Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac back pain


Peter D.

Recommended Posts

Peter D. Rookie

Hi,

I was diagnosed  with celiac disease 2 months ago (after a year of suffering) and have been on gluten free diet since then. My symptoms, however, do not seem to disappear. My worst symptoms are severe back pain (mainly right side, i cant recongize if that is muscle or bone related), it is like stabbing and spasms. I also have pain in the mid backbone. It usally goes right to the chest + abdominal discomfort. What is strange to me is that the pain is worse during daytime, when moving. Night time is all right and the pain does not distrub me while sleeping.

Does anyone have a similar problem? Hope it is celiac related.

Thanks,

Peter

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
4 hours ago, Peter D. said:

Hi,

I was diagnosed  with celiac disease 2 months ago (after a year of suffering) and have been on gluten free diet since then. My symptoms, however, do not seem to disappear. My worst symptoms are severe back pain (mainly right side, i cant recongize if that is muscle or bone related), it is like stabbing and spasms. I also have pain in the mid backbone. It usally goes right to the chest + abdominal discomfort. What is strange to me is that the pain is worse during daytime, when moving. Night time is all right and the pain does not distrub me while sleeping.

Does anyone have a similar problem? Hope it is celiac related.

Thanks,

Peter

 

Two months after my celiac disease diagnosis, I fractured two vertebrae doing nothing.  Turns out I have osteoporosis as a result of having celiac disease.  I had months of pain, numbness and tingling.  Ask your doctor for a bone scan.  

But...two months is a short amount of time to heal from celiac disease.  It takes time to really master the diet which adds to healing time.  

Consider good follow-up testing.  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

TrainInVain Apprentice

I'm also newly diagnosed and have had some major back pains for years. I had to be persistent with Doctors about getting necessary x-rays and then MRI that showed the problems. Only one of the issues I think might be Celiac related. I have a pars defect on both sides. Which is a small fracture in the facet joints that support the vertebrae. Its very common among young athletes, which I am neither :p, which is why I thought might be Celiac related.

I would definitely start talking to your doctor about this pain if you haven't already. Mine didn't seem to raise any red flags with them until I mentioned the pain sometimes shoots down my leg.

  • 1 month later...
Rhotitar Apprentice

Kind of late to this but my pain symptoms  are like your right side pain under ribs that travels to my bag. Gets better when laying down. Hurts more when I breathe. My guess you are still getting gluten from accidental sources. 

  • 1 year later...
Anna 07 Newbie

Hi Peter, I know this was a long time ago but I  have the exact same back symptoms.  Did you manage to find any answers? 

GFinDC Veteran
On 6/5/2020 at 6:49 AM, Anna 07 said:

Hi Peter, I know this was a long time ago but I  have the exact same back symptoms.  Did you manage to find any answers? 

Hi Anna,

Peter isn't following this thread so he may not see your question.  You can tell if people are following a thread by checking the small circle to the right of the thread title.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    2. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    3. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    4. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

    5. - sha1091a posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.