Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mental Issues from as a Celiac


symphonyofdreams547

Recommended Posts

symphonyofdreams547 Rookie

I'm curious how many of you didn't have any serious physical problems from Gluten, but rather had mental issues(Depression, Anxiety etc)  And how have these things improved since being gluten-free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



manitourose Newbie

Right here! :) Except by the time I was diagnosed I was dealing with many physical issues of varying types.

I've dealt with generalized anxiety disorder from my early 20's, I'm late 30's now.  I went through a severe spell in my late-20's and then again these past 2 years. My panic attacks and anxiety stemmed from nothing and were so difficult. Depression was deeply setting in. I told therapists and doctors I saw I could do all the cognitive behavioral therapy I wanted (I had great success with it in the past) and my anxiety was still unchanged. Often I was asked "what are you anxious about?" or "what is depressing you?"... I had no clue and no answer. Sure there are triggers, but it felt unrooted and that it scared me because I had no idea how to fix  it!!

I went gluten free only Dec. 16th. By early Jan, I am not longer dealing with the constant anxiety and the depression is slowly lifting. A cloud is lifting, the irritability has let up considerably and no longer am I in a constant state of anxiety. I am the old me and it's incredibly strange and exciting to meet "me" again. However, my emotions and behaviors have been affected by the challenges so it's still work like anyone coming through emotional struggles. It's (gluten-free) certainly not a cure all and I know I still am prone to dealing with my anxiety and depression. However, being gluten-free has made a significant difference.

Also, I eat mainly whole foods and really limit any processed foods. For now I have had to back off dairy and corn until I heal more. Just in case you are curious what my diet is.  I was also diagnosed by blood work and biopsy.

symphonyofdreams547 Rookie

Very Interesting, hopefully things keep progressing for you

cristiana Veteran

I had terrible out of the blue anxiety before dx.   My gastro symptoms followed but months later.  I was very low on B12 and iron which I am sure didn't help.   

I have found that occasionally that anxiety comes back.  It is as if I learned that behavior before I was dx'd and something triggers it again, not always gluten.  When I feel it knocking at the door again, which thankfully is not often, I just look at it as a setback.   I get these setbacks when I am worrying about something, like a trip - can't stand flying - or a writing deadline, and when that happens I have found a lot of help through two particular books, At Last a Life by Paul David and The Depression Cure: the Six-Step Programme to beating depression without drugs by Steve Llardi.  I'm not saying medication doesn't have its place but sometimes we can get into negative patterns of behavior which just don't help.  

There are a lot of posts on anxiety in this forum so I think it is a very common problem.

EzyEric Newbie

Yes the mental issues were what pushed me to finally get tested.  Still have not improved much at all since (attempting to be) gluten free since March 2015.

GFinDC Veteran

Here's a link to an old thread about mental symptoms in celiac disease.  It might be interesting to you.  I found it by searching for anger, depression in the forum search tool.  There are other similar subject threads too.

 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.