Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety

5143Betty

Recommended Posts

5143Betty Rookie
5143Betty
Posted

Hi, new here and this is my first post so please be kind. I'm wondering if anyone has suffered anxiety and panic attacks? I have struggled since childhood and recently decided to go gluten free to see if that helped. It was an amazing difference almost right away! Within days my severe anxiety had reduced drastically, and I feel like a whole new person. I'm hopeful to get my life back.  I had no idea that I had to be eating gluten to get tested, and now I feel so good after 3 months that I don't want to go back.  If you've had a reduction in anxiety or panic I'd love to hear about it. I really feel like I could've lived a better life had I known this sooner. When I tell people, they usually nod and smile, like I've bought into a fad diet. Thanks in advance for your info.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Welcome to the forum Betty! :)

You are correct, you have to eat gluten for 12 weeks prior to the blood tests, and 2 weeks prior to the endoscopy.   Many people go on the gluten-free diet without testing.  Some doctors will tell people to try out the gluten-free diet, and then get tested! :( Eeeks!

There is also a gene test which doesn't prove you have celiac disease, but does show if you have the genes that could allow it to develop.  The gene tests can be done anytime.  But about 30% of people in the USA have one of the  genes, while only about 1% have celiac disease.

You can find quite a few threads discussing anxiety on the forum.  Also, anger and depression and insomnia.  Try doing a search using the magnifer tool at top right of the page to find them.

It's great that you are feeling better!  My anxiety and depression and anger all faded away after going gluten-free.  It's a  great change! :)

Nikkiann Apprentice
Nikkiann
Posted

Hello! I'm glad you're feeling better. It says 12 weeks, but it can be very little. A few crackers a day or something like that. It's worth it, though, to know for sure and see other things too. Good luck!

Jmg Mentor
Jmg
Posted

Welcome Betty :)

On 3/27/2017 at 6:14 PM, 5143Betty said:

I'm wondering if anyone has suffered anxiety and panic attacks?

Yes! I could pretty much have written your post myself. 

I know exactly how you feel and how little the thought of going back on gluten appeals now you're feeling so much better. You have a tough decision to take. There's a forum faq stickied above and I tried to collect some answers and useful links awhile ago in this thread: 

Hopefully they are of some help :)

If its any consolation, many of the people here did exactly the same as you in removing gluten, realising it had a big effect then finding out that they should've been tested beforehand. I did it and managed 8 weeks of a challenge before testing negative for coeliac. I tell you this because you should know that even if you test negative it could be worth removing gluten from your diet as there are some that test negative but still react to gluten.

Whether you choose to test or not, you've found a great site here and there's lots of good information and support available. Everyone here understands just how lifechanging your discover is to you and how bittersweet the realisation can be too. 

Best of luck to you!

 

 

5143Betty Rookie
5143Betty
Posted
  • Author

Thank you all so much.  It's so great to know there are people out there that have shared my experience. I was feeling quite alone in this. I could never believe that I just had anxiety, and that was that. There has to be a reason for my body to act this way. I feel validated,and hopeful and that's a huge thing for me. I'm going to see my doctor next week, and see what she thinks. I'm hopeful that with all my symptoms (anxiety, skin rashes for months, sensitivity to light|sound, headaches, vertigo, temper) she won't shrug me off. My mom has Crohn's disease so maybe a connection. Thanks again for your advice and your ear, it truly helps.

AnonyousCda Contributor
AnonyousCda
Posted

Any good Doctor/nurse will notice the symptoms to gluten allergies.  Weak knees, weak ankles.   Check out if  you need to take more vitamin D. And any other vitamins/supplements.

kareng Grand Master
kareng
Posted
8 hours ago, AnonyousCda said:

Any good Doctor/nurse will notice the symptoms to gluten allergies.  Weak knees, weak ankles.   Check out if  you need to take more vitamin D. And any other vitamins/supplements.

Just for your information - Celiac disease is not a "gluten allergy".  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted
16 hours ago, 5143Betty said:

 I'm going to see my doctor next week, and see what she thinks. I'm hopeful that with all my symptoms (anxiety, skin rashes for months, sensitivity to light|sound, headaches, vertigo, temper) she won't shrug me off. My mom has Crohn's disease so maybe a connection. 

One suggestion. Write a short note detailing your symptoms, familial history and your reaction to the gluten free diet. It's so easy when speaking to the dr to either forget to mention something or waffle too much so they lose interest. I found some short bullet points helped keep me focused and ensured I didn't miss anything important.

you can also give some thought to if your prepared for doing a gluten challenge in order to get a diagnosis. There's no point asking for a blood test unless your ingesting gluten for 8-12 weeks beforehand. 

Best of luck Betty!

Lakme Rookie
Lakme
Posted
On 3/27/2017 at 10:14 AM, 5143Betty said:

Hi, new here and this is my first post so please be kind. I'm wondering if anyone has suffered anxiety and panic attacks? I have struggled since childhood and recently decided to go gluten free to see if that helped. It was an amazing difference almost right away! Within days my severe anxiety had reduced drastically, and I feel like a whole new person. I'm hopeful to get my life back.  I had no idea that I had to be eating gluten to get tested, and now I feel so good after 3 months that I don't want to go back.  If you've had a reduction in anxiety or panic I'd love to hear about it. I really feel like I could've lived a better life had I known this sooner. When I tell people, they usually nod and smile, like I've bought into a fad diet. Thanks in advance for your info.

I've been suffering from anxiety and depression since I was a kid. It wasn't until my symptoms showed up last year that my anxiety really went through the roof. I think a lot of people can relate to you in terms of anxiety, and this seems to be aggravated by the number of symptoms that a celiac can experience while going through the process of trying to figure out what is wrong and working with doctors to achieve a diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,874
    • Most Online (within 30 mins)
      7,748
    Kelly Bates
    Newest Member
    Kelly Bates
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • terrymouse
      Probably celiac but also confused

      By terrymouse · Posted

      I have an endoscopy booked for mid-September to test for Celiac. My gp seems convinced it is celiac and I should eliminate gluten right away, but the gastroenterologist I was referred to says if I'm totally gluten-free then they won't be able to detect celiac from the endoscopy, and I should load up on gluten 2 weeks before the test. So I guess I shouldn't eliminate gluten then? Or stop and start again closer to the appointment date. But I'm also on the wait list in case they can get me in sooner, because I'm losing weight. I don't want to have to go back and do it over again if I can help it. They also were unsure if there isn't something else wrong with my stomach, so that's a possibility. I don't have the details but from what I understood my blood tests results were positive but on the low end. So I'm getting mixed up here, do I go gluten-free or not? Would 2.5 months of being gluten-free make any noticable difference? 
    • knitty kitty
      Refractory Celiac disease - what to do

      By knitty kitty · Posted

      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive even if everything looked healthy on endoscope? I had it done at a big hospital in the state, so I would think they'd have the kind of equipment where they'd be able to see it well. I even have pictures in my report and they don't seem to have the damage that others have seen.
    • trents
      Virus, celiac disease or both?

      By trents · Posted

      That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid, osteoporois, etc. - non GI symptoms - but their docs recognized those problems as often connected to celiac disease and had them checked for celiac disease, both blood antibody testing and biopsy, and found damage. A couple of years ago the Mayo Clinic did a large study involving over 300 people. They started with those officially diagnosed with celiac disease and also tested their first degree relatives. They found that almost 50% of  the first degree relatives tested positive for celiac disease and many or most were totally caught by surprise because they were largely asymptomatic. Their diagnosis was confirmed by biopsy. I really don't have anything more to say. You have some decisions to make.
×
×
  • Create New...