Celiac or Not??

[MaryIsa]

Hello, I am very new to all of this so please bear with me. After about a year of GI issues and random testing, I was given an Upper GI and told my stomach was irritated and to go gluten-free then be re-tested. On my retest, the results said my stomach had healed and looked good, yet said they did not see celiac evidence. I was extremely confused by this. To me, if my stomach healed from being gluten-free, then gluten was my problem. Anybody else have any idea on this strange result? 

[cyclinglady]

Yeah, your GI seems like he does not know anything about celiac disease.  Run, don't walk, to another GI for a consult.  If celiac disease was suspected, a simple blood test could have been ordered prior to the endoscopy.    Even the endoscopy without the blood test  and before recommending that you go gluten free, the blood panel should have been ordered that day.  

You should get all copies of your lab tests and medical records to share with your new GI and possible attorney.  You should always keep all your medical records.  You are the customer and it is you health.

At this point, since you have been gluten free, it might be difficult to get a firm diagnosis because all celiac tests require you to be on a gluten diet.  Maybe some information is missing here.  Another reason to get these medical records.  

I wish you well.  

[MaryIsa]

Thank you so much, I really appreciate the advice!! I have an app in Dec with a different doctor so hopefully it will give me some clear answers! 

[Victoria1234]

Did you have any problems before going gluten-free? Did they resolve when you went gluten-free? 

[MaryIsa]

I was having lots of abdominal pain randomly and suffered from terrible migraines at least twice a week. Since going gluten-free, my migraines are much better. Stomach issues still occur once in a while. My biggest problem is that when I eat an actual meal, I have a BM and then am immediately starving again. This problem is stil there, but I'm happy to at least be rid of the migraines!