Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can U Get Dh After Dx?

Moongirl

By Moongirl
in Dermatitis Herpetiformis

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


traveljunkie Rookie
traveljunkie
Posted

Do you mean if you accidentally get glutened?

Charlene

Guest CD_Surviver
Guest CD_Surviver
Posted

i do not believe so

Lauren

Moongirl Community Regular
Moongirl
Posted
  • Author
Do you mean if you accidentally get glutened?

Charlene

No, just in general, is it something that can develop?

Drew Newbie
Drew
Posted
i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Well, even if you had full blown DH to begin with, it would dissapear after you went gluten free. So no, if you are truly gluten-free then DH should not be a problem. There is a mechanism in the body that causes gluten intolerance to actually increase for 7 days after eliminating it. Perhaps you might get some extra symptoms upon accidental ingestion that you did not get before going gluten-free.

If you are getting itchy or painful red bumps on your skin that hang around for days and/or ooze and inflame... its probably a reaction from ingesting gluten. Think of it as a handy visual indicator :D Thats what I do to relieve the depression of seeing them appear.

Good luck being gluten-free

cornbread Explorer
cornbread
Posted

I never had DH, but having gone gluten-free, then casein-free and most recently (following positive antibody testing at Enterolab), soy and yeast free too, I got 'glutened' by yeast (yeasted?!) last week, and developed, for the first time ever, symmetrical, dry, very itchy marks. Both sides of my chest, stomach and inner arms. It looked a lot like some of the photos of DH I've seen. As soon as I tracked down the errant yeast source and cut it out, the marks faded and stopped itching.

Carriefaith Enthusiast
Carriefaith
Posted

Whenever I am glutened now, I usually get chicken pox like spots on my skin, which I never had before going on the diet. I'm not sure if it is dh because I have only had gluten in accidents or cross contamination since going gluten free. I also have a wheat allergy, so the spots could be related to that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
4getgluten Rookie
4getgluten
Posted

Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.

teebs in WV Apprentice
teebs in WV
Posted

I read somewhere (not sure where) that there are some people who always have DH symptoms - even after going gluten free. But, I think this is rare.

Carriefaith Enthusiast
Carriefaith
Posted
Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.
Rusla Enthusiast
Rusla
Posted

I truly don't consider them a pleasant reminder because, mine comes out on my face under my nose, corners of my mouth and below my bottom lip. It makes a mess out of my face. I feel like a leper, but certainly know when the smallest grain of wheat.

teebs in WV Apprentice
teebs in WV
Posted

This was how I was diagnosed with celiac - by the DH. I had it on my arms, legs, stomach and lower back....fortunately never on my face. On one hand, it is a terrible thing to endure, but on the other, it keeps me from cheating.

4getgluten Rookie
4getgluten
Posted
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.

I noticed them for the first time 2 weeks ago when I was glutened. I've been gluten-free for about 10 months now... strange. The last time I was glutened was in August, and I don't remember having this reaction. The weird thing is, I remember having this type of rash years ago before I was gluten-free. So, it may be something else. I guess I'll know for sure next time I accidentally eat gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.