Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations


StephanieL

Recommended Posts

StephanieL Enthusiast

This is a great information piece on Celiac in Kids esp, followup care. 


Sorry, the link won't work. You can google this to bring it up:

 

Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations

 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pschwab Enthusiast

The link won't work for me. :( Anyone else having problems?

StephanieL Enthusiast

Sorry it's not working . If you google the article in the first post you should be able to bring it up.  It's from 3 of the leading Celiac Meds Docs so really worth a look.

 

cyclinglady Grand Master

Me too, I am not a member of Medscape.    Is this the article?  I goggled the topic and filtered using "news".  (Hope it works!)

Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations

 

Here is what I liked.....a gluten sniffing dog for helping kids to remain dietary compliant!   Count me in!  

squirmingitch Veteran

I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.

StephanieL Enthusiast

I didn't have to pay to just bring it up on google though. Probably easier than signing up.  

Gemini Experienced
15 hours ago, cyclinglady said:

Me too, I am not a member of Medscape.    Is this the article?  I goggled the topic and filtered using "news".  (Hope it works!)

Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations

 

Here is what I liked.....a gluten sniffing dog for helping kids to remain dietary compliant!   Count me in!  

There's a gluten sniffing dog?????????????  I WANT ONE!  That way, as a service dog, I could take the pup into a restaurant and not be kicked out. ;) I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
44 minutes ago, Gemini said:

There's a gluten sniffing dog?????????????  I WANT ONE!  That way, as a service dog, I could take the pup into a restaurant and not be kicked out. ;) I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!

Nah.......there are no gluten sniffing dogs....yet!  With 20% of children who are dietary compliant but are not healed (villi) after one year (per the subject article), I think dogs could be a solution.  

 

StephanieL Enthusiast

I know there are dogs for other food related things but I haven't heard of one for gluten yet.  

We'd still be in the weeds though with allergies, celiac and animal allergies :lol:

squirmingitch Veteran

I read about a gluten sniffing dog probably 2 years ago so I Googled it. Apparently there are several now as well as those who say they can train them. Read on my friends:

Open Original Shared Link

Open Original Shared Link

I don't do Facebook but for those of you who do..... look for Elias the gluten sniffing dog

 

Gemini Experienced
4 hours ago, StephanieL said:

I know there are dogs for other food related things but I haven't heard of one for gluten yet.  

We'd still be in the weeds though with allergies, celiac and animal allergies :lol:

As long as they don't have gluten sniffing cats, I am good.  I am allergic to cats but not dogs. And yes.......I have a cat!  Isn't that always the way?  ;)

Gemini Experienced
3 hours ago, squirmingitch said:

I read about a gluten sniffing dog probably 2 years ago so I Googled it. Apparently there are several now as well as those who say they can train them. Read on my friends:

Open Original Shared Link

Open Original Shared Link

I don't do Facebook but for those of you who do..... look for Elias the gluten sniffing dog

 

I have a plan when I retire to finally have another dog.  If he/she could sniff out gluten, what a bonus that would be!  Thank you for the link!

squirmingitch Veteran

You're welcome!:)

  • 1 month later...
GFinDC Veteran

An article on children and healing (or not) after going gluten-free for a year.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...