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Does It Get Better?


StrongerToday

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key Contributor

Ev,

Good for you!!! Guess I should stop pouting and go cook! LOL! IT does save money not eating out.

Monica


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StrongerToday Enthusiast

It's funny - I was never one to cook either... but... a girls gotta do what a girls gotta do!! Do you have any good cookbooks? I search my library for them and try to make at least one new thing every week or two. A lot of these dishes I'm sure no one could tell they were GFDF either!

jenvan Collaborator

Lisa-

I agree with Tiffany, if you have DH, you have Celiac...and the benefits are just as valuable to you as to the rest of us--and just as crucial. You may not have some of the worse symptoms yet, but it is only a matter ot time before the damage catches up with you...I do believe that. I'm glad I was able to encourage you a bit. Please let us know when you do revisit the subject--many of us care about you and the decision you make!

frustratedneicey Apprentice

I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness. As everyone knows, this is a grieving process, and good coping skills will go a long way. I only go once every two weeks, so it is not so bad. I am a divorced mother of 3, with a boyfriend and his child, and I am also ill with what they are coming closer to diagnosing as MS. I go through alot of emotional and physical turmoil to get to my appointments, but,you will find time, believe me. It's worth it!!!

Idahogirl Apprentice

Thank you for all of the encouragement! I have been diagnosed with celiac, I was just saying that if I don't take my dapsone, I would be miserable on the outside, so even if I wanted to cheat or quit, it wouldn't be worth it.

I have a great therapist-Jesus! He gets me through a lot.

Lisa

jenvan Collaborator

Amen to Jesus Lisa :) Your prayer for the new year could be perserverance. Maybe the verse from James 1 can become your verse for 06..."Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." Merry Christmas!

key Contributor

Jen,

I try and claim that promise too. Many times when I have reached the end of my rope, I have literally begged GOd to help me and He hasn't failed me yet, but I have been at some pretty low points, so if someone needs a therapist or medicine, then I think they should. Sometimes when I get real low, I believe it is because I am not taking care of myself. I have three small children and homeschool. My daily exercise routine keeps me happy!

monica


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jenvan Collaborator

Monica-

Sounds like you have a full house and a full plate! Glad to hear He hasn't failed you yet...me neither :) I totally agree on not taking care of oneself--when I haven't taken time--I get run down, burned out and moody quickly! (My dh can vouch for that!) Merry Christmas!

christianne Newbie

I would like to add my thoughts on effexor as well. I had tried, I think< just about every pill out there. I didn't want to rely on Xanax b/c it is so addictive. Effexor has been a life saver for me. I function in life without the panic attacks and my moods are more even. If you are having anxiety, don't feel weird about taking medication for it. The difference you will feel in your quality of life will be so much better. Effexor has been great for me, unfortunately, though, there is no generic for it and it can be expensive - even with insurance. Good luck!

darlindeb25 Collaborator

What does steak, cheese, and/or tuna have to do with Celiac disease or gluten intolerance? I'm new to this forum and just recently finding out about Celiac and possibly tying it to my ailments. Are these foods related somehow?

I wanted to add my thoughts to this. I dont eat any beef anymore, it's too hard on my stomach--beef is one of the toughest foods to digest. Cheese can be a problem for anyone with a problem with dairy--thank God I never had that intolerance. Tuna can be bad for the celiac who cant tolerate soy--there are a few brands that do not use soy for their vegetable broth in the tuna--I buy Bumble Bee brand tuna in the foil packets--no soy.

As for the panic, it does get better, if you are meaning true panic attacks. Panic attacks are caused by a chemical imbalance and once you get the gluten out of your system and the vitamins and minerals start working again, usually the chemical imbalance gets better too. My panic is almost gone--rarely I will still have a panic attack, but I think it is more an enviromental problem then chemical. Keep at it, things do get better. Deb

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    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
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