Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hormonal changes after going gluten-free


pavlovcat

Recommended Posts

pavlovcat Apprentice

I've been gluten free for 2 months now.  My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results).  Since going gluten free my hormones seem to have changed.  My acne is suddenly back after being gone for years, my nails split and peel (something they did my whole life until I got pregnant, and then they were strong until now), my breasts are suddenly sprouting these odd tiny white hairs that pull out with no resistance, my PMS symptoms now include a delightful 4 or 5 days of loose bm's, and I get irritable and emotional around ovulation time.  

Has anyone else experienced something similar?  I would've hoped any hormonal changes would've made me feel and look BETTER, not worse, but so far that doesn't appear to be the case.  Is this typical while the body is healing? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I am so sorry this is happening to you. 

I don't know about your situation, but I did start a new series of Meds that made my skin oily (used to be dry), changed my hair texture for the worse and a few other weird hormonal like changes. And I'm in menopause (been since 2008). So I do know the female body can do weird stuff.

hope someone here can help you out, there's lot of great folks here!

icelandgirl Proficient

Hi Pavlov and welcome!

Hormonal changes like that are not fun at all!  Have you had your thyroid fully checked recently?  The thyroid is the master hormone of your body, if it's not working optimally, things will suffer.  A full thyroid blood panel would include TSH, Free T4, Free T3, TPOAB and TgAb.  The last 2 are antibody tests.  Most people seem to feel best with the TSH around 1 and the free #'s in 50-75% of the range.

I have Hashimotos in addition to celiac and having my thyroid go out of whack has more than once wreaked havoc on my body.

Good luck to you...I hope you get some answers!

pavlovcat Apprentice

Thanks for the responses.  My GI doc did run lots of blood tests but I don't believe I've ever had a full thyroid panel done.  I know celiac can cause fertility issues, so it makes sense that recovering from celiac would affect my hormones, but I've never read about anyone else dealing with this type of thing.  I don't seem to have other thyroid related symptoms, but if it continues I will definitely be consulting my OBGYN and my regular doc.

  • 2 weeks later...
frieze Community Regular

have you increased soy?  that and other estrogenic foods may be an issue

pavlovcat Apprentice

Not that I'm aware, frieze.  I was eating some crackers with tamari in them, but those were upsetting my system so I stopped after a few days.

Victoria1234 Experienced
On 5/3/2017 at 0:03 PM, pavlovcat said:

I've been gluten free for 2 months now.  My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results).  Since going gluten free my hormones seem to have changed.  My acne is suddenly back after being gone for years, my nails split and peel (something they did my whole life until I got pregnant, and then they were strong until now), my breasts are suddenly sprouting these odd tiny white hairs that pull out with no resistance, my PMS symptoms now include a delightful 4 or 5 days of loose bm's, and I get irritable and emotional around ovulation time.  

Has anyone else experienced something similar?  I would've hoped any hormonal changes would've made me feel and look BETTER, not worse, but so far that doesn't appear to be the case.  Is this typical while the body is healing? 

Sorry this is happening to you! Once, after I saw a newborn trying to get their moms attention because they were hungry, I started lactating! I had not been nursing for 2 years..... I had milk for 2-3 years after that occurrence. Obgyn said it was normal. The body sometimes does weird things, but it's always good to clear with your docs! Let us know what they say.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
EllieD262 Newbie
(edited)

Hi Pavlovcat 

I know you posted this a while ago but just wondering how you are now? I got diagnosed as celiac recently and I’m also experiencing big hormonal changes. I’ve had ultrasounds which show no abnormalities, and I can’t help thinking that it must be linked to my diagnosis as the timing is too coincidental. 

Like you, I was expecting to feel better after diagnosis, not worse!!

Edited by EllieD262
Correction

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,043
    • Most Online (within 30 mins)
      7,748

    Churro
    Newest Member
    Churro
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.