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Chris H

Nerve pain in feet

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So I’ve had chronic pain in my feet for 5 years, and a dietician recommended I try a gluten free diet, which seen improvements in my feet, first time in years, and I was ecstatic with it, but with the relief of pain in my feet, I had all these other symptoms show up, mild dizziness/loss of balance, tiredness, spacey head feeling, anxiousness. I went back on gluten for a week to confirm it was gluten causing the pain, and the night of having a bowl of pasta, my feet were on fire and pain again for days after it. So I’m confident I have a gluten intolerance, but now I’ve been on the gluten free diet for about a week again, and all the symptoms in my head have come back. The first time I was on the diet it was for about 5 weeks and I was still getting those synptoms. Do I need to just wait longer for my body and brain to adjust? I’ve had all blood tests and mri’s done, everything is normal. Just wondering if anyone else has had Iva long of an adjustment period? I want to feel normal again 

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47 minutes ago, Chris H said:

So I’ve had chronic pain in my feet for 5 years, and a dietician recommended I try a gluten free diet, which seen improvements in my feet, first time in years, and I was ecstatic with it, but with the relief of pain in my feet, I had all these other symptoms show up, mild dizziness/loss of balance, tiredness, spacey head feeling, anxiousness. I went back on gluten for a week to confirm it was gluten causing the pain, and the night of having a bowl of pasta, my feet were on fire and pain again for days after it. So I’m confident I have a gluten intolerance, but now I’ve been on the gluten free diet for about a week again, and all the symptoms in my head have come back. The first time I was on the diet it was for about 5 weeks and I was still getting those synptoms. Do I need to just wait longer for my body and brain to adjust? I’ve had all blood tests and mri’s done, everything is normal. Just wondering if anyone else has had Iva long of an adjustment period? I want to feel normal again 

You asked the same question back in June.  Have you been gluten free since June?  If not, consider getting tested for celiac disease.  It starts with a simple blood test.  

 http://www.cureceliacdisease.org/screening/

You may have more than a gluten intolerance because going gluten free should make you feel better.  But if you have celiac disease, it can take a year or longer to heal.  

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Hi! I had alot of these same symptoms tingling in feet, burning hot feet, cold hands, carpal tunnel pain in my wrist also.  I started taking B6 (3times a day) I did this for several years. Now I don't have those symptoms anymore.  Its vitamin deficiency caused from Celiac disease is what a doctor told me. 

Edited by bre_jocox

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As others pointed out above hone in on the vitamin/nutrition and other possible intolerances.

I became aware of gluten intolerance prior to my diagnosis, but after my challenge I had several intolerances. I can not have gluten, corn, or milk my immune system will just not tolerate it. I had 13 intolerances at one point I am down to 3 now. My immune system also notices cc by gluten and corn and I am highly sensitive/ reactive. 

I will be honest it really took over 2 years to be pain free all symptoms you described I had and more. After reading some of the forum veterans who have my symptoms I surrendered to whole food eating,  baking from scratch using flours by Anthony's , and I do not eat or drink out. I carry a lunch bag every social place and always keep water in car. It helps keep all the pain at bay which reinforces the ultra due diligence. 

I still get pains in my feet or a numb arm and my knuckles are larger despite the inflammation leaving the rest of my fingers.  I have no idea if I should resize those rings again, but they are too loose for my comfort. I do hope these issues will lift in time. I push on.

So when the feet hurt I find rest , verifying I took my multi, focus on my magnesium, and b vitamins ,  a nice Epsom salt soak helps, and I eat low inflammatory for a few days until I get the immune system back in check . this is even without cc. I do have sensitives to environmental chemicals that can upset my immune system that I do my best to avoid that I now being ultra diligent know can trigger a few hours of symptom pain. However I live in a urban area and I can only control so much. 

imho your body needs time and maybe some more investigation to what can upset your immune system. 

 

good luck 

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I would wait it out, gluten affects many of my family members.   Celiac or not they have multiple autoimmune issues which are only exacerbated by eating gluten.

I notice, for me anyway, stress plays a role.  I found out my poor pooch is dying this week and my arthritis which has been so much better on a gluten free diet all of a sudden flared up in multiple joints.

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A lot of people on this forum have other food sensitivities besides just gluten. These can be difficult to figure out because it may take nailing the right food combination on the head in order to feel better. Some also do not feel better right way. From reading other posts on this forum, if gluten effects someones brain they will also likely have other food sensitivities.

There is a search feature on this site were you may be able to find more information. For me I have to avoid all grains, beans, nuts, seeds, dairy, coffee, alcohol and eggs in order to feel best. One thing you might try is to just eat fruit, vegetables, probiotic drinks and meat for a few weeks and see if your symptoms improve. 

You may also want to research things like autoimmune thyroid disorders, vitamin b12 deficiency, anemia,  gout, and gluten ataxia. I don't know if any of those match or not.

 

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On 10/27/2018 at 8:32 AM, ch88 said:

A lot of people on this forum have other food sensitivities besides just gluten. These can be difficult to figure out because it may take nailing the right food combination on the head in order to feel better. Some also do not feel better right way. From reading other posts on this forum, if gluten effects someones brain they will also likely have other food sensitivities.

There is a search feature on this site were you may be able to find more information. For me I have to avoid all grains, beans, nuts, seeds, dairy, coffee, alcohol and eggs in order to feel best. One thing you might try is to just eat fruit, vegetables, probiotic drinks and meat for a few weeks and see if your symptoms improve. 

You may also want to research things like autoimmune thyroid disorders, vitamin b12 deficiency, anemia,  gout, and gluten ataxia. I don't know if any of those match or not.

 

 

On 10/22/2018 at 10:29 PM, Chris H said:

So I’ve had chronic pain in my feet for 5 years, and a dietician recommended I try a gluten free diet, which seen improvements in my feet, first time in years, and I was ecstatic with it, but with the relief of pain in my feet, I had all these other symptoms show up, mild dizziness/loss of balance, tiredness, spacey head feeling, anxiousness. I went back on gluten for a week to confirm it was gluten causing the pain, and the night of having a bowl of pasta, my feet were on fire and pain again for days after it. So I’m confident I have a gluten intolerance, but now I’ve been on the gluten free diet for about a week again, and all the symptoms in my head have come back. The first time I was on the diet it was for about 5 weeks and I was still getting those synptoms. Do I need to just wait longer for my body and brain to adjust? I’ve had all blood tests and mri’s done, everything is normal. Just wondering if anyone else has had Iva long of an adjustment period? I want to feel normal again 

Chris H,

Ch88 has given you good advice look into taking a B12 sublingually.

Many newly diagnosed Celiac's are low in a host of nutrients.

see this research entitled "Vitamin and mineral deficiencies are highly prevalent in newly diagnosed celiac disease patients."

https://www.ncbi.nlm.nih.gov/pubmed/24084055

they conclude quoting

"In conclusion, vitamin/mineral deficiencies are still common in newly "early diagnosed" celiac disease-patients, even though the prevalence of obesity at initial diagnosis is rising. Extensive nutritional assessments seem warranted to guide nutritional advices and follow-up in celiac disease treatment."

Note this is probably even so in those who are overweight at the time of diagnosis. . .we tend to thinks of orphans in africa ie., save the children videos but overweight people also get nutritional deficiencies. .... I think it might be the reason when people go gluten free then begin to loose weight (Only my opinion).

I was not skinny when I was diagnosed but gradually lost weight as my nutrition improved no longer needing my body to store up excess weight and fat to fight off my bodies starved condition.

who know's what it was really. . ..just an hypothesis on my part.

but B-Vitamins are known to help Celiacs'

https://www.celiac.com/articles.html/celiac-disease-diagnosis-testing-amp-treatment/b-vitamins-beneficial-for-celiacs-on-gluten-free-diet-r1416/

and nerve pain is a common sign of Pernicious Anemia (PA) a B-12 deficiency.

I hope this is helpful but it is not medical advice.

good luck on your continued journey.

2 Timothy 2: 7  “Consider what I say; and the Lord give thee understanding in all things” 

Posterboy by the Grace of God,

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Nerve pain in the feet, also called peripheral neuropathy, is caused by the nerves lacking something they need to heal.  In sleep apnea, it is lack of oxygen that impairs healing.  In diabetes, the elevated blood sugar impairs nutrient transfer to the nerve cells. 

In celiac disease, there can be direct damage of the nerve cells by the disease process. 

There are also various nutritional deficiencies associated with celiac disease.  Most common are anemia and impaired growth due to impaired absorption of positive charged nutrient in the damaged small intestine.  Vitamin deficiency is common as well.  The two vitamins I most often have heard associated with celiac disease are B6 as listed, but also B12.  

Be careful about taking B6--too much is toxic. To prevent sensory neuropathy in virtually all individuals, the Food and Nutrition Board of the Institute of Medicine set the tolerable upper intake level (UL) for pyridoxine at 100 mg/day for adults (https://lpi.oregonstate.edu/mic/vitamins/vitamin-B6#toxicity)

Vitamin B12 has no known toxic dose.  Celiac disease damages the intestines ability to absorb B12.  Low B12 can cause dormant fetal cells to morph into carcinoid cancer.  So, Please take vitamin B12 as well.  

More information here:

http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/celiac.shtml

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Thanks for all the replies, after a few weeks testing with food, I’ve figured out that I’m really sensitive to caffeine, alcohol and sugar. I eat or drink either of those, my brain just goes fuzzy, I get real short bursts of dizziness, and I just get tired and head gets super cloudy. Is this normal? Should I see a neurologist about this? I was hoping that it would just be the transition period but it’s been months and it’s still hanging around 

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Hi Chris H, Hopefully you will be feeling better every day. I had and mri on my foot and lower leg, it showed neuromas, arthritis, plantar fasciitis and tendonitis. Proper inner soles helped a lot as did exercising & stretching my feet and legs, but it has taken months to be able to walk more than 10 minutes. I am curious if you are certain it is nerve pain. I tried to describe my pain to DRs for years and it was almost impossible since I had 4 different issues going on. I was diagnosed Celiac in late summer and have noticed that at least the tendonitis is so much better. I have been really gluten free for about 4 months. I do feel better and less in pain and I know that some conditions take longer to heal. Feet bear all of our weight, it takes time. Yes it is important to see if you have other intolerances or vitamin deficiencies. Anyway, all this to say, I see a difference, but only after about 4 months. I can't wait for it to be even better because it is still a real pain ! 

PS my innersoles were done at a pediatrists, they scanned my feet and made them by hand, make sure you have insurance for this :) 

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In case anyone was following this thread, my head has finally adjusted to the no gluten. It took a long time though, I put it down to sever withdrawals, all up it took about 5-6 months for all my neurological symptoms to calm down. The foot pain had been really good up to about 2 weeks ago, where I had a flare up, and I think it may have had to do with dairy. Which is something new again, so I’ve had to cut dairy out as well as gluten, hoping my feet will settle down and start healing the nerves. I have a long way to go, but hoping I’m on the right path. Thanks for all the replies. If anyone stumbles onto this thread, and you have chronic pain in your feet and it can’t be diagnosed by any doctors, consider eliminating gluten out of your diet! 

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