Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test your children?


Deades

Recommended Posts

Deades Contributor

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. 

 

Welcome to the club you never wanted to be a part of. Check out our Newbie 101 pinned to the top of the Coping section.

cyclinglady Grand Master

Better to catch a celiac disease diagnosis early.  Experts do recommend the testing of all first-degree relatives even if asymptomatic and while on a full gluten-containing diet.   I had my kid screened and requested a full panel since I test oddly.  She was also screened for anemia.  That was about three years ago.  We are considering running the panel again, but Not until she is back at school and on a daily diet of gluten (our home is gluten free and she is gluten light in the summer).  

Celiac disease can cause long term issues.  You have osteoporosis besides anemia, right?  I bet you might have some other issues that can resolve on a gluten free diet that you just chocked up to getting old.  Wouldn't be nice to prevent such damage in your kids?  Wish I had known about celiac disease a long time ago!  

Fbmb Rising Star
On 6/24/2017 at 5:44 PM, Deades said:

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?

I tested positive in November and immediately had my toddler tested, though he didn't have symptoms (aside from being really little). He has it.

Pegleg84 Collaborator

Yes, definitely! The sooner they find out if they have it, the sooner they can heal up and, as cyclinglady said, avoid a lot of potential long term health issues. Also be aware that, with bloodtests, false negatives are more common than false positives. I'd recommend they get a full bloodwork panel done to check for vitamin deficiencies, which could in itself be a sign of malabsorption problems. I had iron anemia as a teenager, which looking back was probably my first Celiac symptom. My mom and my sister both have Celiac as well.

You could also suggest that your parents or any siblings get tested as well.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,118
    • Most Online (within 30 mins)
      7,748

    Shiwaji
    Newest Member
    Shiwaji
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.