Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test While gluten-free

laurelfla

Recommended Posts

laurelfla Enthusiast
laurelfla
Posted

hi, guys --

i'm sure this has been covered before but i've been super busy lately and haven't had time to search on it. my dad went to get tested for celiac disease because both his daughters have been diagnosed with it. his doc told him to go gluten-free and scheduled the biopsy for a week or two later, i can't remember. while on the diet, Dad notes his bowel movements are different (i can talk about this stuff with the best of 'em now! ;) ) but claims it is probably due to not getting as much fiber in his diet. previously he had been having them 3 times a day or so.

the biopsy results are that some of his villi are rounded (i.e. *some* damage). the doc says it is inconclusive, and schedules bloodwork for the next week as well as bacteria tests (he refused to do the Celiac panel initially bc he said the tests weren't that accurate). my dad goes back for the bloodwork after i think 3 weeks on the gluten-free diet. the nurse has not given him the official numbers yet, but she told him they looked normal.

am i just crazy? granted i don't know all there is to know about this (but y'all do and that's why i'm asking you :D ), but it seems to me the dr. should have started with bloodwork BEFORE telling him to go on the diet, to get accurate numbers, then based on that perhaps and the response to the diet, ordering a biopsy. so now the biopsy and the bloodwork are going to be inconclusive, i imagine, and my dad is not really going to know what's up. he hasn't ever really had any symptoms, btw, other than insane back/disc problems.

what do you guys think? thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
hi, guys --

i'm sure this has been covered before but i've been super busy lately and haven't had time to search on it. my dad went to get tested for celiac disease because both his daughters have been diagnosed with it. his doc told him to go gluten-free and scheduled the biopsy for a week or two later, i can't remember. while on the diet, Dad notes his bowel movements are different (i can talk about this stuff with the best of 'em now! ;) ) but claims it is probably due to not getting as much fiber in his diet. previously he had been having them 3 times a day or so.

the biopsy results are that some of his villi are rounded (i.e. *some* damage). the doc says it is inconclusive, and schedules bloodwork for the next week as well as bacteria tests (he refused to do the Celiac panel initially bc he said the tests weren't that accurate). my dad goes back for the bloodwork after i think 3 weeks on the gluten-free diet. the nurse has not given him the official numbers yet, but she told him they looked normal.

am i just crazy? granted i don't know all there is to know about this (but y'all do and that's why i'm asking you :D ), but it seems to me the dr. should have started with bloodwork BEFORE telling him to go on the diet, to get accurate numbers, then based on that perhaps and the response to the diet, ordering a biopsy. so now the biopsy and the bloodwork are going to be inconclusive, i imagine, and my dad is not really going to know what's up. he hasn't ever really had any symptoms, btw, other than insane back/disc problems.

what do you guys think? thanks!!

You're right about that. The doctors shouldn't be telling him to start the diet and then come back for tests. :blink: His results are going to be inconclusive or negative.

I dont understand this about doctors??? Why do they always tell people to go gluten-free BEFORE the tests....its like they WANT people to have negative results when it comes to celiac disease. I just dont get it. You would think that the doctors would know this *one* very important factor about testing for Celiac...HELLO. It totally baffles my mind.

Felidae Enthusiast
Felidae
Posted

I'm no expert but if his villi are rounded, meaning some damage, isn't that good evidence? His doctor doesn't seem very informed.

Rusla Enthusiast
Rusla
Posted

I find most doctors are not well informed, I truly wonder why they went to school for 7 years, or did they. Most of us are more informed than they are and this includes specialists.

I talked with another Celiac today who lost her best friend to the disease because they never diagnosed her until she was on her death bed. The blood tests were always negative and they told her because she was overweight that she couldn't be celiac.

I don't know how they can say that your fathers test results inconclusive.I think we all need to see veterinarians.

aikiducky Apprentice
aikiducky
Posted

Rounded vili doesn't sound inconclusive to me??? :blink:

Pauliina

jerseyangel Proficient
jerseyangel
Posted

I thought the same thing. Its almost as if that Dr. is trying not to find Celiac!

laurelfla Enthusiast
laurelfla
Posted
  • Author

well, the way my mom put it (and bear in mind this is highly scientific talk), "most of the villi were standing up, waving proud and tall, but every now and then there would be some rounded ones". apparently the damage was not enough to call the biopsy conclusive, but to my mind with the family history there's really no reason to be checking out bacteria. :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
well, the way my mom put it (and bear in mind this is highly scientific talk), "most of the villi were standing up, waving proud and tall, but every now and then there would be some rounded ones".

Your Mom has a great way of explaining things. I like that kind of "scientific" talk! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748
    Kundrey
    Newest Member
    Kundrey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.