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Can U Get Dh After Dx?

Moongirl

By Moongirl
in Dermatitis Herpetiformis

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Moongirl Community Regular
Moongirl
Posted

i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

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traveljunkie Rookie
traveljunkie
Posted

Do you mean if you accidentally get glutened?

Charlene

Guest CD_Surviver
Guest CD_Surviver
Posted

i do not believe so

Lauren

Moongirl Community Regular
Moongirl
Posted
  • Author
Do you mean if you accidentally get glutened?

Charlene

No, just in general, is it something that can develop?

Drew Newbie
Drew
Posted
i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Well, even if you had full blown DH to begin with, it would dissapear after you went gluten free. So no, if you are truly gluten-free then DH should not be a problem. There is a mechanism in the body that causes gluten intolerance to actually increase for 7 days after eliminating it. Perhaps you might get some extra symptoms upon accidental ingestion that you did not get before going gluten-free.

If you are getting itchy or painful red bumps on your skin that hang around for days and/or ooze and inflame... its probably a reaction from ingesting gluten. Think of it as a handy visual indicator :D Thats what I do to relieve the depression of seeing them appear.

Good luck being gluten-free

cornbread Explorer
cornbread
Posted

I never had DH, but having gone gluten-free, then casein-free and most recently (following positive antibody testing at Enterolab), soy and yeast free too, I got 'glutened' by yeast (yeasted?!) last week, and developed, for the first time ever, symmetrical, dry, very itchy marks. Both sides of my chest, stomach and inner arms. It looked a lot like some of the photos of DH I've seen. As soon as I tracked down the errant yeast source and cut it out, the marks faded and stopped itching.

Carriefaith Enthusiast
Carriefaith
Posted

Whenever I am glutened now, I usually get chicken pox like spots on my skin, which I never had before going on the diet. I'm not sure if it is dh because I have only had gluten in accidents or cross contamination since going gluten free. I also have a wheat allergy, so the spots could be related to that.

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  • 4 weeks later...
4getgluten Rookie
4getgluten
Posted

Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.

teebs in WV Apprentice
teebs in WV
Posted

I read somewhere (not sure where) that there are some people who always have DH symptoms - even after going gluten free. But, I think this is rare.

Carriefaith Enthusiast
Carriefaith
Posted
Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.
Rusla Enthusiast
Rusla
Posted

I truly don't consider them a pleasant reminder because, mine comes out on my face under my nose, corners of my mouth and below my bottom lip. It makes a mess out of my face. I feel like a leper, but certainly know when the smallest grain of wheat.

teebs in WV Apprentice
teebs in WV
Posted

This was how I was diagnosed with celiac - by the DH. I had it on my arms, legs, stomach and lower back....fortunately never on my face. On one hand, it is a terrible thing to endure, but on the other, it keeps me from cheating.

4getgluten Rookie
4getgluten
Posted
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.

I noticed them for the first time 2 weeks ago when I was glutened. I've been gluten-free for about 10 months now... strange. The last time I was glutened was in August, and I don't remember having this reaction. The weird thing is, I remember having this type of rash years ago before I was gluten-free. So, it may be something else. I guess I'll know for sure next time I accidentally eat gluten.

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