Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cost of celiac gene test

lolabelle

Recommended Posts

lolabelle Newbie
lolabelle
Posted

Hello! My daughters GI doctor has ordered the celiac gene test for her after having a positive and very high Ttg iga and Ema. Has anyone had this done and might know about what it costs? Our insurance doesn't cover it. Thanks in advance! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

$300-400.  You can call the local labs, like Quest and ask before you have it.

Judy3 Contributor
Judy3
Posted

Yeah $300 - 400 but well worth it because it tells the tale.  If she has the DQ2 or DQ8 gene with the highs on the other tests.  She has Celiac.   You can have Celiac unless you have one of these genes.  If you don't it could be gluten sensitivity which has the same symptoms but doesn't cause the damage of Celiac.  

ravenwoodglass Mentor
ravenwoodglass
Posted

With positive blood work she has celiac.  If the gene testing is going to be a strain on your budget personally I would forgo it. There is also the VERY rare chance that she could be in the small percentage of celiacs that don't carry one of the most common associated genes.

GFinDC Veteran
GFinDC
Posted

Your doctor should be able to to you the cost of the test.  He/she is basically selling you a service and is obligated to reveal the price of that service.

I agree, having the high blood antibodies means she has celiac disease.  Some doctors also order an endoscopy with biopsy samples of the small intestine.  Some accept only the antibody results as proof.

If she has celiac, she got the genes from one or both parents.  So either parent or other siblings may have the genes also and may have or develop celiac disease.

kareng Grand Master
kareng
Posted
37 minutes ago, GFinDC said:

Your doctor should be able to to you the cost of the test.  He/she is basically selling you a service and is obligated to reveal the price of that service.

I agree, having the high blood antibodies means she has celiac disease.  Some doctors also order an endoscopy with biopsy samples of the small intestine.  Some accept only the antibody results as proof.

If she has celiac, she got the genes from one or both parents.  So either parent or other siblings may have the genes also and may have or develop celiac disease.

I don't think the doctor would know what a lab charges for something that he/she rarely orders.  The doctor isn't "selling" you something.  They don't get a commission on labs tests.  The doc may have the blood drawn in his office, and the office would charge a fee for that.    If he isn't getting blood for anything else, he/she might just send you to Quest to get it done.  I think they charge about $20 if they have to draw the blood.  But, its easy to call and ask.

lolabelle Newbie
lolabelle
Posted
  • Author

Thank you everyone! The nurse tried to find out for us, but was unable to. She guessed around $400-$500 which I'm ok with, just didn't want anything much more. They ordered the endoscopy but we are holding off on it for now. No one in our family has celiac that we know of ( I got tested because I have many symptoms as well) Might try calling the lab also. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

with positive blood tests why are you bothering, i could think of many things to spend that money on.

lolabelle Newbie
lolabelle
Posted
  • Author

I could think of many other things too, but my daughters health comes first. Her dr would like to do an endoscopy and colonoscopy and we're checking everything to avoid doing that. Also no one in our family has celiac so the gene test will be helpful in this case.

frieze Community Regular
frieze
Posted
8 hours ago, lolabelle said:

I could think of many other things too, but my daughters health comes first. Her dr would like to do an endoscopy and colonoscopy and we're checking everything to avoid doing that. Also no one in our family has celiac so the gene test will be helpful in this case.

as Raven has said, not all celiacs have one of those genes, the test is not particularly helpful.  why are you trying to avoid the "gold standard" endo?

CherylS Apprentice
CherylS
Posted

I received the bill today for my celiac gene test that was performed on 11/19/15.

 

CPT 81376 HLA CSII LOW RES ONE LOCC 99.96

CPT 81382 HLA CLSII HIGH RES ONE LO 108.12

VENIPUNCTURE 30.41

INSURANCE DISCOUNT 34.73

I have Anthem insurance, this was performed by Compunet in Ohio, my total was $203.76.

They checked for HLA DQ2 and HLA DQ8.  I was afraid it was going to cost over $500.

jbeilfuss Newbie
jbeilfuss
Posted

Hello Iolabelle,

I'm just curious on why you would favor getting the genetic test over the endoscopy when the latter provides the "gold standard" diagnosis.  It was not painful and at least speaking for myself, it was nice to get a definitive diagnosis.  

Prash Newbie
Prash
Posted
On ‎17‎/‎12‎/‎2015 at 2:16 AM, lolabelle said:

Hello! My daughters GI doctor has ordered the celiac gene test for her after having a positive and very high Ttg iga and Ema. Has anyone had this done and might know about what it costs? Our insurance doesn't cover it. Thanks in advance! 

I got it done through "genetrack" ( a Canadian company ). I live in the UK. It cost me 250 GBP. They send three swabs for saliva test. You run your inside cheek (one each side), then place it in the envelope provided, let it dry for 1 hour, then seal it and post it back either by recorded post or normal or courier.  I sent it back recorded from UK to Canada for 8 GBP.

So overall you are looking at 260 GBP. It will take a month from order to delivery ( 4-5 days for swabs to arrive, sending back to Canada in 5 days, then they take 14 days for testing). Results are sent back by email and post (depending upon what you selected).

 

Order status can be tracked online.  I was DQ2 and Homozygous HLA-DQB1*02 positive placing me in second highest risk category (1:10).

 

 

 

 

Prash Newbie
Prash
Posted
3 hours ago, jbeilfuss said:

Hello Iolabelle,

I'm just curious on why you would favor getting the genetic test over the endoscopy when the latter provides the "gold standard" diagnosis.  It was not painful and at least speaking for myself, it was nice to get a definitive diagnosis.  

OP may have already started gluten free like me. Or the OP may only want to check his/her predisposition to celiac (to rule it out). If you don't have the gene, you can't be a celiac. It safely rules it out.

 

 

frieze Community Regular
frieze
Posted
15 hours ago, Prash said:

OP may have already started gluten free like me. Or the OP may only want to check his/her predisposition to celiac (to rule it out). If you don't have the gene, you can't be a celiac. It safely rules it out.

 

 

those two genes cover about 97% of celiacs, so it is possible to have celiac without those genes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.