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Celiac tests negative , PBC joint pain

ElenaM

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ElenaM Rookie
ElenaM
Posted

Hello everyone,

So my story.

Suspected celiac from some time now.Symptoms:

Abdominal pain right upper and lower abdomen

Extreme bloating like pregnant

Hair loss

iron deficient but normal hemoglobin

Joint pain etc

Have been first to rheumatologist.

Did a cheap (bad idea)panel blood test with all antibodies.Another doctor said these sometime are cheap and give false positives.

AMA antibody came positive.Was scared went to do liver tests all were normal.Another doctor said it was probably an error because I can.t have PBC(primary billiaey chirossis.)

So back to gastro.

Did celiac test Translutaminase IGa Igg. Were negative.I did eat gluten that time but there were maybe 2 weeks out of six when I disn.t eat.but a week before I did the test I did eat gluten.Anyway I did these some years ago and were also negative.But at a different lab some years ago it showed IGa or Igg deficiency I don.t remember.Now I did only total IGa and IGm and were normal.The thing is in my country Some labs are just bad and give false results and I have to repeat endlessly all the blood tests.

I am tired of feeling bad.I have sometimes such a severe pain like i am about to give birth.

I am scared it might be my gallblader but Actually all blood tests for that disear are normal.

And funny thing after I eliminate some gas the pain mostly goes away.so it might be the classic IBS like doctors say when they don.t know what you have.

All my life I had iron deficiency.Calcium deficiency.Vitamin d3 deficiency.

Extreme fatigue despite sleeping 13 hours.

And lots of other symptoms.

I am tired of going to endless doctors.

I might try the gluten free chalenge and forget about doint blood tests because I can.t take the pain anymore.

Can gallbladder be inflamed from celiac and show some positive antibody for PBC but still not really be PBC,?

Did anyone had similar issues? 

Doctors will not do biopsy for celiac if they see the blood tests are negative so no chance for biopsy.

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!  

I sounds like you may not have had the complete celiac blood test panel which includes the TTG, EMA,  and the newer DGP (both IGA and IGG versions in case you have an IGA deficiency).  Learn more about testing:

Open Original Shared Link

If all else fails,  you can trial the gluten free diet for six months.  That should bring you relief if gluten is the problem.  

Your gallbladder can be checked with an ultrasound or HIDA scan.  

I wish you well.  

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