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Celiac vs. Gluten Sensitivity vs. Wheat

zenjess1980

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zenjess1980 Contributor
zenjess1980
Posted

How does one know the culprit? I don't seem to be getting anywhere with answers. Celiac pannel positive, biopsy (while eating gluten) negative. I've done both gluten free and eaten gluten, never done just wheat free... have had doctors tell me since the biopsy was negative i am ok. Have even had a doctor tell me celiac is rare, and he wasn't entirely sure what my bloodwork meant but i was fine to keep eating gluten... it's not ok to look in the other direction when it comes to my health. Looking for answers...

Jessica 

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cyclinglady Grand Master
cyclinglady
Posted

Did you know, that when spread out, the small intestine is the about the size of a tennis court?  It is easy for dcotors to miss damaged areas.  Exactly how many biopsies were taken?   

How long were you gluten free?  It can take months to years to recover from celiac disease (one reason is that the  gluten-free diet has a steep learning curve).  

zenjess1980 Contributor
zenjess1980
Posted
  • Author
40 minutes ago, cyclinglady said:

Did you know, that when spread out, the small intestine is the about the size of a tennis court?  It is easy for dcotors to miss damaged areas.  Exactly how many biopsies were taken?   

How long were you gluten free?  It can take months to years to recover from celiac disease (one reason is that the  gluten-free diet has a steep learning curve).  

2 biopsies were taken. I was gluten free for almost a year, then began eating gluten again because no doctor could seem to give me a straight answer, so of course it was easier. I'm seriously beginning to wonder/doubt though. 

cyclinglady Grand Master
cyclinglady
Posted
3 minutes ago, zenjess1980 said:

2 biopsies were taken. I was gluten free for almost a year, then began eating gluten again because no doctor could seem to give me a straight answer, so of course it was easier. I'm seriously beginning to wonder/doubt though. 

Two biopsies were  not enough!  Four to six are recommended and at specific places per the American GI Association.  I am not a doctor, but I would say you probably have celiac disease.  It is obvious that your GI was clueless!  

zenjess1980 Contributor
zenjess1980
Posted
  • Author
1 minute ago, cyclinglady said:

Two biopsies were  not enough!  Four to six are recommended and at specific places per the American GI Association.  I am not a doctor, but I would say you probably have celiac disease.  It is obvious that your GI was clueless!  

Thanks for your imput. I see an integrative medicine doctor tomorrow at 2:30 and am going to talk to him about it as well. 

  • 4 weeks later...
ch88 Collaborator
ch88
Posted

Celiac disease can present with other symptoms (such as brain damage, skin problems, anxiety etc) without causing any obvious digestive problems.  I'm guessing this means that the biopsy would be negative also. 

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