Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First meeting with GI/Consult for endoscopy and colonoscopy

Jctb

Recommended Posts

Jctb Explorer
Jctb
Posted

I expected it to take longer to get an appointment, but I now have my first meeting with the GI Dr. next week, then I'll be booking my appointment for procedure. I am the WORST with medical stuff. My heart races just entering a medical building, so knowing I'll be having these procedures has really set me off. I know I won't be 'on the ball' for the meeting...what should I be sure to ask him? I really don't know much about all of this, but I'm terrified. IVs and bloodwork even make me ridiculously nervous. Any advice would be great...thanks so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

You might want to get back on gluten (I think you went off it this week?). The procedure could take place within a week of your GI consult.  You should be on a gluten diet for at least two weeks -- not one week as your GP suggested (for biopsies only).  

Consider bringing a notebook and/ or a friend.  When you are sick, it is hard to think clearly.  I always visit my doctor with a list of things to ask.  I pay dearly for my medical care and I want to get my money's worth out of a visit!  

 

Jctb Explorer
Jctb
Posted
  • Author

Thanks! Yes, I haven't had any gluten since last Thursday. I was hoping the appts would be once my kids were back in school (3 busy kids ages 5, 7, 10)....won't be fun feeling sick with them home :(

I'm definitely not going alone, I know I'll be all shakey, my medical anxiety has gotten worse in the last year.

cyclinglady Grand Master
cyclinglady
Posted

Try calling the office.  Ask the nurse how fast endoscopies are typically booked after an initial consult.  It could be days, weeks or months.  That will help you decide if you want to get back on gluten now or later.  But seriously, all the literature says 2 to 4 weeks -- not one.  

BabyBelladonna Newbie
BabyBelladonna
Posted

Good luck ill say a prayer. I try to zone out breath in and out slow. Ive had many procedures. Ice pack on wrist slows circulation. Think of flowers or the wind close your eyes and relax. Practice at home.  

Jctb Explorer
Jctb
Posted
  • Author

Thanks so much. I'm not feeling well today, so the idea of making myself feel worse is terrible. I'm going to ask when I go on Tuesday. I'll request to book it a couple of weeks out. Or maybe if I feel better tomorrow I'll start then.

I'm wondering if they'll give me something to calm me...last time I went to the hospital my heart started racing, was 150! Assuming that wouldn't be good to have happen. It spiked everytime a Dr. or nurse would even walk by. 

squirmingitch Veteran
squirmingitch
Posted

You have "white coat syndrome". It's a real thing & lots of people experience it. I'm so sorry. Let them know how stressed out you get.  It would help if you made your written list and sat down with whoever is going to accompany you & discussed it a day or two before the appointment & let them make notes too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jctb Explorer
Jctb
Posted
  • Author
3 hours ago, squirmingitch said:

You have "white coat syndrome". It's a real thing & lots of people experience it. I'm so sorry. Let them know how stressed out you get.  It would help if you made your written list and sat down with whoever is going to accompany you & discussed it a day or two before the appointment & let them make notes too.

Thanks. I most definitely do. I'm actually more afraid of the IV than anything, is that not weird? I'm going to tell the Dr. for sure, although I'll likely be in tears and shaky, so he'll no doubt know something is up.

I think it's also scary, that although I want answers, not knowing what they will find is quite unsettling...if that makes sense. 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted
10 minutes ago, Jctb said:

Thanks. I most definitely do. I'm actually more afraid of the IV than anything, is that not weird? I'm going to tell the Dr. for sure, although I'll likely be in tears and shaky, so he'll no doubt know something is up.

I think it's also scary, that although I want answers, not knowing what they will find is quite unsettling...if that makes sense. 

Surprisingly once you are on gluten you may oddly desire the IV. I got so dehydrated going back on gluten for the gluten challenge I wanted the procedure for the IV despite drowning myself in water my body was dehydrated.

Yes as cycling lady said eat that gluten for test. I am certain it feels even more so challenging   to do with little ones. Ultimately they are the reason you are doing this ;)

Lastly can  you find a teen sitter to help you out to get you through the convalescing period.  Just a thought.

There really is no good time for a gluten challenge as you guessed, but a necessary evil.

Best Wishes 

Hellodee2 Explorer
Hellodee2
Posted

My DR gave me pictures of my biopsy. First time that ever happened to me. Try not to worry too much. You'll be out for the biopsy and you won't feel anything. Except the dreaded IV of course. I think colonoscopies are far worse. Good luck and take deep calming breaths ☺

Jctb Explorer
Jctb
Posted
  • Author
2 hours ago, Hellodee2 said:

My DR gave me pictures of my biopsy. First time that ever happened to me. Try not to worry too much. You'll be out for the biopsy and you won't feel anything. Except the dreaded IV of course. I think colonoscopies are far worse. Good luck and take deep calming breaths ☺\\

I'm having both, haha. The same day though. Glad to know it's not bad. I know several people who said colonoscopies aren't bad, so it's good to know that the biopsy isn't as bad even. Although, who am I kidding, I'll still be a mess!

squirmingitch Veteran
squirmingitch
Posted

The worst part about the colonoscopy is the prep. :ph34r:

Jctb Explorer
Jctb
Posted
  • Author

Just thought I would update. Met the Dr. today. He was very nice and understanding of my medical anxiety. He had said it was best to be eating gluten for 6 weeks, but that 2 weeks should be ok. I go for my tests Sept 15, so I started eating it today. I am going to have a bit more sedation than he does on a daily basis, I think because I'm so nervous, but with that come an anesthesiologist, so I think I'm ok with that. He also gave me a prescription for Ativan, so hopefully that will help.

I'll be so glad when this is all done :) Started by eating some crackers, but what I really want is a chocolate croissant. Too bad I'm also off of all dairy!! 

squirmingitch Veteran
squirmingitch
Posted

Hang in there!

My hubs has major anxiety about things like colonoscopies & last year when he had his, the anesthesiologist gave him some "extra" prior to getting knocked out. It helped him a TON. 

Jctb Explorer
Jctb
Posted
  • Author
 

Hang in there!

My hubs has major anxiety about things like colonoscopies & last year when he had his, the anesthesiologist gave him some "extra" prior to getting knocked out. It helped him a TON. 

Thanks :) for me it will be the build up/arriving and having the iV put in. I was shaking in the waiting room today. Hopefully the Ativan will help with that a bit.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,118
    • Most Online (within 30 mins)
      7,748
    Shiwaji
    Newest Member
    Shiwaji
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.