Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Vs. Slower Reaction


CMCM

Recommended Posts

CMCM Rising Star

Does the speed of reaction indicate anything, i.e. reacting within an hour or two vs. reacting maybe as mucha s 6 or 7 hours later? Or even the next day?

For example, would a person with a lesser degree of celiac disease react more slowly perhaps? Just wondering...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, it seems everyone reacts differently, so I doubt there will be a general rule. However, I don't think it matters much since the intolerance means being gluten-free for life.

celiac disease (the actual damage) is the result of the intolerance, so it depends on how long the problem went unchecked. If the intolerance is discovered early in life, the damage would be that much less. The degree of damage also depends on how much gluten has been in the diet.

I don't care how I react now that I know I do. The solution is the same.

KaitiUSA Enthusiast

There are no "lesser" degrees of celiac. You have celiac or you don't. Everyone with celiac has to follow the gluten free diet 100%.

The only things that vary with celiac are symptoms and damage.

Some people even with really bad damage get no symptoms so you can't really tell from reactions.

The damage may vary depending how long it has gone undiagnosed.

But everyone gets damage from celiac just some people don't get reactions.

jenvan Collaborator

As Kaiti said...no real degrees to Celiac. However, based on how long someone has had the disease, their levels on intestinal damage can vary. People with celiac disease have a range of symptoms and noticeable "reaction times", so to speak. Some have quick, violent reactions. And others, such as myself, have slower, lingering reactions.

CMCM Rising Star

So you all feel that the degree of severity of the reaction doesn't necessarily have a correlation to the severity of the diease....and likewise, may not indicate how much damage is being done??? I guess I've been thinking about allergies, which I know are an entirely different animal, but with allergies one person can sneeze a bit, another might get a rash, and a third might have a more severe reaction. So I've been wondering if celiac could be similar.....some people get violently ill from just a smidgen of gluten somewhere, and others just get gas or some sort of mild abdominal discomfort. I guess the curious thing is why the reactions vary so much.

Rachel--24 Collaborator

The reactions really don't tell anything (except that you've been glutened). There are people with total destruction of their villi (seen in biopsy) and they have no symptoms whatsoever. There are others who have severe reactions and no damage seen in biopsy.

Lisa Mentor

I'm still trying to figure that out. Gluten free (as best I am able) since late August. I am still healing so it is hard to figure out the healing or glutened.

I also do not know now what my sensitivity is. Time will tell. I was glutened either yesterday or today and I can't figure the source. (As posted on today's post)

Time and patience and a food journal would work. I have not done that but it is wise to do.

Don't know whether I am much of a help but maybe for someone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

What confuses (and worries) me is those of us whose reactions last longer each time. When I first went gluten-free and got 'glutened' the first few times, I would have symtoms for 48 hours. I thought that sucked. Little did I know that the *next* time, it would be 3 days... Then 4 days, then 5. I seem skipped 6 and went straight to 7, and then this last time it was 8! Will it never end?! :(

traveljunkie Rookie

Hi, new to the forum. My 16 year old son and I are gluten sensitive. Haven't been diagnosed celiac, but have sent for Enterolab test. I usually have a burning feeling in my lower abdomen after I've accidentally ingested gluten. I will then have diarrhea for the day and have to take immodium to get back on track. My symptoms usually last a day but can be longer...depends on the amount ingested. My son on the other hand will have diarrhea with no pains and feel irritable. I'm so glad I have found this forum and have learned a lot on how to cope with this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.