Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hormonal changes after going gluten-free


pavlovcat

Recommended Posts

pavlovcat Apprentice

I've been gluten free for 2 months now.  My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results).  Since going gluten free my hormones seem to have changed.  My acne is suddenly back after being gone for years, my nails split and peel (something they did my whole life until I got pregnant, and then they were strong until now), my breasts are suddenly sprouting these odd tiny white hairs that pull out with no resistance, my PMS symptoms now include a delightful 4 or 5 days of loose bm's, and I get irritable and emotional around ovulation time.  

Has anyone else experienced something similar?  I would've hoped any hormonal changes would've made me feel and look BETTER, not worse, but so far that doesn't appear to be the case.  Is this typical while the body is healing? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I am so sorry this is happening to you. 

I don't know about your situation, but I did start a new series of Meds that made my skin oily (used to be dry), changed my hair texture for the worse and a few other weird hormonal like changes. And I'm in menopause (been since 2008). So I do know the female body can do weird stuff.

hope someone here can help you out, there's lot of great folks here!

icelandgirl Proficient

Hi Pavlov and welcome!

Hormonal changes like that are not fun at all!  Have you had your thyroid fully checked recently?  The thyroid is the master hormone of your body, if it's not working optimally, things will suffer.  A full thyroid blood panel would include TSH, Free T4, Free T3, TPOAB and TgAb.  The last 2 are antibody tests.  Most people seem to feel best with the TSH around 1 and the free #'s in 50-75% of the range.

I have Hashimotos in addition to celiac and having my thyroid go out of whack has more than once wreaked havoc on my body.

Good luck to you...I hope you get some answers!

pavlovcat Apprentice

Thanks for the responses.  My GI doc did run lots of blood tests but I don't believe I've ever had a full thyroid panel done.  I know celiac can cause fertility issues, so it makes sense that recovering from celiac would affect my hormones, but I've never read about anyone else dealing with this type of thing.  I don't seem to have other thyroid related symptoms, but if it continues I will definitely be consulting my OBGYN and my regular doc.

  • 2 weeks later...
frieze Community Regular

have you increased soy?  that and other estrogenic foods may be an issue

pavlovcat Apprentice

Not that I'm aware, frieze.  I was eating some crackers with tamari in them, but those were upsetting my system so I stopped after a few days.

Victoria1234 Experienced
On 5/3/2017 at 0:03 PM, pavlovcat said:

I've been gluten free for 2 months now.  My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results).  Since going gluten free my hormones seem to have changed.  My acne is suddenly back after being gone for years, my nails split and peel (something they did my whole life until I got pregnant, and then they were strong until now), my breasts are suddenly sprouting these odd tiny white hairs that pull out with no resistance, my PMS symptoms now include a delightful 4 or 5 days of loose bm's, and I get irritable and emotional around ovulation time.  

Has anyone else experienced something similar?  I would've hoped any hormonal changes would've made me feel and look BETTER, not worse, but so far that doesn't appear to be the case.  Is this typical while the body is healing? 

Sorry this is happening to you! Once, after I saw a newborn trying to get their moms attention because they were hungry, I started lactating! I had not been nursing for 2 years..... I had milk for 2-3 years after that occurrence. Obgyn said it was normal. The body sometimes does weird things, but it's always good to clear with your docs! Let us know what they say.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
EllieD262 Newbie
(edited)

Hi Pavlovcat 

I know you posted this a while ago but just wondering how you are now? I got diagnosed as celiac recently and I’m also experiencing big hormonal changes. I’ve had ultrasounds which show no abnormalities, and I can’t help thinking that it must be linked to my diagnosis as the timing is too coincidental. 

Like you, I was expecting to feel better after diagnosis, not worse!!

Edited by EllieD262
Correction

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,399
    • Most Online (within 30 mins)
      7,748

    Hoyt Marquis
    Newest Member
    Hoyt Marquis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.