Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened myself :(((

lilo

By lilo
in Coping with Celiac Disease

Recommended Posts

lilo Enthusiast
lilo
Posted

I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened

im just exteremely sad

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted

Starch is gluten? 

Ive been teaching all day and way too tired to make sense of this article.... Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted
1 hour ago, lilo said:

I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened

im just exteremely sad right now

Motivate me for tomorrow guys :((())

 

If it was wheat starch it would have to be listed on the ingredient list.  Chances are you will be okay. What brand was it?

kareng Grand Master
kareng
Posted

Most starch is corn or potato,, If it is wheat starch it will be labelled to state "wheat" somewhere in the ngredients. 

Ennis-TX Grand Master
Ennis-TX
Posted
3 hours ago, lilo said:

I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened

im just exteremely sad right now

Motivate me for tomorrow guys :((())

 

Well if you want to play it safe, Spicely Organic has gluten free spices, Big Axe Spice has some nice "everything" blends. I have tried two others that are supposed to be safe but found everything they made so salty I could not eat it.

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

I have problems with corn so I have to be aware of that when shopping for spices and gluten-free baking products as Raven pointed out.

I use Badia which states certified gluten-free

As for encouragement drink lots of water and rest. A nice soak in tub sometimes is soothing. I hope it passes soon. If you find out it is gluten-free after all ask about corn in product, on the line, or facility .

May your symptoms be minimal and pass fast 

best wishes

edit: it was Karen not Raven who mentioned corn  starch

my bad entirely 

lilo Enthusiast
lilo
Posted
  • Author

I asked for their two products yesterday,onion and garlic.Onion powder's package doesnt have starch or wheat on ingredient list but garlic powder has corn starch . I dont have any intolerance to corn by the way.

They told me they add starch to two of their products so they are not gluten free. I dont understand why they would put on corn starch on list if it contains wheat starch.I sent another mail to them.

 I had nausea last night and this morning but im not sure if it is because of powder or something else.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
6 hours ago, lilo said:

I asked for their two products yesterday,onion and garlic.Onion powder's package doesnt have starch or wheat on ingredient list but garlic powder has corn starch . I dont have any intolerance to corn by the way.

They told me they add starch to two of their products so they are not gluten free. I dont understand why they would put on corn starch on list if it contains wheat starch.I sent another mail to them.

 I had nausea last night and this morning but im not sure if it is because of powder or something else.

 

Either the person answering the phone or email is an  idiot or the company is failing to follow even the basic labeling laws.  Even without the Gluten labeling laws in the US, Canada, etc- there are laws that they can't label something as x but use y instead.  

 

I am betting 

lilo Enthusiast
lilo
Posted
  • Author

They answered today, they told me that it had cornstarch . I guess its a cross contamination issue ? Or the starch is labeled as corn gluten (which is not the same thing )

cyclinglady Grand Master
cyclinglady
Posted

Where are you buying this product?  Your previous posting indicated that you are not in the USA.  Labeling laws can be different depending on where you live.  

In any case, as a newly diagnosed celiac or NCGI, you should avoid foods processed foods until you feel better.  Use fresh onions for now.  

Recovery from celiac disease takes time.  You can have good days and bad days.  I hope that your good days soon outpace the bad!  

lilo Enthusiast
lilo
Posted
  • Author
19 minutes ago, cyclinglady said:

Where are you buying this product?  Your previous posting indicated that you are not in the USA.  Labeling laws can be different depending on where you live.  

In any case, as a newly diagnosed celiac or NCGI, you should avoid foods processed foods until you feel better.  Use fresh onions for now.  

Recovery from celiac disease takes time.  You can have good days and bad days.  I hope that your good days soon outpace the bad!  

Thank you :) By the way im a very sensitive NCGI patient and it was the only processed food i used :( 

tspiggy Apprentice
tspiggy
Posted

Could possibly be a cross-reaction to the corn starch, but if you're not sensitive to corn it shouldn't be an issue.  Your nausea may be from something else entirely, and it could be somatic...you're expecting a reaction and your body is kindly obliging.  We tend to blame every little blip on celiac, which is natural, until we learn over time what is and isn't a gluten reaction.

In the meantime, drink plenty of water and get some rest.  If you experience brain fog like I do, try a little extra vitamin B-12.

Victoria1234 Experienced
Victoria1234
Posted
On 10/24/2017 at 9:43 AM, lilo said:

Thank you :) By the way im a very sensitive NCGI patient and it was the only processed food i used :( 

Did you end up reacting?

lilo Enthusiast
lilo
Posted
  • Author
11 minutes ago, Victoria1234 said:

Did you end up reacting?

No luckily i didn't :) I had nausea probably caused by eating more than I used to eat the day before. And the company sent me another email saying that it contains CORN GLUTEN ,not wheat gluten. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,112
    • Most Online (within 30 mins)
      7,748
    Donald Carr
    Newest Member
    Donald Carr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.