Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Someone trying to help


Justine123

Recommended Posts

Justine123 Newbie

I have been Diagnosed with celiacs since May and it has been a roller coaster of a time. My boyfriend who is my best friend is so very supportive and will sometimes only eat gluten free food with me. He tries really hard at restaurants and makes sure that i am as comfortable a I can be! I am so thankful for him being so good with this when I am still in shock and coping because no one in my family has this. But something happened the other night that kind of upset me.

We went out to eat at a nice restaurant and he told the waiter that we were both celiacs so be careful of the cross contamination, it bugged me that he claimed to be celiacs, because I wouldn't wish that on anyone, but I don't know why is bugged me so much that he said that. Does anyone have any experience with that? or have any advice? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

You could ask him about it and see what he says.  Then decide if it makes sense to you.

kareng Grand Master

Some times my hub eats gluten-free, too, so we can share or I can at least taste his.  He probably just wanted to be sure the waiter took it seriously.  Depending on the restaurant, sometimes it is safer if your whole table orders gluten-free - less chance of confusion in a busy kitchen.  If he is drinking beer, he usually just explains that it's so I can have some of each meal.   Why not ask him?  

ERH Newbie

His intentions were probably good, but pretending to be celiac can cause a lot of damage for those of us who really are celiac.  Non-celiacs make exceptions and aren't that cautious about having a total gluten-free meal which creates the impression that it really isn't that important.  The "a little bit won't hurt" impression is very destructive.   Waiters get the impression that people who request special attention for their food are just fussy/aggravating customers who exaggerate their problem or who are following a fad diet.

It's always a good idea to touch base with the Manager when you enter the restaurant because his instructions to the waiter and kitchen will carry weight.  Speak up for yourself -- tell the waiter that you have a medical condition -- celiac -- and that you can get very sick if there is even a small amount of gluten in your food -- then add (with a smile) that your friend can "eat anything."  The message gets across clearly. 

deb-rn Contributor

I was not fully tested, by choice, and don't know if I'm Celiac, nevertheless, I have no intention of eating gluten.  I know I felt better immediately when I stopped eating it!  My husband, out of necessity, went gluten free as well and found out he didn't tolerate it when overindulging at a restaurant some months later!  Gluten is directly linked to 55 diseases!  Google it, it's very interesting.  Is it "good" for you?  Absolutely NOT!  Do some people tolerate it?  YES.  That is not to say it isn't doing damage in the background due to the Zonulin causing Leaky Gut!  Letting molecules through the barrier that weren't supposed to be there sets up all sorts of illness related to antibody production.  I guess I'm not sure why it bothers you that he said he was Celiac?  I just explain that I MUST be gluten free and leave it at that.  If they looked at me oddly, I would add that I have a medical condition, which I do!  I just chose not to do further testing after the first was inconclusive and a diet change made me feel so much better!

You could just state that  WE  are gluten free and not give any other reasons if you feel like he lied.  I'm sort of thinking that is where your guilt is.  Having bread crumbs, etc all over the table isn't going to do  YOU  any good either!  Good for him for stepping up to the plate!

Debbie

Beverage Proficient

My first reaction is that he told them that so that there would be no chance of cross contamination with the preparation of his food along with yours. If you've ever worked in the restaurant biz, dishes for the same table are prepared at the same time, depending what it is, by the same person. Maybe he was just thinking of you, not trying to claim anything for some other reason.

  • 2 weeks later...
mommida Enthusiast

Could it be like a spouse/life partner saying, "We are pregnant."?  As a concept you are a united team.  Less chance of cross-contamination by meaning gluten is not allowed at this table.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.