Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body odor


Zoey000

Recommended Posts

Zoey000 Newbie

Hello everyone ,  

Does anyone have body odor issue when eating food that contains gluten, because the minute I accidentally eat gluten I experience severe body odor and it can last weeks. Iam not sure if it’s related to gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
2 hours ago, Zoey000 said:

Hello everyone ,  

Does anyone have body odor issue when eating food that contains gluten, because the minute I accidentally eat gluten I experience severe body odor and it can last weeks. Iam not sure if it’s related to gluten.

Welcome!  

If you suspect celiac disease, consider getting tested:

http://www.cureceliacdisease.org/screening/

However, celiac disease is an autoimmune disorder.  It takes often days for antibodies to build and for symptoms to develop.  If symptoms are swift, then maybe it is an allergy.   I have not heard of BO as a result of celiac disease, but I have heard of things like garlic that can come off as body odor.  

  • 1 month later...
V123 Apprentice
On 3/1/2018 at 5:58 PM, Zoey000 said:

Hello everyone ,  

Does anyone have body odor issue when eating food that contains gluten, because the minute I accidentally eat gluten I experience severe body odor and it can last weeks. Iam not sure if it’s related to gluten.

I am not a diagnosed celiac, I have been on a gluten free diet since a week ago suggested by dietician. My endoscopy was negative but my IGA blood tests were abnormal. I do experience really bad body odor as well, not sure if it’s related to gluten or not but so far no difference in BO. I’m hoping it is gluten, but I will tell you if I notice it to subside as I further continue a gluten free diet! Do you know what the BO is described as?

  • 2 weeks later...
plumbago Experienced
On 4/6/2018 at 9:47 AM, V123 said:

I am not a diagnosed celiac, I have been on a gluten free diet since a week ago suggested by dietician. My endoscopy was negative but my IGA blood tests were abnormal. I do experience really bad body odor as well, not sure if it’s related to gluten or not but so far no difference in BO. I’m hoping it is gluten, but I will tell you if I notice it to subside as I further continue a gluten free diet! Do you know what the BO is described as?

Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem).

Plumbago

V123 Apprentice
11 hours ago, plumbago said:

Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem).

Plumbago

I haven’t said anything to any of them, though they have probably detected it

  • 3 months later...
Zoey000 Newbie
(edited)
On 4/6/2018 at 4:47 PM, V123 said:

I am not a diagnosed celiac, I have been on a gluten free diet since a week ago suggested by dietician. My endoscopy was negative but my IGA blood tests were abnormal. I do experience really bad body odor as well, not sure if it’s related to gluten or not but so far no difference in BO. I’m hoping it is gluten, but I will tell you if I notice it to subside as I further continue a gluten free diet! Do you know what the BO is described as?

Hello, sorry for the very late reply I was wondering  does the body odor subside or not ? Because I just started gluten free diet and i hope it can reduce my body odor 

Edited by Zoey000
Ennis-TX Grand Master
1 hour ago, Zoey000 said:

Hello, sorry for the very late reply I was wondering  does the body odor subside or not ? Because I just started gluten free diet and i hope it can reduce my body odor 

With BO it normally comes down to digestive issues and  breaking down certain foods that either, ferment, rot, or have chemical compounds that do not get broken down right and lead to the odor. Common culprits can be, gluten, dairy, meat, turmeric. While I do not eat meat often due to pancreas enzyme issues, I do notice a ammonia, sulfur, almost cat urine smell if I eat poultry, or red meat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
LilyR Rising Star

When I got the sudden bad stomach/digestion flare up last year (before I knew I had gluten sensitivity) I was having bad under arm odor.  It was driving my crazy, and I assumed it was related to my health issues. I was really sick with a fever for a year and a half and so on.  Once I stopped eating gluten, I have noticed the BO has greatly improved.  This past week I accidentally got glutened somehow, my stomach issues are all flared up and I feel horribly sick, and go figure, yes, the BO has returned.  So I do think there is a definite connection for me.  Perhaps for you too. 

On another note, when I take a lot of vitamins, especially iron, I also have a stronger BO, although it's a little different than the sick/glutned BO.  Also when I take a strong B complex, I tend to smell it in my BO a little.  But the worst, strongest smell is when I am sick with gluten.  I also seem to smell my urine more strongly when I am dealing with gluten symptoms.  I can smell the foods I recently ate. It annoys me, but once I heal from the gluten, it gets better.  It is embarrassing to talk about, but it is nice we can share things here on this site. Some symptoms doctors don't even seem to believe or understand, or they act like they never heard that before.  So this message board is so helpful to share with people who actually are experiencing the disease/sensitivity.  It could take you a few months to feel better and notice the BO get better too, but I bet you will notice the smell gets much better, even back to normal. 

  • 1 year later...
Paula$ Newbie

I think I can relate. I'm lactose intolerant, but I'm also not dealing well with gluten. I'm going to the doctor next week. I've been eating gluten free for weeks, today I had a really small dose of gluten and all the symptoms came back. Including the body odor! Yesterday I had sushi at night, and I had gluten today at lunch. And it's like my body, my sweat, smells of sushi. Also, this is a bit TMI, but I got all bloated, weird loud stomach noises, gas and farts, all the usual, but my farts smell so badly of sushi. A day after I ate it! It's terrible. And I only ate a small tuna patty with a little bit of flour in the ingredients. Seriously, I smell my skin, and I smell like sushi. It's so weird.

  • 1 year later...
LeslieNYC Newbie

Yes! Recently confirmed celiac disease and starting to put things together. When I accidentally consume gluten my body odor changes to an onion smell. It’s disgusting but typically only lasts for 12-24 hours depending on amount consumed. Showers, cleaning doesn’t help, it’s coming from the inside so only time will subdue the odor. 
Hope you’re getting some answers! Good to know I’m not the only one. 

knitty kitty Grand Master

@LeslieNYC,

I get altered body odor when I get glutened, too.  

Frequently, the odor is caused by bacteria in the intestines that produce lots of sulfur gas when "fed" carbohydrates like gluten and veggies that contain lots of sulfur (broccoli, asparagus, cabbage, onion, garlic,etc.) and proteins high in sulfur like fish and eggs.  

Small Intestinal Bacterial Overgrowth (SIBO) should be suspected.  Changing your diet to a high protein/low carbohydrate diet (like the Autoimmune Protocol Paleo diet) can help alter the intestinal bacteria, effectively starving out those carbohydrates-loving bacteria which produce lots of sulfur containing stinky gases.  

Probiotics that contain Bifido bacteria and Lactobacillis bacteria can help change your intestinal flora, too.

Also, get checked by your dentist for any oral infections.  And get checked for other infections of the urinary tract (UTI's).  

Hope this helps!

 

 

 

  • 1 year later...
MrPete Newbie
On 8/23/2021 at 5:13 PM, LeslieNYC said:

Yes! Recently confirmed celiac disease and starting to put things together. When I accidentally consume gluten my body odor changes to an onion smell. It’s disgusting but typically only lasts for 12-24 hours depending on amount consumed. Showers, cleaning doesn’t help, it’s coming from the inside so only time will subdue the odor. 
Hope you’re getting some answers! Good to know I’m not the only one. 

Hi! I know it’s been a while since you posted this but I’ve been dealing with this issue for 3 years! Not knowing what is causing this! But this is making sense now… I have to get tested… I had a plain hamburger on Monday and Tuesday my onion like odor was crazy but only my wife can smell it, not me! But this is happening almost everything and getting worst :(

Scott Adams Grand Master

Welcome @MrPete, others have reported this as a symptom, although it would not make the list of the most common symptoms. Here is more info on blood tests for celiac disease, and note that you need to keep eating gluten on a daily basis until all celiac disease testing is completed:

 

  • 1 month later...
Hayley34 Newbie
On 3/1/2018 at 5:58 PM, Zoey000 said:

Hello everyone ,  

Does anyone have body odor issue when eating food that contains gluten, because the minute I accidentally eat gluten I experience severe body odor and it can last weeks. Iam not sure if it’s related to gluten.

I have noticed since I gave up wheat that my body odor is very little!!!

  • 1 year later...
Sannino Newbie
On 8/27/2018 at 2:21 PM, LilyR said:

When I got the sudden bad stomach/digestion flare up last year (before I knew I had gluten sensitivity) I was having bad under arm odor.  It was driving my crazy, and I assumed it was related to my health issues. I was really sick with a fever for a year and a half and so on.  Once I stopped eating gluten, I have noticed the BO has greatly improved.  This past week I accidentally got glutened somehow, my stomach issues are all flared up and I feel horribly sick, and go figure, yes, the BO has returned.  So I do think there is a definite connection for me.  Perhaps for you too. 

On another note, when I take a lot of vitamins, especially iron, I also have a stronger BO, although it's a little different than the sick/glutned BO.  Also when I take a strong B complex, I tend to smell it in my BO a little.  But the worst, strongest smell is when I am sick with gluten.  I also seem to smell my urine more strongly when I am dealing with gluten symptoms.  I can smell the foods I recently ate. It annoys me, but once I heal from the gluten, it gets better.  It is embarrassing to talk about, but it is nice we can share things here on this site. Some symptoms doctors don't even seem to believe or understand, or they act like they never heard that before.  So this message board is so helpful to share with people who actually are experiencing the disease/sensitivity.  It could take you a few months to feel better and notice the BO get better too, but I bet you will notice the smell gets much better, even back to normal. 

Hi! Thanks for sharing. Are you back to normal? I mean your body odor is normal now, have you fixed totally?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,087
    • Most Online (within 30 mins)
      7,748

    Miss Pam
    Newest Member
    Miss Pam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • jeffpine
      WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged, 
    • Jmartes71
      I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?
    • Wheatwacked
      With all the bloodwork, have they checked your vitamin D?  What is it?  Celiac Disease causes malabsorption, so vitamin deficiencies are common.  Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting. Other potential symptoms like abdominal fullness, indigestion, and constipation can also occur. These gastrointestinal issues may resist standard treatments, signaling a need to consider thiamine deficiency.  It is commonly believed that thiamine deficiency is not an issue in the western cultures, so rarely address by doctors. Doses of thiamine above 100 mg several times a day will quickly show improvement.  Borderline deficiency will come and go depending on what your eat.  Carbs use it up faster, so for example if you eat a lot of carbs today, tomorrow you may have symptoms.  Thiamine (Benfothiamine is a synthetic fat soluable thiamine) is water soluable, we only store maybe a weeks worth, and there is no upper limit on how much you consume.  Excess is stored or peed away.   For them it isn't a oroblem.  LOL.  They just say some people are like that and see the next patient.  
    • sillyac58
      I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them.  I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
    • trents
      Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
×
×
  • Create New...