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What do you eat when most of the foods make you sick?


Fairy50-dust

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Fairy50-dust Newbie

Hello, I don't know if my topic fits better here, but I didn't know where to categorize it. In 2011 I've been diagnosed with celiac disease and since then I've been on a very strict diet, finally starting to feel better in 2014. In the meanwhile, I also had a laparoscopic surgery for 3rd stage endometriosis, and last year I was diagnosed with IBS, lactose intolerance, as well as insulin resistance and systemic candidiasis. Since last month I'm also on therapy for IBD (the doctors are suspecting microscopic colitis, but colonoscopies confirmed atypical inflammation only). Therapy for Candida (Diflucan) didn't help, and I've been recommended to adapt my diet.

I was wondering if anyone has experience in dealing with other diets, in particular for Candida? Most of the gluten-free products are starchy, so what do you actually eat? Foods usually recommended for this, like leafy vegetables as well as spices, are impossible for me to eat - actually, I feel sometimes like most of the foods make me feel even worse and I keep losing weight.

I hope someone can share their experience, thank you! 


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Ennis-TX Grand Master

You would probably benefit from my diet base....Keto/Paleo with no Sugar, Grains, Starchy Veggies, Fruit, etc. Normally people use meat on this diet but my pancreas issues prevent this. I live on omelettes, avocados, nut butters from various nuts, seeds both meals in foods and whole pumpkin, gerbs hemp (only gluten free ones out there), flax, chia sunflower, nutritional yeast for homemade dairy free cheese and cheese sauces, vegan cheeses, leafy green veggies and small amounts of fish and crab.
I do baked goods that are grain free low carb in my bakery. I even make a low carb bread out of coconut flour and egg white base. I have a recipe blog here with some options you might like. I have a food list to some fun things like coconut wraps can be bought from Nuco (softest), thrive market (cheapest). And since I can note sell and site rules prevent me advertising my bakery I have to suggest Julian Bakery instead for low carb breads (order from their sit for fresh ones the veriaity pack will help you get a idea). Mikyes Muffins makes a low carb english muffin, and Califlour Foods makes a low carb pizza crust and the plant based one is dairy free.
Check the list for references to low carb, grain free, and keto. Places to order for most are at the bottom. Califlour and Julian your best to order from their site...PS Julian makes a great low carb granola that is grain free.
https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/
https://www.celiac.com/blogs/blog/1202-gluten-free-and-specialty-diet-recipes/

 

Fairy50-dust Newbie

Thank you so much! I suppose it seems so confusing at the beginning, and it helps so much hearing about others' experience and receiving advice like this. I'm going to check these recipes now :-) 

PTArt Apprentice

I too have struggled with Candida for years along with celiac and other autoimmune issues. The best way to fight Candida is to eliminate all starches and sugars from any source whatsoever. That means vegetables and fruit as well. I would also recommend a food intolerance test from KBMO Diagnostics. It has been incredibly helpful to me in eliminating other foods that create inflammation in my body. Even foods that fight Candida, such as coconut, were causing inflammation for me, so this information was crucial to my recovery. Be prepared for a long term diet change, but you can get this under control and feel better. All my best to you.

Fairy50-dust Newbie
5 hours ago, PTArt said:

I too have struggled with Candida for years along with celiac and other autoimmune issues. The best way to fight Candida is to eliminate all starches and sugars from any source whatsoever. That means vegetables and fruit as well. I would also recommend a food intolerance test from KBMO Diagnostics. It has been incredibly helpful to me in eliminating other foods that create inflammation in my body. Even foods that fight Candida, such as coconut, were causing inflammation for me, so this information was crucial to my recovery. Be prepared for a long term diet change, but you can get this under control and feel better. All my best to you.

Thank you so much for your advice and for sharing your experience! It feels good to hear it from someone who made through this successfully. I've been thinking of taking a food intolerance test for some time now, and this is the right moment to do it

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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