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Deficiencies


sdlane

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sdlane Rookie

I am recently diagnosed and just got my labs back ahead of my first post-diagnosis appointment in two weeks.  I'm deficient in B12, D, magnesium, zinc, and more....the only thing that's ok is my calcium, which is funny because I had several parathyroids removed when I had my thyroid out five years ago.  Anyhow, my question is this.   I can take all the supplements I want, but if the villi can't absorb the nutrients until they grow back, how will the supplementation help me now?  Do people get injections or something else until the villi grow back and start absorbing again?


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mbr22m Rookie

I take sublingual B12 and D3. That really boosted my levels.  It doesn't have to go through your digestion. You just put it under your tongue.  I buy D3 in liquid drops and B12 lozenges. 

GFinDC Veteran

Sometimes a doctor will give vitamin shots if they think the need is urgent.  Taking sub-lingual vitamins is helpful too.   I didn't get shots, but my doctor had me start on 5000 MG of Vitamin D a few years ago..

Estes Contributor

This is such a great question!  I wonder if juice plus is a waste until my system heals?

cyclinglady Grand Master

Just be sure all your supplements and prescription drugs are gluten free!  Do not rely on your doctor or pharmacist to watch out for you.  It is a hassle to call the drug company, but it's worth the time.  

 

sdlane Rookie

Thanks for the replies!  I changed from Synthroid to Tirocint for my thyroid meds because Synthroid's filler has gluten.  My Cytomel was ok.  Today I found some raspberry flavored sublinguals for the B12 and drops for the D3.  The gal at the health food store said the drops could be put on my skin to be absorbed that way.  Healing commence!  lol

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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