Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy only?

Hatbox121

Recommended Posts

Hatbox121 Apprentice
Hatbox121
Posted

I had a repeat colonoscopy last week. I'm 36. My first one was due to rectal bleeding that wouldn't stop. They found a fissure, but also a bunch of polyps so I get to be an overachiever and have colonoscopies early. Anyway when I woke up the DR said he found more polyps and sent those off. No surprise. He also found a few other odd things but nothing major. Then he said he found flat mucosa in my ileum and so he biopsied it to check for celiac. That was that. Wondering if that is enough for a diagnosis? If it comes back positive anyway. I think I'm doing all this backwards and upside down. Would the ileum show celiac? Everything I've read is biopsies via EGD. I had an EGD last year and they found ulcers. He said it looked "all chewed up" but never mentioned any celiac. I have a lot of GI symptoms, but not clearly celiac. Also have a history of bowel rupture(small intestines) as a kid. I'm lost. Should I ask for the blood work? Or just wait and see? Is the ileum even a place for biopsy in regard to celiac? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tessa25 Rising Star
tessa25
Posted

I don't know anything about the ileum. But it's so easy to get a blood test for the full celiac panel, so why not do that now? The full celiac panel includes:

TTG IGA

TTG IGG

DGP IGA

DGP IGG

IGA

EMA

 

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

Thanks! I'll give my GI a call Monday. I already need to ask about something else anyway. Thinking my gut may be why my RBC count is always low. 

cyclinglady Grand Master
cyclinglady
Posted

Yes, you can have celiac disease at the end of the small intestine within reach of the scope from a colonoscopy.  I would ask for a celiac blood panel definitely because villi damage get can occur from several things other than celiac disease.  

 

 

Victoria1234 Experienced
Victoria1234
Posted

I'd want to read further about your chewed up looking insides. Can you ask for the notes? Any biopsies taken?

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

It's ulcers. Well "excavated lesions. H. Pylori negative according to biopsy. Can't recall exact point off top of my head, will have to look at patient portal.

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

My current list- of GI stuff anyway 

Sigmoid diverticulosis 

Benign neoplasm of ascending colon    
Benign neoplasm of descending colon    
Benign neoplasm of sigmoid colon    
Other hemorrhoids    
Gastric ulcer, unsp as acute or chronic, w/o hemor or perf    
Diarrhea, intermittent    
Ehlers-Danlos syndrome    
GERD    
Lower abdominal pain    
Nausea with vomiting, unspecified    
Periumbilical Abdominal Pain    
Personal History of Colonic Adenoma    

Weight Loss

 

Btw ulcers were in Antrum biopsies taken for h.pylori(which was neg). It says "a few" on my notes. All chewed up were his words last I saw him. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,851
    • Most Online (within 30 mins)
      7,748
    Nano1181
    Newest Member
    Nano1181
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.