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HELP not sure if i'm on the right path


birdie761

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birdie761 Newbie

I wanted to see if you could give some insight to this; if Celiac is a real possibility

I have struggled with digestive issues on and off for years but last few years, have been the worst lately.  I had some bowel issues (blood in stool, change in bowel movements) recently more. I immediately went to my doctor and he ordered a colonoscopy. They did find some very small polyps but rest was clear.    I’ve always felt “pressure” or bloating so I pushed my doctor as I feel something is off. I work out extensively including multiple running activities (did an 8K run a few weeks ago and training for 10k).

I see my gynecologist to rule out anything with my issues ovaries just to be sure (I had a hysterectomy but left ovaries years ago). In the process of all the blood test, a celiac test was done and my doctor referred me to a GI specialist, saying something about having the markers for it. Not sure what that means.  Since the colonoscopy in March 2018, I’ve had discomfort in my upper abdomen, feeling gassy (feels like I have to burp all the time), nausea, continue loose stools or diarrhea. Always tired.  

Here are my blood test

DQ ALPHA 1 (CELIAC HLA-DQ)

01:03,02:01  

 

DQ BETA 1 (CELIAC HLA-DQ)

02:02,06:03

 

 

My pictures I attached showed my stomach in September 2017 at the Tough Mudder I did and now (this last Sunday)

 

Not sure I’m going down the wrong path or not… any thoughts or tests I could do or maybe I’ve done already, to determine this or not

stomach.webp


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Ennis-TX Grand Master

The distention looks like what some of use get with celiac or in my case even my ulcerative colitis but it is more around the outside rim and lower abdomen.

I can not read panels very well, and in most cases they vary from lab to lab and require a reference range to determine how relative the actual numbers are. You have to be eating gluten daily prior to the labs, and they are not always accurate as some do not test positive on the blood but will have villous atrophy in the endoscope biopsies and even then with a surface area the size of a tennis court...they sometimes miss the damaged areas. You can look up more on the testing here. If you do test positive then at least you can look forward to a cure without meds and getting most of your life back with a very strict diet change. Open Original Shared Link

RMJ Mentor

Those blood tests are for genetics, to see if you have the genes that predispose one to celiac.  Almost a third of the population has the genes for celiac but only 1-2% develop it.  You’d need antibody tests, and if those are positive an endoscopy, to find out if you have it.

Juca Contributor

You need to get tested.

In the meantime, stop eating sugar and artificial sweeteners. It helps with all sorts of digestive issues and it won't mess with you tests (keep eating bread and pasta).

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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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