Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally was diagnosed.

sddave

Recommended Posts

sddave Enthusiast
sddave
Posted

So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the club you never wanted or thought you would join!  ?

What you doctor might have not told you is that it takes months to years to heal depending on the amount of damage you have sustained not only to your GI tract, but other areas of the body (celiac disease is systemic).   Browse through the Newbie 101 thread under the "coping" section for valuable tips that could expedite healing.  

Hang in there!  It does get better!  

Ennis-TX Grand Master
Ennis-TX
Posted

https://www.celiac.com/forums/topic/91878-newbie-info-101/

We suggest a whole foods only diet starting off, first few months to boost healing, Drop dairy and oats if you can also for a month or so. You will keep having gut issues etc. for 2-6 weeks til your body clears of gluten, Literally it takes this long for your antibodies to come down from exposure even a crumb can spike it back up causing the damage all over again.

There are plenty of gluten-free options available, heck I just saw glutino pretzels at the store. here is a list I composed awhile back with some gluten free options.

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

First Few months try eating the processed foods in moderation or not at all. Will help boost your healing.

Fbmb Rising Star
Fbmb
Posted
17 hours ago, sddave said:

So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

Mine still gurgles. Last night during dinner it was going wild and I asked my husband (not a celiac) if his does that and he said "yeah all the time."

you mentioned stress, and I feel you there. When I'm stressed my belly is unhappy. Gurgling tummy isn't always because of celiac. Plenty of people have gurgling, indegestion, etc and they don't have celiac. Sometimes those issues aren't all celiac's fault. That's what I've learned. I have a nervous belly and I know that's just me to a certain extent. Eating gluten would make it worse but at 7 months I'm still gurgly and gassy sometimes. My stomach rarely hurts though, and if it does, it's because I'm all wrapped around the axle with my nerves. That'll never go away.

  • 1 month later...
at1992 Apprentice
at1992
Posted
On 6/12/2017 at 1:36 PM, sddave said:

So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

 

Though I haven't been diagnosed Celiac (though I'm highly suspicious this is the case), I too have had CRAZY intestinal sounds when I have gluten in my diet. I'm currently doing a 5 week gluten challenge so I can get blood tests, and just like clockwork my stomach and intestines have gone nuts. Making all sorts of loud sounds. It's unfortunate because I'm in medical school and take about 2-3 exams every week and it is extremely distracting and embarrassing to always be making sounds. Stay with it, though! When I cut out gluten for a few months all the gurgling eventually went away. It just takes a long time. 

Victoria1234 Experienced
Victoria1234
Posted
On 8/9/2017 at 1:46 PM, at1992 said:

Though I haven't been diagnosed Celiac (though I'm highly suspicious this is the case), I too have had CRAZY intestinal sounds when I have gluten in my diet. I'm currently doing a 5 week gluten challenge so I can get blood tests, and just like clockwork my stomach and intestines have gone nuts. Making all sorts of loud sounds. It's unfortunate because I'm in medical school and take about 2-3 exams every week and it is extremely distracting and embarrassing to always be making sounds. Stay with it, though! When I cut out gluten for a few months all the gurgling eventually went away. It just takes a long time. 

My stomach makes weird noises when I go overboard on ice cream (more than a quarter cup). I always get separate ice cream because I go thru mine so slowly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DanteZaffar
      - DanteZaffar replied to MelissaClinPsyD's topic in Coping with Celiac Disease
      5

      Refractory Coeliac Disease research to reduce anxiety

      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
    2. trents
      - trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific...
    3. HeloIP
      - HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afrai...
    4. Joel K
      - Joel K posted a topic in Meet Up Room
      0

      Caribbean Sailing with Celiac

      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only...
    5. Joel K
      - Joel K posted a topic in Board/Forum Technical Help
      0

      Forum Rules

      Greetings! I'd like to post a request for interest in an event I'd like to set up. But before I do, I'm wondering what the rules for posting in the forum are. Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,493
    • Most Online (within 30 mins)
      7,748
    Miela
    Newest Member
    Miela
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DanteZaffar
      Refractory Coeliac Disease research to reduce anxiety

      By DanteZaffar · Posted

      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
    • trents
      EGD with flatten mucosa

      By trents · Posted

      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific to celiac disease as a follow-up so, in case he/she does, don't start a gluten-free diet until that blood draw is done.
    • HeloIP
      EGD with flatten mucosa

      By HeloIP · Posted

      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
    • Joel K
      Caribbean Sailing with Celiac

      By Joel K · Posted

      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year.  Most likely in the US and/or British Virgin Islands, though other islands may also be considered.  Doesn't have to be the same people and doesn't have to be only experienced sailors.  But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time.  This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free.  Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well.  But the main concern and commonality among all hands is celiac disease.  We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself.  Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance.  So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance.  I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts.  I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104.  My USCG Master license for Oceans was finally retired in 2022 and no longer active.  I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
    • Joel K
      Forum Rules

      By Joel K · Posted

      Greetings! I'd like to post a request for interest in an event I'd like to set up.  But before I do, I'm wondering what the rules for posting in the forum are.  Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
×
×
  • Create New...