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Question about diagnosing 7.5 year old

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Posted

I just had my doctor test for celiac with my 7.5 year old since they were doing an iron test as well.  They don't have the results of the iron yet but celiac came back like this (sorry my notes are bad): 

- IGA reticulin antibody was negative
- gleatin: IGA and IGG
     - greater than 100 and 30 is considered postive
- ttg IGA was 52.5 and greater than 10 was considered positive

I mentioned this to co-workers as I had told them last week she was getting tested for celiac.  I told them the next step is meeting with a gastroentrologist and then likely an endoscopy.  One co-worker suggested doing an elimination diet instead of putting my daughter under for the endoscope.  What are thoughts on that?  I generally am hesitant to put my child under for something but I feel it is warranted in this situation instead of always wondering does she have it or not.  This is all new to me.

Thanks!

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Judy3 Contributor
Judy3
Posted

I would agree with you that putting a child under for a test would normally not seem right but in this case she probably has Celiac based on the test results you show above so a positive endoscope is the only way to get a confirmed diagnosis.    For the rest of her life without a definite diagnosis it would be difficult for her and for you in social situations and with new doctors.   This way you know.    I was not diagnosed until adulthood and suffered a lot over the years with everyone's 'home diagnosis' and treatments for what ever ailed me.   Had they done the tests as a child (they probably didn't have as good of tests when I was a kid) my life would have been different.     Now that I'm diagnosed and gluten free life is pretty good.       I would have the endoscope done , it's a one time thing and then you know.     Better to attack life with knowledge than ignorance.   :)      Good luck

SLLRunner Enthusiast
SLLRunner
Posted
8 hours ago, holbropa18 said:

I just had my doctor test for celiac with my 7.5 year old since they were doing an iron test as well.  They don't have the results of the iron yet but celiac came back like this (sorry my notes are bad): 

- IGA reticulin antibody was negative
- gleatin: IGA and IGG
     - greater than 100 and 30 is considered postive
- ttg IGA was 52.5 and greater than 10 was considered positive

I mentioned this to co-workers as I had told them last week she was getting tested for celiac.  I told them the next step is meeting with a gastroentrologist and then likely an endoscopy.  One co-worker suggested doing an elimination diet instead of putting my daughter under for the endoscope.  What are thoughts on that?  I generally am hesitant to put my child under for something but I feel it is warranted in this situation instead of always wondering does she have it or not.  This is all new to me.

Thanks!

Welcome!

I'm sure your friends mean well, but the only way to know the extent of intestinal damage is to have an endoscope.  I would talk to your doctor about any concerns you have.  

squirmingitch Veteran
squirmingitch
Posted
9 hours ago, holbropa18 said:

I just had my doctor test for celiac with my 7.5 year old since they were doing an iron test as well.  They don't have the results of the iron yet but celiac came back like this (sorry my notes are bad): 

- IGA reticulin antibody was negative
- gleatin: IGA and IGG
     - greater than 100 and 30 is considered postive
- ttg IGA was 52.5 and greater than 10 was considered positive

I mentioned this to co-workers as I had told them last week she was getting tested for celiac.  I told them the next step is meeting with a gastroentrologist and then likely an endoscopy.  One co-worker suggested doing an elimination diet instead of putting my daughter under for the endoscope.  What are thoughts on that?  I generally am hesitant to put my child under for something but I feel it is warranted in this situation instead of always wondering does she have it or not.  This is all new to me.

Thanks!

I think your instincts are right and the endoscopy is not such a big deal. It's pretty quick really.

Your co-worker I'm sure means well but is not considering how important that official dx is for school, college, medical care & testing. It's very much to your daughters advantage to have that official dx -- it will protect her. Plus, as you said, she won't have to wonder somewhere down the line.

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