Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question Ladies

SammieMtz

By SammieMtz
in Coping with Celiac Disease

Recommended Posts

SammieMtz Rookie
SammieMtz
Posted

Ive had celiac disease for about 6-7months now and i havent treated it (im starting today) anyways I noticed when Im on my menstraul since having celiac disease that the cramps and mood swings are far worse.. I am however 16years old.. Does this happen to alot of you or is it perhaps my age and puberty as well??? :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Sweetie,

I am sorry that I can't help you with your question. I am on the flip side of your situations. I am 51, but wait until other chime in and they can better inform you. Hang in there and there will be an answer soon from someone your age...Take care

Merry Christmas to you.

Lisa B.

Guest CD_Surviver
Guest CD_Surviver
Posted

i am also 16 and i have been gluten-free since i was about 6 but just recently went completely gluten-free and yes i have notice that my menstral cycles are more painful but the pain only last the first few days of the cycle.

Lauren

p.s. if you ever want to talk to someone you can always talk to me. either PM me or if you aim my sn is shackledtojesus

KaitiUSA Enthusiast
KaitiUSA
Posted

I had extremely bad ones for a while but the diet has seemed to help. Maybe there is another factor involved or something that could help you because if they are anything like mine used to be they are disabling.

SammieMtz Rookie
SammieMtz
Posted
  • Author

yeah mine r still-altho i havent been gluten-free but before i had celiac disease they didnt faze me one bit so hopefully now that im getting gluten-free they will calm down a bit n thanks for the replies- means alot

nettiebeads Apprentice
nettiebeads
Posted
Ive had celiac disease for about 6-7months now and i havent treated it (im starting today) anyways I noticed when Im on my menstraul since having celiac disease that the cramps and mood swings are far worse.. I am however 16years old.. Does this happen to alot of you or is it perhaps my age and puberty as well??? :unsure:

Age, puberty, and gluten are probably all working together. Most of us with celiac disease notice extreme mood swings after ingesting gluten. And being at the time of your cycle probably doesn't help any either. I used to have horrible cramps when I was younger. Much younger. That was before the days of advil. If you take advil (ibuprofen) just as the pain starts in, you may be able to head off the worst of it. The ibuprofen inhibits the formation of (I think) progesterone, which has been tied to cramps. Or one of the hormones that goes up and down with the cycle. But anyhow, it works. That and midol which has a mild diuretic which also helps in relieving the symptoms.

Those days are long gone for me, but I am a mother to one daughter and was step mom to three girls - Talk about hormone city!!!

Annette

num1habsfan Rising Star
num1habsfan
Posted
Ive had celiac disease for about 6-7months now and i havent treated it (im starting today) anyways I noticed when Im on my menstraul since having celiac disease that the cramps and mood swings are far worse.. I am however 16years old.. Does this happen to alot of you or is it perhaps my age and puberty as well??? :unsure:

I'm 21, but I got Celiac when I was 18 and since then(even since being on the diet) my menstrual cycle is shot. It comes any day it wants (sometimes a couple months since the last, sometimes a week after the last). It was last 2 to 13 days. Sometimes I have such pain I cant even move, sometimes no pain.

Probably doesnt help you much, but thats my side of the story.

~lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SammieMtz Rookie
SammieMtz
Posted
  • Author
I'm 21, but I got Celiac when I was 18 and since then(even since being on the diet) my menstrual cycle is shot. It comes any day it wants (sometimes a couple months since the last, sometimes a week after the last). It was last 2 to 13 days. Sometimes I have such pain I cant even move, sometimes no pain.

Probably doesnt help you much, but thats my side of the story.

~lisa~

no it does help. thanks.... ive never talked 2 other celiacs before so this is great, its jus great 2 know im not alone

tarnalberry Community Regular
tarnalberry
Posted

one thing to keep in mind - if you're getting gluten, and your intestines are inflammed, the general inflammation in the area may be putting more pressure on and further irritating the uterus, so that the spasming that causes the painful cramps gets worse. there are a number of things you can do to help with cramps:

1) regular (daily, even not during menstruation) calcium and magnesium supplements

2) regular (daily, even not during menstruation) exercise

3) start taking advil or aleve (not tylenol, it won't help) at least a day or two before cramps would ordinarily start, and keep taking them, at maximum strength for up to a day after they usually stop. getting ahead of the game is important on this one.

4) ok... no one kill me for suggesting this to a 16-year old, but ... orgasm. really - the physiologic effect on the uterus is known to reduce the severity of cramps. orgasm by masturbation is technically the only thing I can suggest, of course, since anything other than that would technically be illegal. ;-)

5) if #4 isn't an option for whatever reason, then menstrual massage may help. you might want to look it up online, or look in "our bodies, our selves", as it's a bit more complicated than I can explain here.

princessfuzzball Rookie
princessfuzzball
Posted

I was just about to ask this as well. I started cycling last night and the pain was at it's peak around noon today. I have been gluten-free for about six months now with a LOT of "accidental" glutenings (long story about my work situation here) and noticed that this is the most pain I was in in a very long time. When I first went gluten-free and was not getting sick, I noticed that my cramping went down and was not as bad. I highly reccomend the pain reliver/ calcium magnesium combination.

Good luck!

darlindeb25 Collaborator
darlindeb25
Posted

I wonder if some of your problems have nothing to do with celiacs. Many women have menstrual problems without being celiac. I was always very regular, but had a very heavy flow, to the point that I could not leave home for the first 2 or 3 days. I am thankful I am on the down side of menopause--I served my time ;) Deb

Mandya0503 Newbie
Mandya0503
Posted

I just found out I am a celiac but I've always had extremely painful cramps. I also have endometriosis (which is extremely hard to diagnose) since I was about 14 or so. (I'm 26 now.) I don't think endometriosis and celiac are related at all. But things that work for my cramps are:

Thermocare heating patches (wonderful!)

Advil Liqui-Gels (although I haven't checked if they're gluten free)

Birth Control helps. I went on it when I was 16 to help with the pain. I am very sensitive to the Pill though so I am on Nuva Ring. (The 1st and only birth control that does not make me sick!!) Maybe check with an OB-GYN and see about your options.

:D Mandy

SammieMtz Rookie
SammieMtz
Posted
  • Author

thanx and i just moved 2 utah so i dont have a doctor yet.......but i will find one...once again thanx ladies- helps alot

pokerprincess Newbie
pokerprincess
Posted
Ive had celiac disease for about 6-7months now and i havent treated it (im starting today) anyways I noticed when Im on my menstraul since having celiac disease that the cramps and mood swings are far worse.. I am however 16years old.. Does this happen to alot of you or is it perhaps my age and puberty as well??? :unsure:

Sammie, I have been on the diet for about 3 years consistently. I have noticed a huge change in my menstrual. As long as I continue to stay extremely well it is very light and only last for about 3 days.

Last winter while visiting my sister, I kept getting glutened. I had the worst menstual I have ever had and it lasted for about 8 days with extreme cramps. Now that I am fairly well again it is barely noticable.

The diet should help you tremendously!

Good luck!

once and again Rookie
once and again
Posted

I read another thread that questioned the connection between mono and celiac disease. I'm also wondering about celiac and menstrual/gynecological connections. Although I am well past menstruating, I remember the horrible cramps. I also had endometriosis (twice) and fibroid tumors.

darkangel Rookie
darkangel
Posted

A connection wouldn't surprise me. When I was on a completely grain-free diet is the only time I EVER had a period without cramps and all kinds of PMS woes.

I'm on a low-dose bc pill to help regulate my cycles and to keep cramps from getting too bad. I've had times when I've almost passed out from the pain.

A word of hope, though... I think it does get better as you get older. I remember my first couple of years of periods being horrible... lots of cramping and very heavy flow.

pokerprincess Newbie
pokerprincess
Posted

Celiac is the direct effect of a hormone, we know the drastic mood swings that we experience, it only makes since that it would have an effect on something even more obviously physical.quote name='once and again' date='Dec 27 2005, 04:02 PM' post='86858']

I read another thread that questioned the connection between mono and celiac disease. I'm also wondering about celiac and menstrual/gynecological connections. Although I am well past menstruating, I remember the horrible cramps. I also had endometriosis (twice) and fibroid tumors.

anerissara Enthusiast
anerissara
Posted

I had been getting progressivly worse cramps and bad pms the couple of years when the celiac disease started getting bad, before I went gluten free. I had never had either, so it was a real adjustment! After I went gluten-free, both things have really been reduced. I have no idea *why*, but it sure seemed to help!

SammieMtz, I live in Utah and got a suggestion from someone on a good Dr., I will look up her name again and post it here.

carriecraig Enthusiast
carriecraig
Posted

Huh, never made a connection, but my cycle has been out of whack for a few years, even while on the pill. I get spotting almost every month, and now that I've been gluten-free, I've had major mood swings and cramps. <_<

anerissara Enthusiast
anerissara
Posted

Here are the dr.s in Utah (SLC area, there's a link somewhere that has others I think if you need it)

Linda S. Book, M.D.

Primary Childrens Hospital

Tel: (801) 588-3370

Janet Harnsberger, M.D. - Pediatric Gastroenterologist

Cottonwood Medical Tower

250 E 5770 S #330

Salt Lake City, UT 84107

Dr. Michael J. Sossenheimer

5810 So 300 East #235

Murray, Utah 84107

I had Dr. Harnsberger recommended to me by my kids' pediatrician, and since you're 16 she might be a good choice!

Kailynsmom Apprentice
Kailynsmom
Posted

My OB told me that diahhrea is normal with your period! Thank GOD! Otherwise I have a mild flu every month- haha!

Could it just be a combo of womanitis + celiac disease?

SammieMtz Rookie
SammieMtz
Posted
  • Author

ive never had the symptom^^^ but i do think that celiac diease really does interview or basically make our period worse....one day ill find out tho. Im going to college and then to medical school and im goin 2 study celiac diease and try to find a cure(doubt it.haha) or figure more out to help myself and other celiacs.... and anerissara thanks so much for the list of doctors- its greatly appreciated. and sorry guys Ill start sending out the emails right now

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,542
    • Most Online (within 30 mins)
      7,748
    CC324
    Newest Member
    CC324
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.