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Scoliosis


swittenauer

How many of you diagnosed with celiac also have scoliosis?  

31 members have voted

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swittenauer Enthusiast

My husband has scoliosis too we just found out & I was just curious if more people on here have it also. Some research shows there is a link so I'm wondering how common it really is.


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Guest Viola

Judging from one thread that was going around earlier, it's pretty common among Celiacs.

Thanks for putting this on, it's going to be interesting.

skbird Contributor

I interpreted "having Celiac" as also including autoimmune gluten intolerance. I am non-Celiac gluten intolerant. But for this survey it seems that is close enough.

I just found out I have mild scoliosis earlier this year.

Stephanie

swittenauer Enthusiast

Well, it looks as though my theory could be wrong about the connection. It's hard to tell with such a small sample group. If anyone knows of a connection between the two I would be curious to access any such information.

Rachel--24 Collaborator

Pardon my ignorance but what is Scoliosis? :ph34r:

Is it another autoimmune disease or a skin condition? :unsure:

Guest Viola

It's a skelton issure, the spine is curved and in severe cases can cause damage to internal organs. That is fairly rare though, most of us have mild Scoliosis. In my case it just causes nagging back aches at times, and you want to make sure your physio Therapist or anyone that works on the spine knows about it. I had one try and put it back in place, which caused major hip problems until we got it back to where it was.

  • 3 years later...
BasqueMom Newbie

I am a 66 year old celiac and have scoliosis. I am seeing by the posts that others with celiac also have scoliosis. I have always believed that my scoliosis could be attributed to my celiac disease, and I must not be the only one who believes it. Interesting! No Dr. has ever confirmed the connection but I believe it.


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mushroom Proficient

I have no idea if there is any connection. I am self-diagnosed gluten intolerant 16 mos ago, and at about the same time I discovered that late in life I have developed scoliosis. Interesting. Can't imagine the connection except perhaps for my low Vitamin D.

tarnalberry Community Regular

I don't have scoliosis, but see it a lot when I teach yoga. A good number of cases (I don't know the exact percentage) are functional - that is, they come from habitual posture. You can use PT/chiropractic/yoga therapy to help actually correct it.

Lexi Enthusiast

It was interesting to read this post. I have scoliosis, but never knew if it was related to my Celiac Disease. I have pain in my back everyday because of it. I did physical therapy for several months, and it helped a lot. I am supposed to keep up with it at home, but am not very good about it.

teemaree Apprentice

This is so strange that many have it....I have had it all my life...

I also have a thing called spina bifida oculta, where one of the bottom vertibra didn't form properly

it doesn't effect me in anyway...but it never ceases to amaze me how so many ailments celiacs share..

trents Grand Master

I have scoliosis and kyphosis. Kyphosis runs in my mother's family and I have an uncle on my father's side who was dx with celiac about two years ago.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
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