Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac distress

Jay bird 78

By Jay bird 78
in Coping with Celiac Disease

Recommended Posts

Jay bird 78 Newbie
Jay bird 78
Posted

Hello everyone,  

Last week I was diagnosed with celiac and I have it so bad I'm a rare type and condition it seems only 1 in 10% show what I have my test came back positive via 100% match  to have it and genetically carry it......I don't understand that you can eat whatever you want one day then bam all the sudden yo u have this auto immune disease I'm so new to this o don't know what I can have and can't have I'm lost my reaction resulted in a very massive way and landed me in the hospital .....extreme vomiting,  extreme pain, diarrhea, and besides the massive tiredness rash on body I can go on but the  worst and most scares is blacking out fainting I drove home and I don't remember doing it I fainted trying to get key in door and busted my face up no alcohol period I want to know should I be scoped before I'm completely gluten free or do it now so they can see the damage?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newly Diagnosed Apprentice
Newly Diagnosed
Posted

Hi, I am newly diagnosed too.  My blood test came back positive and I also did the biopsy before committing to a gluten free diet.  I was not having any symptoms and was in denial for a while because how can I be sick and feel fine?  It stinks but I am working on feeling positive about the dietary changes and eating more healthy foods.  I was relying too much on pre-packaged foods anyway and that probably isn't good for anyone anyway...  Hope you feel better soon. 

ravenwoodglass Mentor
ravenwoodglass
Posted

Because your symptoms were so severe you should call your doctor and ask if you should stay on gluten until the biopsy. Normally you are advised to keep eating at least a slice or two of bread a day until all testing is done. It sounds like you must have had positive blood work so you do have celiac even if your biopsies should turn out to be negative.  Go with what your doctor advises.

Do check out the Newbie 101 thread at the top of this section it will have a lot of valuable information for you.

It can be a bit of an adjustment to be gluten free but you will get the hang of it. Ask any questions you need to ask and I hope you heal soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Are Lindt chocolate balls gluten free?

      Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste. I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get a non-Coeliac to try this! I don't want anyone here to get glutened...
    2. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting. It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I...
    3. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Whole Foods carries a 365 brand that is large slices.
    4. trents
      - trents commented on Scott Adams's article in Additional Concerns
      2

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      IMO, the information contained in this article is extremely important. Several medical science articles I have run across lately indicate that researchers are just beginning to uncover connections between gut health and diseases we would never have imagined as having a link. One example is Parkinson's. But this sentence caught my eye from this article...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      8

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      @Dorothy O. Your story is incredibly powerful, and it highlights something that still happens far too often—family members of people with celiac disease aren’t always told that they should be tested, even though first-degree relatives have up to a 1 in 10 chance of having it. It’s heartbreaking that you went so many decades without a diagnosis, especially given...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748
    Malia Ana
    Newest Member
    Malia Ana
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Are Lindt chocolate balls gluten free?

      By cristiana · Posted

      Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste.  I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get  a non-Coeliac to try this!  I don't want anyone here to get glutened! https://www.marksandspencer.com/food/swiss-milk-chocolate-truffles/p/fdp21056736
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting.   It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I was in Tesco's today I couldn't find a brand that did.  Am I imagining this?
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      Whole Foods carries a 365 brand that is large slices.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      It’s actually very common for doctors to order both an endoscopy with biopsies and additional imaging like a CT scan with contrast, depending on your symptoms. The endoscopy with biopsy is the gold standard for diagnosing celiac disease because it allows doctors to directly examine the small intestine and check for villous atrophy. A CT scan, however, doesn’t diagnose celiac disease but can help rule out other causes of abdominal pain, weight loss, anemia, or inflammation. Your doctor may be looking for complications, structural issues, or conditions that can mimic celiac symptoms. So while the CT isn’t part of routine celiac testing for everyone, it is normal if your doctor wants a more complete picture of what’s going on.
    • DebJ14
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By DebJ14 · Posted

      Say what you will about Peter Osborne, but he gave me back my life.  Back in 2007 he was not promoting grain free, but came to that conclusion a few years later.  While I did OK on gluten free, I really saw the greatest recovery when I went grain free.  I notice a huge difference if I eat a gluten free food that contains any sort of grain. I ache all over, have digestive issues and my rash comes roaring back.  I think it is probably, because grains are sprayed with Glyphosate in the drying process before being shipped.  Thanks, but I will stick to my organic, grain free diet and continue to feel well at 73.  Not missing out on nutrients as I follow a strict supplement plan based on testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.