Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just don't know

zenjess1980

Recommended Posts

zenjess1980 Contributor
zenjess1980
Posted

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum!  Glad to hear that you are in remission.  Have you been gluten free since your cancer diagnosis?  

 

zenjess1980 Contributor
zenjess1980
Posted
  • Author
5 minutes ago, cyclinglady said:

Welcome to the forum!  Glad to hear that you are in remission.  Have you been gluten free since your cancer diagnosis?  

 

Hello, thanks for the welcome. No i have not been gluten free since the diagnosis. That's when they also did the biopsy for celiac which came back negative. With the bloodwork positive, some of my other symptoms/disorders, and the fact that i get some type of dermatitis, i can't help but to wonder if I'm not at least gluten or wheat sensitive.  

cyclinglady Grand Master
cyclinglady
Posted

You might find this old thread helpful:

I would seriously research the benefits of a gluten free diet.  It certainly can not hurt you provided you eat healthy whole foods and not processed gluten-free junk.  See if symptoms resolve. 

 

zenjess1980 Contributor
zenjess1980
Posted
  • Author
7 minutes ago, cyclinglady said:

You might find this old thread helpful:

I would seriously research the benefits of a gluten free diet.  It certainly can not hurt you provided you eat healthy whole foods and not processed gluten-free junk.  See if symptoms resolve. 

 

Thank you, i did find it interesting and fascinating. 

cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, zenjess1980 said:

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

Make sure every medication and supplement is gluten free!  Dang!  Even your lipstick!  

zenjess1980 Contributor
zenjess1980
Posted
  • Author
3 hours ago, cyclinglady said:

Make sure every medication and supplement is gluten free!  Dang!  Even your lipstick!  

Will do. Thank you. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
On 4/5/2016 at 9:19 PM, zenjess1980 said:

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

Jess.......your list of conditions reads like the Who's Who of Celiac Disease!  I am just floored and disturbed over the response you got from the AMA crowd.  What I do know is this......I have Hashi's also and with the gluten-free diet and thyroid hormone replacement, things have calmed down and my thyroid is much easier to manage. Most of your conditions are all based in inflammation and once you start living strictly gluten free, you may be surprised at how well your body responds. Fibromyalgia, ADHD, TMJD and the anxiety problem are not a diagnosis.  Those are symptoms of a deeper problem and Celiac is one of the biggest offenders in creating them. It may take awhile but I really think you will see big improvements, over time.  I never have anxiety EXCEPT when I am glutened and then it's BAD!

I am glad you are seeing an integrative MD because they are generally better at this than mainstream MD's.  It may be entirely possible that you will be able to ditch many of the meds you are on.  Except the thyroid hormone......but that's just hormone replacement and not really medication.  Be patient but stay very gluten free because you have Celiac Disease and most of what you have was most likely caused by it.  Mainstream docs rarely connect the dots.

Good luck and keep us informed!

zenjess1980 Contributor
zenjess1980
Posted
  • Author
2 hours ago, Gemini said:

Jess.......your list of conditions reads like the Who's Who of Celiac Disease!  I am just floored and disturbed over the response you got from the AMA crowd.  What I do know is this......I have Hashi's also and with the gluten-free diet and thyroid hormone replacement, things have calmed down and my thyroid is much easier to manage. Most of your conditions are all based in inflammation and once you start living strictly gluten free, you may be surprised at how well your body responds. Fibromyalgia, ADHD, TMJD and the anxiety problem are not a diagnosis.  Those are symptoms of a deeper problem and Celiac is one of the biggest offenders in creating them. It may take awhile but I really think you will see big improvements, over time.  I never have anxiety EXCEPT when I am glutened and then it's BAD!

I am glad you are seeing an integrative MD because they are generally better at this than mainstream MD's.  It may be entirely possible that you will be able to ditch many of the meds you are on.  Except the thyroid hormone......but that's just hormone replacement and not really medication.  Be patient but stay very gluten free because you have Celiac Disease and most of what you have was most likely caused by it.  Mainstream docs rarely connect the dots.

Good luck and keep us informed!

Thank you very much for your welcoming and very helpful response. I really appreciate it :) Today is my first day gluten free, and yes, I plan to stay that way! Thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.