Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Misleading Iron test results and Hidden Anemia

Aspirant

Recommended Posts

Aspirant Apprentice
Aspirant
Posted

Hello, I have received Cyrex test results and I have gluten allergies according to them. Tested June 2015.

I have become Gluten free from Dec 2016. My Iron studies are always normal. Here are they.

as on 11/28/2016

Iron Bind Cap TIBC     352       ug/dL

UIBC                              253         ug/dL

Iron, Serum                   89           ug/dL

Iron Saturation.            26         %

Ferritin                          331            ng/mL

FSH                                    0.2         mIU/ml

LH                                        .2         mIU/ml

Testosterone                    150                       ng/dL

I have low body temprature  I tested when I wake up in the morning. 97.4 Fahrenheit 

When I go to any of my doctor and discuss about Giveing me Iron IV they disagree saying that everything is normal.

Celiac panel done by GI is negative. I dont remember whether I was on gluten diet or off of it.

I have already suffered from H Pylori Gastritis for long and then also my Iron studies were good. Ferritin was 55 when Gastritis was active. Normal HB of 14.

I am suffereing from Depression, Hypothyroidism, Obesity, Hairloss, Fatigue, Low stomach acid, Autoimmune disorder, Osteipenia etc. 

How to convince a doctor to give me Iron IV.? I have difficulty absorbing iron from food i Eat.

Which specialty doctor I should show who can deal with wheat allergy and Iron IV.

Any help or suggestions are welcome. I am suffering. Please help.

Thanks,

Aspirant.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I am no doctor, but your iron and HB seem great!  Why do you want an iron IV?  Did you know that too much iron can cause serious illness?   No medical doctor is going to give you iron if your lab results  are normal.  

I was iron deficient.  My ferritin was a two.  It is a 55 now and I feel great.  

I have low body temps too.  That is part of being hypothyroid.  No need to worry.  

You can try an allergist to test you for a wheat allergy or find a new GI and re-take the celiac antibodies blood test, BUT you would have to go back in gluten for 8 to 12 weeks.  Those Cyrex tests really are not recognized by the medical community.  That is just the way it is.  

Aspirant Apprentice
Aspirant
Posted
  • Author
55 minutes ago, cyclinglady said:

I am no doctor, but your iron and HB is great!  Why do you want an iron IV?  Did you know that too much iron can cause serious illness?   No medical doctor is going to give you iron.  

I was iron deficient.  My ferritin was a two.  It is a 55 now and I feel great.  

I have low body temps too.  That is part of being hypothyroid.  No need to worry.  

You can try an allergist to test you for a wheat allergy or find a new GI and re-take the celiac antibodies blood test, BUT you would have to go back in gluten for 8 to 12 weeks.  Those Cyrex tests really are not recognized by the medical community.  That is just the way it is.  

Thanks !!! I want to boost my hormones specially Testosterone, LH ,FSH. I have received the Iron IV in the past but overseas.

ravenwoodglass Mentor
ravenwoodglass
Posted
17 minutes ago, Aspirant said:

Thanks !!! I want to boost my hormones specially Testosterone, LH ,FSH. I have received the Iron IV in the past but overseas.

You may want to ask your doctor for a referral to an endocrinologist. They can help you with hormone issues.

knitty kitty Grand Master
knitty kitty
Posted

When we switch to a gluten free diet, we may not be getting enough B vitamins.  Many gluten free products are not enriched nor fortified like the wheat based products we used to eat.  The B vitamins are needed every day.  They help give the body energy and are building blocks of many necessary molecules that help our bodies heal and function normally, including making testosterone.  

Open Original Shared Link

If we aren't digesting or absorbing well,  we can become deficient quickly because the B vitamins are water soluble and may be lost easily. You might want to ask your doctor or nutritionist about adding a B Complex vitamin to your diet.  

 

 

ironictruth Proficient
ironictruth
Posted

What were the reference ranges on the Iron binding capacity and the Ferritin? 

Are you already taking iron? 

Aspirant Apprentice
Aspirant
Posted
  • Author
On 1/17/2017 at 5:49 AM, ironictruth said:

What were the reference ranges on the Iron binding capacity and the Ferritin? 

Are you already taking iron? 

Yes I was already taking iron during the tests.

Here are the ranges with the results.

Iron Bind Cap TIBC     352       ug/dL                              250 - 450

UIBC                              253         ug/dL                       111 - 343

Iron, Serum                   89           ug/dL                       38  - 169

Iron Saturation.            26         %                                 15 - 55

Ferritin                          331            ng/mL                      30-400

FSH                                    0.2         mIU/ml                      1.7   - 8.6

LH                                        .2         mIU/ml                      1.5   - 12.4

Testosterone                    150                       ng/dL         348 - 1197

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aspirant Apprentice
Aspirant
Posted
  • Author

Now My situation is how to Satisfy my Hematologist to conduct the bone marrow biopsy / aspiration to find out anemia. Because blood test look normal and I am still feeling fatigued, low etc.

ravenwoodglass Mentor
ravenwoodglass
Posted
56 minutes ago, Aspirant said:

Now My situation is how to Satisfy my Hematologist to conduct the bone marrow biopsy / aspiration to find out anemia. Because blood test look normal and I am still feeling fatigued, low etc.

Anemia is not the only reason for fatigue. If you have only been gluten free for a month or so then your body is still healing.  Your test resuls as far as iron goes look great. Have you had your B12 and other vitamin levels checked? That would be a good idea.  Keep in mind that for many rest is a good thing when your body is healing and trying to rebuild itself so a bit of fatigue is your bodies way of getting you to rest. Do check with your doctor about a referral to a doctor that deals with hormones as those levels are low but they also may normalize on their own gluten free. I do hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.