Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice please


Rosieandjim

Recommended Posts

Rosieandjim Newbie

Can anyone help please, been suffering along time with bloating (looking like im 9 month pregnant) constipation, headaches, aches and pains, feeling sick, hardly no energy, always tierd no matter how much sleep i get list is endless. finally go to the doctors and have a blood test done and told me to play around with foods see how much i could tolerate while i was waiting for test to be done, he said he would ring me soon as results was back never did, had to chace it up myself. Anyway it come back negative but the vitamin d which you get from the sun was low and gone for another blood test. I told them that i was still feeling bad when ever i ate small amount just to be told drink more fluids and eat even more veg. as anyone else felt messed about and feel like doctors have not got a clue? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten-freerunner Newbie

I suggest to start keeping a journal of what you eat.  You will probably find that there is a particular food/s causing your bloating.  Start by cutting out suspected food items until you narrow it down to the culprit/s.  Hopefully this helps.  Good luck! ~ Jim

Rosieandjim Newbie

Thanks you i already done this for the first doctor. But he said there was sensitivity and another thing it could also be, then celiac. when i cut it out my diet i felt amazing! But this other doctor im stuck with was horrible and put me off going back. Il do it again though hopefully next time she will be in a good mood ? 

 

mommida Enthusiast

If it's possible, switch doctors.  You need a doctor who works with you, and that includes listening to what you say.  If you ever get a possibly fatal infection that is time critical, you need a doctor to diagnose you as quickly as possible.  (It happened to me.  The doctor's office was laughing so many people had shown up thinking they had meningitis because news coverage of recent deaths in the area.  Problem was I was showing symptoms and had contact with a family member of one of the deceased.  Headache was so severe I could barely talk and doctor didn't even ask me any questions.  Gave me migraine drugs and an antibiotic.  Hours later I was having seizures and was hospitalized.  It really didn't mater that 20 people before me were just panicked, I really had the illness.)

You should have been tested for Celiac before you made any changes to your diet.  Now that you are noticing a difference it will be harder to eat gluten for the testing.  If you don't have enough damage from gluten- you can't get a Celiac diagnoses.

Rosieandjim Newbie

I hope your better now that must have been scary! I said that and she said it does not make a difference because the cells are already in my body that it was just a myth  and that they will not test me again now its already been done. Think il do a food diary if nothing happens go else where. Thanks  

cyclinglady Grand Master

Exactly what celiac tests were given?  Often doctors order just the TTG IgA for screening (cheap and reliable) and then check for an IgA deficiency (this determines if the TTG IgA test is valid).  If negative and the doctor is still perplexed, he should order the complete celiac panel which includes both the TTG and the DPG (IgA and IgG versions).  

Rosieandjim Newbie

Hi cyclinglady im not sure they did the usual thyroid vitamins ect the celiac came back negative the count come back inconclusive rest was fine apart from that vitamin you get from sun thats all i know about it 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.