Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spencer88

Recommended Posts

Spencer88 Apprentice

Hi all! 

When I was first diagnosed with celiac at the beginning of October 2016 my liver numbers were elevated. They were around 63 and 150ish. My question are, has anyone else experienced elevated liver numbers when recently diagnosed with celiac, is that common? What are some things I can do to get those numbers back to normal? My birthday is in late December, I'd like to enjoy a drink or two. How long can I except before I see improvement enough to where I could enjoy a gin and tonic again? 

Thank you all for your support and advice! 

Spencer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

Liver damage is very common in people with celiac.  Plan on no alcohol for a while.  Trust me it's not worth it, your body needs to heal.  Thankfully the liver is the one organ that can repair itself, but it can only do that if you help take care of it.  I wouldn't even think about drinking till your numbers are normal again, and even at that point I'd give it more time.  Your body has been threw war, time to let it heal.  Discuss with your MD taking a milk thistle supplement.  Milk thistle is a natural liver support supplement.  Just make sure anything you take states that it is gluten free.  I personally take Jarrow brand myself.

cristiana Veteran

My liver function tests showed I had elevated gamma globulin levels for about six months prior to diagnosis which worried my doctors.  They came down to normal after I adopted a strict gluten-free diet.  I have never drunk alcohol so it just goes to show that gluten alone can cause odd liver function tests! 

I have a book here, 'Celiac for Dummies', Wiley Publishing, that says that if you have newly diagnosed celiac disease, you have up to about a 40 per-cent likelihood that your liver enzyme levels (specifcially the transaminase levels) will be mildly elevated on a blood test. The authors then go on to say that it does not necesarrily mean that you have significant liver disease, and that the levels typically return to normal after a few months.

GFinDC Veteran

Cell apoptosis can cause elevated liver enzymes.  Cell apoptosis is when cells die in the body.  The dying cells can exude harmful chemicals into the blood stream.   Those chemicals can cause raised liver enzymes.  The liver results should return to normal after being on  the gluten-free diet a while.   For more and better info, search for cell apoptosis in celiac disease.  Here's a link to an article on liver issues and celiac disease.

https://www.celiac.com/articles/21501/1/Celiac-Disease-and-Liver-Disorders/Page1.html

squirmingitch Veteran

I was dx'd with a fatty liver pre-celiac dx. Went gluten free & liver is completely normal.

Scott Adams Grand Master

 I had an increase in my liver enzyme tests that turned out to be due to a cinnamon supplement I was taking… Once I stop taking it my liver was fine. After searching the Internet I discovered cinnamon can cause elevated enzymes in sensitive individuals. 

squirmingitch Veteran
34 minutes ago, admin said:

 I had an increase in my liver enzyme tests that turned out to be due to a cinnamon supplement I was taking… Once I stop taking it my liver was fine. After searching the Internet I discovered cinnamon can cause elevated enzymes in sensitive individuals. 

That's really interesting Scott. Good info.!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Spencer88 Apprentice

Thank you all! Great information here! Just got back from my first GI visit. I am getting more blood work done this Friday to rule out other possibilities and to see whats going on with my liver now. I can say that I had a full abdominal ultrasound, back and front, radiologist reported everything looked normal there. 

My GI wants to run these tests:

-Alpha-1-Antitrypsin blood

-Ana Blood Screen W/Reflex Titer 

-Ceruloplasmin 

-Iron + TIBC Panel 

-Metanephrines Urine Fractionated 

-Vitamin D 1,25 Dihydroxy 

-Vitamin D 25-Hydroxy  

Anyone else have these tests run? Is this normal protocol?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.