Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten contamination and other meds

Jennancognito

Recommended Posts

Jennancognito Newbie
Jennancognito
Posted

I recently had an attack - something I ate was apparently contaminated with gluten. I went through a period of difficulty eating, pain, and weight loss over a month. But that's not the issue, that's celiac for you. I'm bipolar, and it seems my medications (like my nutrients) didn't absorb as they should. So I went through of month of deep depression, where I could barely move and barely take care of myself. My doctors have no solutions. I'm scared - I can't take a month out of my life because a mistake was made. I am so so so careful.

I've searched online but I just come up with warnings on gluten in pills. My situation is just miserable. What would you do if you were reliant on a medication to live?

I'm not even asking what to do; there's obviously no solution. Just if anyone has this problem, and how they get by without being afraid of everything they eat.

I guess I'm just curious who else worries about this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted

I worry a lot. I'm on latuda for bipolar. As far as I know I'm doing well on not getting glutened so I haven't had your exact issue. But I worry I will. I'm currently on 20mg and taking at night with food for absorption. I worked my way down on it as it was making me deadened. Maybe if you switched meds that weren't so sensitive to celiac it would be better? Latuda costs a fortune but I'm using a coupon from their website so it's $15 a month. 

Ennis-TX Grand Master
Ennis-TX
Posted

I had to change over to taking a bunch of B-vitamins, magnesium, and CBD oils for my issues with bipolar and depression. Most of my bipolar issues leveled out once off gluten, still have a few swings every now and then.   But my issue is I am also highly allergic to corn......corn starch is a common binder in medicines so I have to be quite careful. In some cases the starch is processed in a way to remove the proteins that trigger my reaction. I can normally figure out by biting into the pills and chewing and checking for blood blisters in my mouth. Same with other forms of it in other foods etc. Seems quite hit and miss depending on how it is processed and sourced.    

My biggest fear and it has been talked about here before, but when you go to a hospital even if on your record you have celiac they will bring you food with gluten. -_- THIS scares the crap out of me that if I am out of it and eat the stuff. I ended up ordering custom red medical dog tags with my allergens, blood type, AI diseases, and emergency contact info. I also informed my family to bring me a stock of gluten-free protein bars and meal shakes if I get stuck in a hospital.

Funny thing is my depression hits hard every evening, and I end up just eating cups and cups of protein shake, ice cream and indulge in that comfort. >.> feel much better afterwards but sometimes I eat too much lol.

TexasJen Collaborator
TexasJen
Posted

You don't mention which medications you are on but several medications come in other forms besides pills:  There are sublingual strips, pills and liquids, injectables, and transdermal skin patches. All of these have their pluses and minuses but they would get around the issue of malabsorption due to a celiac flare.  You might talk to your GP/psychiatrist at your next appointment about these options?

kareng Grand Master
kareng
Posted

I saw a study ( not really the right word) and posted it before.  Someone looked at about 800 meds and only 11 had any verifiable gluten.  I think gluten is a very low risk in most perscriptiom medications.  

cyclinglady Grand Master
cyclinglady
Posted

Here is the most current gluten free drug list for 2017.  It is a work in progress, though.  There are fewer drugs on this current list than on his previous list, but I expect  the pharmacist is still working in it.  Check this list, if your medication is not on it, ask your own pharmacist to research for you.  Once he/she has come up with a few acceptable medications, call the manufacturers yourself.  As long as there are no gluten ingredients, you should be fine.  Then ask your doctor to prescribe them.  

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.