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Skin Issues from Ceilac's

rushingspirit

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rushingspirit Newbie
rushingspirit
Posted

I'm newly diagnosed but have been living with it my whole life. I am 47 I never thought anything about all my stomach issues that go along with this disease. So now, my stomach & a whole lot of other symptoms are clearing up. However, I have this milky white film on alot of my body. It isn't terribly noticeable really except to me. When I am out in the sun I will tan all over, but in a few days all the areas that are marked with this loses the tan. It's itchy, yada yada yada.....Since cutting gluten out of my life by 99% (still working on remembering I have Celiac's) It's only been about 3 weeks since my diagnosis. Anyways, my question is this. I thought I read somewhere that this condition has something to do with being Celiac. It's itching even more & I feel as if it is starting to resolve itself. Is there anything I can do to relieve the symptoms sooner. & does anyone know if that is one of the conditions of Celiac's? Just so you know, I am only consuming gluten if I grab something quick & forget that I can't have gluten. No bread or pasta, but stuff with soy or a derivate of wheat etc.  I am getting WAY more cautious!!! I google 95% of my diet now!! :( It's annoying but worth FEELING AMAZING!!

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captaincrab55 Collaborator
captaincrab55
Posted

You could have DH.       gluten-free is a strict diet that doesn't allow for an oops.      If you have DH also, it may take a year or so on a strict to get total relief.      Did you get your vitamin levels checked??

 

GFinDC Veteran
GFinDC
Posted

Right DH (dermatitis herpetiformis) is a skin reaction associated with celiac disease.  There is a section of the forum dedicated to it where you can find more information.  Some of our itch-est members hang out there.  I think Scratchy is rumored to visit there too.

Welcome to the forum! :)

 

squirmingitch Veteran
squirmingitch
Posted

A milky white film on the skin that itches does not sound like dh however there are many skin conditions associated with celiac disease that are not dh.

A strict gluten free diet is the requirement. No screw ups!

caretothepeople Newbie
caretothepeople
Posted

A skin biopsy is used to confirm a diagnosis of DH so that may be something you want to ask your doctor about getting in addition to asking what other testing you might needs. Other questions to ask about DH (these came from gluten (dot) org)

Questions to ask your doctor:

Should I take medication for this disease?
How long will I need to take this medicine and how will I know when to stop taking it?
What are the side effects of these medicines?
How often do I need to get my blood drawn to monitor this medicine’s effect on my body?
What else can trigger DH?
Should I take nutritional supplements?
Could I have associated food intolerances?
Where can I have a bone-density study?
How can I find out about the diet?
How often should I follow up with the doctor?

Coltsneck24 Rookie
Coltsneck24
Posted

White, milky patches sounds more like a fungus. Please see a dermatologist to get a proper diagnosis. Also, gluten-free only works when it is 100%. 

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Is it gluten?

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