Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation


selectivefocus

Recommended Posts

selectivefocus Enthusiast

My 9 year old daughter suffers from chronic constipation. She's gluten free since October. She can tolerate very little dairy. I finally got Miralax to clean her out and she's been feeling lighter and even her behavior is better. I hate the ingredients though. Polyethelyne glycol *shudders*. I hate it, even though it's helping, but constipation must be just as bad as the ingredients (she was showing signs of malnourishment, even though she is overweight, which is slowly improving). Anyway, is there anything natural that could keep her regular? She's limited to one serving of organic whole milk daily, no cheese or yogurt, and this helps. She had MPI as an infant, but was recently tested and had .02 above the normal threshold, so barely nothing. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Zodi1993 Apprentice

Hi,

Try having her drink a glass of warm water. As warm as she can tolerate at least once a day. It’s an old trick that nurses use when patients have problems using the restroom. 

Best of luck :) 

Jmg Mentor
3 hours ago, selectivefocus said:

Anyway, is there anything natural that could keep her regular?

Magnesium rich foods may help: Open Original Shared Link

 

ravenwoodglass Mentor

Does she consume soy?  It may not apply for her but when I consume either soy flour or protein it binds me up for days.  You could try also eliminating soy and see if it helps.  Prunes or prune juice may also help. They gave it to me in the hospital after I had my son. They wouldn't let me go home till I had a BM and I was on my way home with my baby in just a couple hours after drinking a glass.

Ennis-TX Grand Master
5 hours ago, selectivefocus said:

My 9 year old daughter suffers from chronic constipation. She's gluten free since October. She can tolerate very little dairy. I finally got Miralax to clean her out and she's been feeling lighter and even her behavior is better. I hate the ingredients though. Polyethelyne glycol *shudders*. I hate it, even though it's helping, but constipation must be just as bad as the ingredients (she was showing signs of malnourishment, even though she is overweight, which is slowly improving). Anyway, is there anything natural that could keep her regular? She's limited to one serving of organic whole milk daily, no cheese or yogurt, and this helps. She had MPI as an infant, but was recently tested and had .02 above the normal threshold, so barely nothing. 

Natural Vitality Calm uses Magnesium Citrate, I take it in a warm glass of liquid. Try 1/4tsp and work up over a week til she has loose stools then cut it back a bit so she has standard BM. Magnesium Deficiency is common with this disease and constipation can be on of the symptoms, along with in SOME cases, tingly arms, cramps/painful legs, lack of dreams, etc. Everyone is different.

selectivefocus Enthusiast
4 hours ago, ravenwoodglass said:

Does she consume soy?  It may not apply for her but when I consume either soy flour or protein it binds me up for days.  You could try also eliminating soy and see if it helps.  Prunes or prune juice may also help. They gave it to me in the hospital after I had my son. They wouldn't let me go home till I had a BM and I was on my way home with my baby in just a couple hours after drinking a glass.

No we are a strict soy free house. My 5 year old has had a terrible soy allergy since birth. Honestly, I think my  (undiagnosed at the time) celiac disease during pregnancy combined with my csections contributed to the problems with food my girls have. When I eat soy, I get acne and other skin issues almost immediately. But that's a story for another time! I personally feel that the massive amount of soy in our food is a contributing factor to the massive amount of hormonal issues in this country. Before I knew better, I gave her soy milk for almost 18 months after she came off her hypoallergenic formula as an infant, and I can't help but think that has created so many problems for her now.

selectivefocus Enthusiast
5 hours ago, Jmg said:

Magnesium rich foods may help: Open Original Shared Link

 

I tried a magnesium glycinate supplement on myself. It definitely cleans you out but it's not very gentle LOL I'll look into food sources, although I've read they aren't enough DV.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
15 minutes ago, selectivefocus said:

I tried a magnesium glycinate supplement on myself. It definitely cleans you out but it's not very gentle LOL I'll look into food sources, although I've read they aren't enough DV.

LOL reason I say get the calm formula in the powder and start at 1/4 tsp (1/8th the dose) You can measure and dose it as your body needs if it is in a powder. -_- the whole capsule "TAKE THIS MUCH" does not work for everyone....heck I found I have to open capsules and only take half doses of some things to work and up to 4x the dose on others to work. Everyone's body chemistry and compatibility is different, you have to find the dosing and combinations that work with the individuals body. Heck sugar/fruits/carbs make my UC flare up and I start shitting blood.

selectivefocus Enthusiast
29 minutes ago, Ennis_TX said:

LOL reason I say get the calm formula in the powder and start at 1/4 tsp (1/8th the dose) You can measure and dose it as your body needs if it is in a powder. -_- the whole capsule "TAKE THIS MUCH" does not work for everyone....heck I found I have to open capsules and only take half doses of some things to work and up to 4x the dose on others to work. Everyone's body chemistry and compatibility is different, you have to find the dosing and combinations that work with the individuals body. Heck sugar/fruits/carbs make my UC flare up and I start shitting blood.

Do you have fructose malabsorption? I struggled with that for the better part of last year but its slowly getting better. 

Ennis-TX Grand Master
3 minutes ago, selectivefocus said:

Do you have fructose malabsorption? I struggled with that for the better part of last year but its slowly getting better. 

Fructose, glucose, etc.  triggers my Ulcerative Colitis. I can not eat it...keto diet no fruits, grains, starchy veggies, just nuts, seeds, leafy greens, egg whites, vegan protein powders etc. I just go for a high fat/protein diet. Works best for my body and I feel much better. Every time I go off it and have a tiny bit I have tons of issues.... I doubt aborobtion of sugars is a issue...if anything that is too good considering how much they also effect my glucose levels.

tessa25 Rising Star

Cook thick zucchini slices in olive oil and salt to taste. Eat large quantities. Zucchini has fiber, magnesium and water. A perfect trio for getting things moving. 2 mile brisk walks every day also gets things moving.

 

selectivefocus Enthusiast
2 hours ago, tessa25 said:

Cook thick zucchini slices in olive oil and salt to taste. Eat large quantities. Zucchini has fiber, magnesium and water. A perfect trio for getting things moving. 2 mile brisk walks every day also gets things moving.

 

She's 9...

plumbago Experienced

veggies
veggies
veggies

and fruit.

How, you ask? Shakes! Ice, ginger, yogurt (maybe even vanilla ice cream instead of yogurt), baby spinach and/or kale, beets (bit of sweet and will hide the green color), quarter of banana, carrot, blue berry, pineapple, orange - whatever! I recommend more veggies than fruit, but half and half should also be fine. Sip over 30 minutes. Don't tell her there are veggies in it.

Experiment - almost guaranteed to work. Get her walking a lot too.

cyclinglady Grand Master

I think you need to determine the source.  While it may be attributed to celiac disease, it should have resolved or improved on a strict gluten free diet by now.    Many things can cause constipation (I am sure you have researched this):

Open Original Shared Link

You mentioned a milk protein intolerance? Maybe she has not out grown that intolerance.  It might not just be a lactose intolerance which more commonly associated with celiac disease (damaged villi can not release the enzymes to digest lactose).   I would consider eliminating all milk products for a few weeks.  

And... I am big in veggies too because they are a whole food and that is most always a good thing!  

cyclinglady Grand Master
1 hour ago, selectivefocus said:

She's 8...

Here is another clue to her constipation woes.    Sounds like she does not like veggies.  A very common struggle between child and parent!  I think KarenG made this her life long goal!  “How to get teenagers to eat more veggies” which is written in her celiac.com bio.   I do not think she won the battle or the war.  Turns out the the motivator was a girlfriend!  Ha!  ?  I do think KarenG attempted to hide veggies.  That might work!  

We love zucchini.   Tessa, I want some now!  Maybe some nice sautéed cabbage or spinach  would be nice for breakfast!  I have that in the frig.  Thinking bout my veggie garden.  Soon it will be time to plant zucchini.  

Finally, it does take time to heal.  Usually kids tend to heal faster but adhering to the diet or other issues can slow down healing.   Hang in there!  

selectivefocus Enthusiast
1 hour ago, plumbago said:

veggies
veggies
veggies

and fruit.

How, you ask? Shakes! Ice, ginger, yogurt (maybe even vanilla ice cream instead of yogurt), baby spinach and/or kale, beets (bit of sweet and will hide the green color), quarter of banana, carrot, blue berry, pineapple, orange - whatever! I recommend more veggies than fruit, but half and half should also be fine. Sip over 30 minutes. Don't tell her there are veggies in it.

Experiment - almost guaranteed to work. Get her walking a lot too.

She literally never stops moving. She plays outside for several hours when she isn't at school. Movement isn't the issue. She also eats a lot of fruits and veggies, but smoothies are not a bad idea.

selectivefocus Enthusiast
1 hour ago, cyclinglady said:

I think you need to determine the source.  While it may be attributed to celiac disease, it should have resolved or improved on a strict gluten free diet by now.    Many things can cause constipation (I am sure you have researched this):

Open Original Shared Link

You mentioned a milk protein intolerance? Maybe she has not out grown that intolerance.  It might not just be a lactose intolerance which more commonly associated with celiac disease (damaged villi can not release the enzymes to digest lactose).   I would consider eliminating all milk products for a few weeks.  

And... I am big in veggies too because they are a whole food and that is most always a good thing!  

So I definitely think she might still be intolerant, which is why I limit her to only a cup of organic whole milk per day. It doesn't bother her stomach at all, probably because it's high fat. She usually has it in her gluten-free cereal before school. Although, we had an Against The Grain plain cheese pizza last night for supper as a treat, and she felt very ill about 3 hours later, so I definitely think it's the dairy even though she didn't pop hot on her blood test to it. My other daughter had a really bad soy allergy as a baby, and recently tested negative to it, but it still makes her really sick depending on the type and quantity. 

selectivefocus Enthusiast
55 minutes ago, cyclinglady said:

Here is another clue to her constipation woes.    Sounds like she does not like veggies.  A very common struggle between child and parent!  I think KarenG made this her life long goal!  “How to get teenagers to eat more veggies” which is written in her celiac.com bio.   I do not think she won the battle or the war.  Turns out the the motivator was a girlfriend!  Ha!  ?  I do think KarenG attempted to hide veggies.  That might work!  

We love zucchini.   Tessa, I want some now!  Maybe some nice sautéed cabbage or spinach  would be nice for breakfast!  I have that in the frig.  Thinking bout my veggie garden.  Soon it will be time to plant zucchini.  

Finally, it does take time to heal.  Usually kids tend to heal faster but adhering to the diet or other issues can slow down healing.   Hang in there!  

She eats broccoli, green beans, and carrots fine, which we have almost every night with dinner. She usually has 3 or so servings of whole fruit per day and I am obnoxious about how much water she drinks. I am almost 32 years old and I like most everything, but I am not really a zucchini fan although I will eat it. I agree with the time to heal aspect of it. I read the chronic constipation can alter the integrity and shape and size of your colon and that you need to be on laxatives for 6-12 months to heal it. Does that sound like big pharma bogusness or is there truth to it? 

plumbago Experienced
44 minutes ago, selectivefocus said:

She eats broccoli, green beans, and carrots fine, which we have almost every night with dinner. She usually has 3 or so servings of whole fruit per day and I am obnoxious about how much water she drinks. I am almost 32 years old and I like most everything, but I am not really a zucchini fan although I will eat it. I agree with the time to heal aspect of it. I read the chronic constipation can alter the integrity and shape and size of your colon and that you need to be on laxatives for 6-12 months to heal it. Does that sound like big pharma bogusness or is there truth to it? 

Sounds like you have a definite handle on the dietary aspect of constipation. Sometimes when children's routines change and there may be a different voiding pattern, children will withhold due to unfamiliar surroundings. There are other reasons to avoid going, such as pain. I remember I used to have pain as a child. There may be something that can be done. Perhaps if you do decided to increase fiber intake, it will help soften things up. If you feel she's getting a sufficient amount as is and you don't want to add any more fiber, you can possibly talk to your pediatrician about a stool softener (senna, doculace), but I am not sure if those are safe for children or not.

I saw you posted about her blood test results on another thread, it may be helpful to include that information here, too, just for people to have as much information as possible. 

Plumbago

selectivefocus Enthusiast
3 minutes ago, plumbago said:

Sounds like you have a definite handle on the dietary aspect of constipation. Sometimes when children's routines change and there may be a different voiding pattern, children will withhold due to unfamiliar surroundings. There are other reasons to avoid going, such as pain. I remember I used to have pain as a child. There may be something that can be done. Perhaps if you do decided to increase fiber intake, it will help soften things up. If you feel she's getting a sufficient amount as is and you don't want to add any more fiber, you can possibly talk to your pediatrician about a stool softener (senna, doculace), but I am not sure if those are safe for children or not.

I saw you posted about her blood test results on another thread, it may be helpful to include that information here, too, just for people to have as much information as possible. 

Plumbago

What's frustrating is that her doctor just thinks a pill cures everything. I will literally try everything before putting my child or myself on a medicine unless its absolutely necessary. I think once this package of Miralax is gone, I'm going to stop, and see what happens with her on a limited dairy diet.

ravenwoodglass Mentor
48 minutes ago, selectivefocus said:

She eats broccoli, green beans, and carrots fine, which we have almost every night with dinner. She usually has 3 or so servings of whole fruit per day and I am obnoxious about how much water she drinks. I am almost 32 years old and I like most everything, but I am not really a zucchini fan although I will eat it. I agree with the time to heal aspect of it. I read the chronic constipation can alter the integrity and shape and size of your colon and that you need to be on laxatives for 6-12 months to heal it. Does that sound like big pharma bogusness or is there truth to it? 

Going on laxatives for that long can make people dependent on them. There are stool softeners that might be better if you feel you want to go with pills. Ask your doctor about them.

I agree with dropping all dairy for a bit. she may be sensitive to casien rather than the lactose. That can cause a delayed reaction. Probiotics like those in yogurt can be found in non-dairy yogurts and those might help a lot. If she likes saurkraut that is a good source of probiotics also. I understand there are some really good non-dairy cheese that have been developed. I am fine with dairy so I haven't tryed any so don't know which brands might be best.  She could still have a pizza night that way.

Hope she is feeling better soon.

plumbago Experienced
43 minutes ago, selectivefocus said:

What's frustrating is that her doctor just thinks a pill cures everything. I will literally try everything before putting my child or myself on a medicine unless its absolutely necessary. I think once this package of Miralax is gone, I'm going to stop, and see what happens with her on a limited dairy diet.

Ok, but Miralax is just as much a medicine as senna is! Just cause senna comes in a pill form doesn't make it any more of a medicine than something you drink. My .02.

selectivefocus Enthusiast
13 minutes ago, plumbago said:

Ok, but Miralax is just as much a medicine as senna is! Just cause senna comes in a pill form doesn't make it any more of a medicine than something you drink. My .02.

Sorry, I should have clarified. My implication was not that these medicines are not necessary for her or anyone else. She prescribed her daily zyrtec because I said she was having frequent headaches and automatically gave her a diagnosis of pollen allergies when she has no issue with seasonal allergies. :/ Navigating celiac with myself and my kids has jaded me with doctors.

plumbago Experienced
19 hours ago, selectivefocus said:

Sorry, I should have clarified. My implication was not that these medicines are not necessary for her or anyone else. She prescribed her daily zyrtec because I said she was having frequent headaches and automatically gave her a diagnosis of pollen allergies when she has no issue with seasonal allergies. :/ Navigating celiac with myself and my kids has jaded me with doctors.

I completely understand.

The only other thing I wanted to add was that if you do decide to do shakes (aka smoothies) make sure you really let that blender roll! Meaning, keep it blending for a good long while. I put all my veggies and fruit in (and water), and blend it, then I add ice and just let it go while I am doing my morning thing (cleaning, cooking, getting ready for work). The blender is going for at least 5-7 minutes. Some people buy a vitamix blender, which costs about $200-$300. I find my Osterizer does well, I just gotta let it blend for a while, and yes, it's a bit loud. At my old house, I would blend it  outside in the car port, so as not to bother the others. And finally, are you sure your daughter is not getting glutened at school?

selectivefocus Enthusiast
1 hour ago, plumbago said:

I completely understand.

The only other thing I wanted to add was that if you do decide to do shakes (aka smoothies) make sure you really let that blender roll! Meaning, keep it blending for a good long while. I put all my veggies and fruit in (and water), and blend it, then I add ice and just let it go while I am doing my morning thing (cleaning, cooking, getting ready for work). The blender is going for at least 5-7 minutes. Some people buy a vitamix blender, which costs about $200-$300. I find my Osterizer does well, I just gotta let it blend for a while, and yes, it's a bit loud. At my old house, I would blend it  outside in the car port, so as not to bother the others. And finally, are you sure your daughter is not getting glutened at school?

We actually have a Vitamix. It's well worth the investment for a celiac who makes everything from scratch! When we first got it I was making very spinach heavy smoothies thinking it was sooooo good for me, until I ended up with terrible joint pain from the oxalates! We fell out of making smoothies with it since we moved last September. 

Anyway! I pack lunch and snack every day for her and her sister. They are not allowed to share food at school. I am meticulous about the food I buy and the food I give them so I don't think that's a possibility. I am fortunate to be stay at home mom so my girls get homemade good food every day. In addition to all of this nonsense, she has an anaphylactic almond allergy. Last school year a child at her old school gave her what appeared to be a peanut m&m, but it was almond, and she had to be rushed to the emergency room. My whole life food wise is bananas. HAHA

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.