Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different gluten foods give different reactions?

BarryC

By BarryC
in Related Issues & Disorders

Recommended Posts

BarryC Collaborator
BarryC
Posted

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
52 minutes ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

I am trying to remember - you are just sort of gluten free?  And don't have celiac?

i think joint pain could be from dehydration.  Beer isn't the best  at rehydrating after sweating.

 

 

BarryC Collaborator
BarryC
Posted
  • Author

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

cyclinglady Grand Master
cyclinglady
Posted

I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle.  No offense meant, but why are you here?  Either trial the gluten-free diet (100%) or find another diet  to help you lose weight or whatever.   

 

ravenwoodglass Mentor
ravenwoodglass
Posted
6 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

As a celiac my reactions to gluten are pretty consistant. The exception to that is when a gluten ingredient is combined with something else I am intolerant to for example soy. Perhaps you have more than one intolerance?

kareng Grand Master
kareng
Posted
8 hours ago, BarryC said:

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

My point about dehydration causing joint pain, still holds.  I guess you could see if you drank beer when you haven't been hot and sweaty and see if it effects you ? Beer usually has very little gluten, so I would look at  the circumstances or other ingredients or the alcohol itself.

But, when you come on asking questions like this, I am not sure what you are expecting for an answer.   Most of us don't play around with eating different gluten foods.

Victoria1234 Experienced
Victoria1234
Posted
10 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

It's kind of mean to come to a celiac board and flaunt drinking regular beer. Just sayin.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BarryC Collaborator
BarryC
Posted
  • Author

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

squirmingitch Veteran
squirmingitch
Posted

You can buy gluten free beers online & have them delivered right to your door. This is one example:

Open Original Shared Link

Or you could ask your local liquor store to order gluten free beer for you. 

Victoria1234 Experienced
Victoria1234
Posted
6 hours ago, BarryC said:

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

So if I can't find gluten-free lasagna noodles in my city, it would be ok to talk about having a long hard day at work and coming home to a fresh baked, gluten filled lasagna  on a CELIAC BoARD? Several servings, in fact! Yes, I do think it's approaching a sin. Your sensitivity level is excruciatingly low.

BarryC Collaborator
BarryC
Posted
  • Author

No Victoria1234 this is NOT just a celiac board. This is a 'celiac and gluten free diet support board'.  I am attempting to get some support. If you are not interested in giving me any, please keep your comments to yourself.  You dont know me or anything about me, and if you think I am a sinner, than obviously you have more issues than celiac disease.

ravenwoodglass Mentor
ravenwoodglass
Posted

Barry I am sorry some folks are giving you such a hard time. You are correct that this is not a group for only those who are celiac. It is a board for people to learn the ins and outs of being gluten free with celiac or gluten intolerance and their freinds and family  That said I came back to this post because after giving it some thought I remembered I do have different reactions to barley malt than I do to wheat gluten. How did I find this out? By drinking a few sips of gluten beers after mowing my lawn a few times.  After I was finally diagnosed.  Was that a bit foolish of me, sure it was but the days were hot and the beer was there.  Long story short, barley malt does not upset my stomach quite as badly as wheat gluten but it does something that a bit of wheat CC doesn't, it gives me terrible tooth and jaw pain.  So yes it is possible that the symptoms you got from those couple of beers are different from what the symptoms might be if you ate a piece of cake. 

It took a while to get used to the taste but I find Redbridge to be toleralble and have tried a couple of the Green's beers. I didn't care for the dark one but the pale one was drinkable though expensive. The ciders like Woodchuck are also nice so perhaps give those a try.  The ciders may be a bit easier to find.

Ennis-TX Grand Master
Ennis-TX
Posted

I was originally not going to respond to this as I assumed it was a troll post. But yes, I recall last time I drank a ale back in like 2010-2012, I got sick withing 10mins and vomiting which normally would take 30mins-2hours for the vomiting to start with solid food.  All my symptoms which are normally spaced out over time with exposure were complied into a much shorter window of starting. No clue how long it lasted I was out cold within the hour in the car til the next morning. Back then did not know it was celiac, but I knew I could not handle beers for some odd reason and stuck ti liquors and mixers.

Also I react differently to inhaled flour, I just get the brain fog, nerve issues, without the major digestive upset.

One other thought between CC and eating straight gluten there is a difference in how severe my nerve issues are and how long my constipation last. Straight gluten will make me loose motor control and collapse on the floor while CC will just cause me to loose feeling in my hands and feet and some some issues walking and handling things, Both result in vomiting etc but the severity is less in CC vs eating straight gluten where I vomit so hard I would have blood in it.

squirmingitch Veteran
squirmingitch
Posted

I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different.

artistsl Enthusiast
artistsl
Posted

I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night.

If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess. 

Whitepaw Enthusiast
Whitepaw
Posted
On 6/20/2017 at 10:47 PM, BarryC said:

 Still waiting for a gluten free beer that is drinkable.

Is Bards available in your area?  I found Bards and Redbridge to be the best, but had to quit both as they  gave me sinus problems. 

I've recently been reading Dr. Gundry's new book, The Plant Paradox. It has helped me with a  new dairy intolerance.   Although a cardiac surgeon, he has shifted focus to the impact diet has on health.  He discusses lectins. Turns out most of the foods I was eating were high in lectins. By choosing lower lectin foods, my recovery has improved.  Joint pain can be a symptom of  a high lectin diet.

Since different foods have different lectin levels, according to this theory, different foods may result in different symptoms.

Scroll down 1/3 of the page to SIDEBAR:LECTINS 101:

Open Original Shared Link

2lonedogs Newbie
2lonedogs
Posted

celiac disease typically screws up your whole autoimmune system. in my case, it took several years to identify all of the intolerances.

there are different responses to different substances... you may have one or several of them depending on the substance. Mine include nausea, abdominal pain, lethargy, brain fog, cramping, muscle tightness (resulting in joint pain), muscle spasm, creepy crawly skin, skin dryness leading to lesions/ psoriasis, diarrhea, constipation, sudden weight gain/loss of 2-3 lbs per day.  

the frustrating part is/was that the more I stayed away from gluten and other offenders, the better/stronger i felt but then i would discover another substance that had been hiding but now was brought to the forefront since the maybe-more-offending irritant was now gone. this went on for a couple years.  i now have a huge list of offenders and very few acceptable foods, but I keep reading and experimenting hoping for a more varied and healthier diet.  

i refer to myself as a human test subject because essentially you have to try something in order to gauge its effect.

Beverage Proficient
Beverage
Posted

BarryC ... I have celiac's and didn't get my knickers in a twist!!! If I did, I'd probably trip and fall flat on my face and have other problems to worry about.  Don't worry about it, we're here to help.  

If I get accidentally glutened, I do not get the intestional issues, but I do get some good body and bone aches. If I can't figure out what's causing it, and keep getting glutened, the brain fog sets in, I so very hate that worse than anything, send me to the retirement home early!

I also miss a good beer, my regular grocery stopped carrying Coor's Peak, which wasn't great but wasn't bad. I have to go a little further to find good gluten-free beers, just try one of each until you find the one that you like. I used to love Heiferweisen beer...wheat beer of all things, but can't have that anymore, and haven't found a good substitute, oh well.  Onward and upward.

BarryC Collaborator
BarryC
Posted
  • Author

Having this is so frustrating, my knickers are twisted up in knots. It is comforting to know that I am not the only one with multiple symptoms, most of which can be traced to gluten/casein. I have also spent a small fortune on digestive/weight loss supplements. Whats working now to improve my weight and digestion are being gluten/casein free of course, and cutting way back on red meat and alcohol. These two are also the worst for IBS, and really mess with the gluten compromised digestive system of an older person. I have found a store that carries Glutenberg beer, which is not bad but way too expensive. Guess I will stick to Coors Light for now.  The hard stuff really messes up my stomach. Happy summer everybody!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      Is this celiac?

      By Theresa2407 · Posted

      Usually when I digest gluten or wheat I have a 4 hour window before reacting.  If it is immediate it may be an intollerence to another food.  Dairy, Frutose, and bacteria (SIBO) will react with many of the celiac disease symtoms.Has your Doctor ran a  Fructose test which is measuring your Fruit Sugar?  A Hydrogen Beath Test which checks your intestinal bacteria and Dairy?After my biopsy and blood work, these (3) tests were also ran, along with allergy tests, which allery test was sent out of State.  It was a mouth swab. How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works!  This is what I have found will work for you.                                                                                            First 6 weeks should be:                                                                                                                                 lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer)                                                   fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup)                                                                                                                                      fresh fruit (3 servings; include strawberries, blackberries and blueberries daily)  Makes good shakes with Almond milk.                                                                                                                                        A hand full of almonds daily (pecans and walnuts can be substituted)                                                        brown rice, lentils, Citrucel daily (or the equivalent) Good source of fiber. I use Calm because my body doesn’t absorb Magnesium and I only need to take once in evening.                                                    No dairy of any kind (milk, cheese, yogurt, No breads, No past,  No oats, No pizza, No gluten-free beer, No snacks like cake, biscuits, pies, donuts.                                                                                                Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us.                                                                                              10% of people with gluten-free will be intolerant to dairy                                                                                  10% can not tolerate oats                                                                                                                     After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food.                                                                                                  Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable.                                                                                                                                              You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea.                                                                                                        Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels.                                                                                  Don't take supplements while healing as your body is not accepting them and they will flush through your body.                                                                                                                                              Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed.                                                                                                                                        How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works! This is what I have found will work for you. First 6 weeks should be: lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer) fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup) fresh fruit (3 servings; include strawberries, blackberries and blueberries daily) a hand full of almonds daily (pecans and walnuts can be substituted) brown rice lentils Citrucel daily (or the equivalent) Good source of fiber. No dairy of any kind (milk, cheese, yogurt) No breads No pasta No oats No pizza No gluten-free beer No snacks like cake, biscuits, pies, donuts. Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us. 10% of people with gluten-free will be intolerant to dairy 10% can not tolerate oats After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food. Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable. You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea. Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels. Don't take supplements while healing as your body is not accepting them and they will flush through your body. Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed. Remember to have a tTg IgA blood test repeated at 6 months then every year after, with another scope done in 3 years. Only way to know if you are healed. I don’t have all the answers; we are learning everyday new ways of doing things, but this is a start! Remember to have a tTg IgA EMA blood test repeated at 6 months then every year after 
    • Wheatwacked
      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal".  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning by biopsy with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63 and my wife 10 years dead.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) in the small intestine in Celiac Disease, and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  'Why' is poorly understood.  In fact, it wasn't even known that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So, as part of your recovery you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were symptoms. Our western diet has many deficiencies built into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks so the symptoms of Gastrointestinal BeriBeri can come and go quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, an indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog symptoms by deficient choline, iodine, thiamine B1. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study  
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.