol.  Be sure to tell your GI that you have been gluten-free for a month or longer.  He can check for SIBO, colitis, H Pylori, etc if he orders an endoscopy.  In the meantime, eliminate all dairy.  Celiacs are often temporarily lactose intolerant.  

Hang in there! 

ravenwoodglass Mentor
ravenwoodglass
Posted

Your description describes my gluten reaction perfectly except I am usually toilet bound for 3 to 5 hours. Is there any chance you could be getting gluten CC anywhere? Have you read the Newbie 101 thread at the top of the Coping section? It could clue you in on ways you may be getting CC. It doesn't sound like you have been gluten free for very long and it can take some time to heal and get used to all the little things we have to do to keep us safe.

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